I wanted to give all you warriors and caregivers an update on Kevin (stage IV since Feb 2014). After a scare in August with a clean CT scan, Kevin had his routine PET scan and MRI today. Both were clear to the doctor and one of his staff members. A radiologist has to confirm, but according to the doc, Kevin is still NED! Praise God!!! He did get the opportunity to speak to one of the team members about a clinical trial that involves Yervoy and a vaccine. Kevin has decided (with my blessing and the support of all medical staff) to hold onto any ammunition for when he has a high tumor load, or an inoperable tumor. He feels good now, and is currently healthy and wants to enjoy that. I see the benefits of being proactive, but support him in his decision. There is always the possibility of taking part in a clinical trial and still have a recurrance. If that were to happen, I know he'd be extremely frustrated with putting himself through the pain and agony of the side effects of Yervoy… Hold out until you really need it! Don't pull the goalie yet.
I wanted to let you all know that NED is a blessing, taking life as a gift is a realization that we have all come to, and bottom line, life is precious. Enjoy your Thanksgiving all. Hug your families! Love unconditionally, laugh hard, cry if you need to. Support each other and know that we are all in it together! Love to you all!!!
.
