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starting yervoy

Forums General Melanoma Community starting yervoy

  • Post
    hass71
    Participant

      hello

      tomorrow my wife will start her first session on Yervoy IPI treatment (melanoma stage 4), so i need some advices going through this treatment, what shall we expect, how to deal with side effects.

      thank you for your support
      need your prayers

    Viewing 14 reply threads
    • Replies
        arthurjedi007
        Participant

          Well like my local doc says everyone is different. For me I just had some mild rash, itching and a little bit of stomach churning so I pretty much didn't have any side affects worth noting. Also my local doc said it is usually after the 2nd dose that I would notice anything.

          They told me if I had anything lasting more than 24 hours to call. So make sure you have their number to call even after hours.

          You might also want to take special note of any severe stomach pains or dark tarry stools is what they told me. For those I think they wanted me to call right away but I didn't have it.

          Good luck.

          Artie

           

          arthurjedi007
          Participant

            Well like my local doc says everyone is different. For me I just had some mild rash, itching and a little bit of stomach churning so I pretty much didn't have any side affects worth noting. Also my local doc said it is usually after the 2nd dose that I would notice anything.

            They told me if I had anything lasting more than 24 hours to call. So make sure you have their number to call even after hours.

            You might also want to take special note of any severe stomach pains or dark tarry stools is what they told me. For those I think they wanted me to call right away but I didn't have it.

            Good luck.

            Artie

             

            arthurjedi007
            Participant

              Well like my local doc says everyone is different. For me I just had some mild rash, itching and a little bit of stomach churning so I pretty much didn't have any side affects worth noting. Also my local doc said it is usually after the 2nd dose that I would notice anything.

              They told me if I had anything lasting more than 24 hours to call. So make sure you have their number to call even after hours.

              You might also want to take special note of any severe stomach pains or dark tarry stools is what they told me. For those I think they wanted me to call right away but I didn't have it.

              Good luck.

              Artie

               

              Ginger8888
              Participant

                Finished my 4th and last one two wks ago this wed, no side effects except some of my hair is starting to come out but other than that i didn't have any problems…I drank V-8 juice to keep my veggie intake for the day and also drank a nutritional drink daily to make sure i got my nutrients..Eat lots of fresh fruit…I will have my scans Sept 17 and results on the 23rd..Good luck!!

                Ginger8888
                Participant

                  Finished my 4th and last one two wks ago this wed, no side effects except some of my hair is starting to come out but other than that i didn't have any problems…I drank V-8 juice to keep my veggie intake for the day and also drank a nutritional drink daily to make sure i got my nutrients..Eat lots of fresh fruit…I will have my scans Sept 17 and results on the 23rd..Good luck!!

                  Ginger8888
                  Participant

                    Finished my 4th and last one two wks ago this wed, no side effects except some of my hair is starting to come out but other than that i didn't have any problems…I drank V-8 juice to keep my veggie intake for the day and also drank a nutritional drink daily to make sure i got my nutrients..Eat lots of fresh fruit…I will have my scans Sept 17 and results on the 23rd..Good luck!!

                    Nell
                    Participant

                      Hi!  I did have to stop Yervoy after 3 treatments because of worsening diarrhea…..be sure your wife reports colon problems if they start, as they can get out of hand. Many do not have any problems at all…..I wish the very best for your wife…..they say that side effects after the first infusion are rare.

                      Nell
                      Participant

                        Hi!  I did have to stop Yervoy after 3 treatments because of worsening diarrhea…..be sure your wife reports colon problems if they start, as they can get out of hand. Many do not have any problems at all…..I wish the very best for your wife…..they say that side effects after the first infusion are rare.

                        Nell
                        Participant

                          Hi!  I did have to stop Yervoy after 3 treatments because of worsening diarrhea…..be sure your wife reports colon problems if they start, as they can get out of hand. Many do not have any problems at all…..I wish the very best for your wife…..they say that side effects after the first infusion are rare.

                          Mandi0280
                          Participant

                            My husband took IPI abut 2 years ago for stage 3 Melanoma. He was on a study so I think the dosage was higher than what your wife will take. He did fine with his first dose but the second dose made him very sick and have to be hospitalized. Im not saying this to scare you just for you to watch out for the diarrhea that other ppl are talking about. She can get very sick very fast with stomach problems. Other than the stomach problems his other side effects were minimal. I hope everything goes great for her just keep an eye on the stomach and let her doc know at the first sign of problems.

                             

                             

                            Mandi0280
                            Participant

                              My husband took IPI abut 2 years ago for stage 3 Melanoma. He was on a study so I think the dosage was higher than what your wife will take. He did fine with his first dose but the second dose made him very sick and have to be hospitalized. Im not saying this to scare you just for you to watch out for the diarrhea that other ppl are talking about. She can get very sick very fast with stomach problems. Other than the stomach problems his other side effects were minimal. I hope everything goes great for her just keep an eye on the stomach and let her doc know at the first sign of problems.

                               

                               

                              Mandi0280
                              Participant

                                My husband took IPI abut 2 years ago for stage 3 Melanoma. He was on a study so I think the dosage was higher than what your wife will take. He did fine with his first dose but the second dose made him very sick and have to be hospitalized. Im not saying this to scare you just for you to watch out for the diarrhea that other ppl are talking about. She can get very sick very fast with stomach problems. Other than the stomach problems his other side effects were minimal. I hope everything goes great for her just keep an eye on the stomach and let her doc know at the first sign of problems.

                                 

                                 

                                LuckyMan51
                                Participant

                                  Hi,

                                  I had two 4 infusion series of Yervoy and found the drug very tolerable. I did have some minor itching, worse the second time around but a topical creme prescribed by the Dr eased that. I had some minor intestinal issues but OTC Imodium got me back on track quickly. It is critical to monitor your body for any reaction and inform your Oncologist immediatly so they can react and counter any issues that arise. I had a script for steroids ready in the event of an escalation of the intestinal distress.  Although I did have to eventually have the tumor removed surgically the pathology report showed 90% of it was already dead likely from the Yervoy and the simultaneous SRS radiation treatment I had so it appears I was a responder to one or both to some degree. I wish your wife all the best and am hopefull her experience is as easy as mine was. 

                                  LuckyMan51
                                  Participant

                                    Hi,

                                    I had two 4 infusion series of Yervoy and found the drug very tolerable. I did have some minor itching, worse the second time around but a topical creme prescribed by the Dr eased that. I had some minor intestinal issues but OTC Imodium got me back on track quickly. It is critical to monitor your body for any reaction and inform your Oncologist immediatly so they can react and counter any issues that arise. I had a script for steroids ready in the event of an escalation of the intestinal distress.  Although I did have to eventually have the tumor removed surgically the pathology report showed 90% of it was already dead likely from the Yervoy and the simultaneous SRS radiation treatment I had so it appears I was a responder to one or both to some degree. I wish your wife all the best and am hopefull her experience is as easy as mine was. 

                                      delora
                                      Participant

                                        I just finished my second round of IPPY.  So far, itching has been my biggest side effect, which has been controlled with topical treatment and claritin.

                                        I was concerend about the stomach issues especially because I have a sensitive stomach, but, so far, I have not had any issues.

                                        Compared to interfron, this has been a great experience.  Good luck to your wife—and to you.

                                         

                                        delora

                                        delora
                                        Participant

                                          I just finished my second round of IPPY.  So far, itching has been my biggest side effect, which has been controlled with topical treatment and claritin.

                                          I was concerend about the stomach issues especially because I have a sensitive stomach, but, so far, I have not had any issues.

                                          Compared to interfron, this has been a great experience.  Good luck to your wife—and to you.

                                           

                                          delora

                                          delora
                                          Participant

                                            I just finished my second round of IPPY.  So far, itching has been my biggest side effect, which has been controlled with topical treatment and claritin.

                                            I was concerend about the stomach issues especially because I have a sensitive stomach, but, so far, I have not had any issues.

                                            Compared to interfron, this has been a great experience.  Good luck to your wife—and to you.

                                             

                                            delora

                                          LuckyMan51
                                          Participant

                                            Hi,

                                            I had two 4 infusion series of Yervoy and found the drug very tolerable. I did have some minor itching, worse the second time around but a topical creme prescribed by the Dr eased that. I had some minor intestinal issues but OTC Imodium got me back on track quickly. It is critical to monitor your body for any reaction and inform your Oncologist immediatly so they can react and counter any issues that arise. I had a script for steroids ready in the event of an escalation of the intestinal distress.  Although I did have to eventually have the tumor removed surgically the pathology report showed 90% of it was already dead likely from the Yervoy and the simultaneous SRS radiation treatment I had so it appears I was a responder to one or both to some degree. I wish your wife all the best and am hopefull her experience is as easy as mine was. 

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