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Stereotactic Radiation Surgery and Brain Mets

Forums General Melanoma Community Stereotactic Radiation Surgery and Brain Mets

  • Post
    SarahW
    Participant

      My husband has an appointment with radiation oncologist re: 3 new brain mets, all < 1 cm. He has already had Stereotactic Radiation Surgery on 8 previous brain mets on two separate occasions. 

      Wondering how many times this procedure can be performed. What has your experience been?

    Viewing 5 reply threads
    • Replies
        arthurjedi007
        Participant

          It is my understanding if they are different brain mets then they can do the radiation because it is a different spot. It is when it is the same met or whole brain radiation that they usually only do once.

          My radiation to my head was one spot that was pressing on my brain. Also received radiation to several spots in my spine. However one spot they did radiate a second time that has kept me from being paralyzed since March and the last they told me the pd1 is shrinking that spot. So it is possible for other spots to get a second time.

          Artie

            SarahW
            Participant

              Thanks for your input!

              SarahW
              Participant

                Thanks for your input!

                SarahW
                Participant

                  Thanks for your input!

                arthurjedi007
                Participant

                  It is my understanding if they are different brain mets then they can do the radiation because it is a different spot. It is when it is the same met or whole brain radiation that they usually only do once.

                  My radiation to my head was one spot that was pressing on my brain. Also received radiation to several spots in my spine. However one spot they did radiate a second time that has kept me from being paralyzed since March and the last they told me the pd1 is shrinking that spot. So it is possible for other spots to get a second time.

                  Artie

                  arthurjedi007
                  Participant

                    It is my understanding if they are different brain mets then they can do the radiation because it is a different spot. It is when it is the same met or whole brain radiation that they usually only do once.

                    My radiation to my head was one spot that was pressing on my brain. Also received radiation to several spots in my spine. However one spot they did radiate a second time that has kept me from being paralyzed since March and the last they told me the pd1 is shrinking that spot. So it is possible for other spots to get a second time.

                    Artie

                    Carole K
                    Participant

                      HI Sarah,

                       

                      I am so sorry for all you are going through.  Sara, I had one brain met and was going to do Gamma Knife , it burst and bled so I had a craniotomy,  My Brain Met Hero is John Gallagher,  Go to his profile here and look for JAG.  I think you will find him inspirational and an amazing young man  John has been through more than anyone I know.  Please reach out to him.  He is amazing and is back at work full time for several years, now.  

                      Please tell him I told you to contact him.  

                      Big hugs and if I can be of any help let me know.  Stay positive.

                      Love and Light

                      Carole K

                      Stage 4 NED 13 YRS 9 MONTHS,

                      AFTER BRAIN AND LUNG METS

                        SarahW
                        Participant

                          Thank you Carole K. I will do it!

                          SarahW
                          Participant

                            Thank you Carole K. I will do it!

                            SarahW
                            Participant

                              Thank you Carole K. I will do it!

                            Carole K
                            Participant

                              HI Sarah,

                               

                              I am so sorry for all you are going through.  Sara, I had one brain met and was going to do Gamma Knife , it burst and bled so I had a craniotomy,  My Brain Met Hero is John Gallagher,  Go to his profile here and look for JAG.  I think you will find him inspirational and an amazing young man  John has been through more than anyone I know.  Please reach out to him.  He is amazing and is back at work full time for several years, now.  

                              Please tell him I told you to contact him.  

                              Big hugs and if I can be of any help let me know.  Stay positive.

                              Love and Light

                              Carole K

                              Stage 4 NED 13 YRS 9 MONTHS,

                              AFTER BRAIN AND LUNG METS

                              Carole K
                              Participant

                                HI Sarah,

                                 

                                I am so sorry for all you are going through.  Sara, I had one brain met and was going to do Gamma Knife , it burst and bled so I had a craniotomy,  My Brain Met Hero is John Gallagher,  Go to his profile here and look for JAG.  I think you will find him inspirational and an amazing young man  John has been through more than anyone I know.  Please reach out to him.  He is amazing and is back at work full time for several years, now.  

                                Please tell him I told you to contact him.  

                                Big hugs and if I can be of any help let me know.  Stay positive.

                                Love and Light

                                Carole K

                                Stage 4 NED 13 YRS 9 MONTHS,

                                AFTER BRAIN AND LUNG METS

                            Viewing 5 reply threads
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