Stage IV – still NED – very thankful!
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Stage IV – still NED – very thankful!

› Forums › General Melanoma Community › Stage IV – still NED – very thankful!

  • Post
    • July 19, 2014 at 10:58 am
    Rocco
    Participant

    Wanted to share some hope for others.

    Scans last week revealed I'm still NED!  Now scanned every six months. Continue to be very thankful for all the support and hope I've received off this bulletin board over the years. 

    Hang in there!

    -Roco

    Diagnosed Stage IV  in 2005. NED thanks to MDX-010 (Ipi 10MG/KG) Compassionate Use trial in 2009, all the talented and compassionate doctors and staff at DFCI in Boston., and many, many hours of prayer.

     

Viewing 17 reply threads
  • Replies
      • July 19, 2014 at 12:13 pm
      Happy_girl
      Participant

      Very happy for you! God is good and there is definitely power in prayer! 

      • July 19, 2014 at 12:13 pm
      Happy_girl
      Participant

      Very happy for you! God is good and there is definitely power in prayer! 

        • July 19, 2014 at 3:05 pm
        King
        Participant

        Rocco,

        Congratulations!!!  I am so happy to read your post.  Wishing you a life time of NED.

        (I have been NED at Stage IV for almost 6 years now.  Finally on the 6 month scan schedule)

        This is proof that there are Stage IV's out there….living their life.  I am grateful for this board and all the wonderful people I have met and that have supported me on my journey.

        Enjoy the New England summer….Hey, what is going on with those Sox? 🙁

        Stay Strong

        King

        Stage IV 7/05 Liver mets

        • July 19, 2014 at 3:05 pm
        King
        Participant

        Rocco,

        Congratulations!!!  I am so happy to read your post.  Wishing you a life time of NED.

        (I have been NED at Stage IV for almost 6 years now.  Finally on the 6 month scan schedule)

        This is proof that there are Stage IV's out there….living their life.  I am grateful for this board and all the wonderful people I have met and that have supported me on my journey.

        Enjoy the New England summer….Hey, what is going on with those Sox? 🙁

        Stay Strong

        King

        Stage IV 7/05 Liver mets

        • July 19, 2014 at 3:05 pm
        King
        Participant

        Rocco,

        Congratulations!!!  I am so happy to read your post.  Wishing you a life time of NED.

        (I have been NED at Stage IV for almost 6 years now.  Finally on the 6 month scan schedule)

        This is proof that there are Stage IV's out there….living their life.  I am grateful for this board and all the wonderful people I have met and that have supported me on my journey.

        Enjoy the New England summer….Hey, what is going on with those Sox? 🙁

        Stay Strong

        King

        Stage IV 7/05 Liver mets

      • July 19, 2014 at 12:13 pm
      Happy_girl
      Participant

      Very happy for you! God is good and there is definitely power in prayer! 

      • July 19, 2014 at 9:40 pm
      BetterAndBetter
      Participant

      Yay Roco!

      • July 19, 2014 at 9:40 pm
      BetterAndBetter
      Participant

      Yay Roco!

      • July 19, 2014 at 9:40 pm
      BetterAndBetter
      Participant

      Yay Roco!

      • July 20, 2014 at 3:43 am
      JerryfromFauq
      Participant

      Great to hear from you again.  ESPECIALLY with this news!

       

      • July 20, 2014 at 3:43 am
      JerryfromFauq
      Participant

      Great to hear from you again.  ESPECIALLY with this news!

       

      • July 20, 2014 at 3:43 am
      JerryfromFauq
      Participant

      Great to hear from you again.  ESPECIALLY with this news!

       

      • July 20, 2014 at 6:34 pm
      Bubbles
      Participant

      Wonderful news, Roco!  Wonderful testament to ipi as well.  Thanks for sharing!  Celeste

      • July 20, 2014 at 6:34 pm
      Bubbles
      Participant

      Wonderful news, Roco!  Wonderful testament to ipi as well.  Thanks for sharing!  Celeste

      • July 20, 2014 at 6:34 pm
      Bubbles
      Participant

      Wonderful news, Roco!  Wonderful testament to ipi as well.  Thanks for sharing!  Celeste

      • July 21, 2014 at 3:15 am
      Swanee
      Participant

      Rocco,

      Wonderful good news,  thanks for sharing with all of us!  While we're all in the same battle, each journey can be so different than the next, each one so unique, with completely different responses to the many treatments we're offered/tried and so important that we keep posting the details of our journey.  

      Besh wishes for continued good health, living life large and NED status…..keep posting!

      Swanee 

      • July 21, 2014 at 3:15 am
      Swanee
      Participant

      Rocco,

      Wonderful good news,  thanks for sharing with all of us!  While we're all in the same battle, each journey can be so different than the next, each one so unique, with completely different responses to the many treatments we're offered/tried and so important that we keep posting the details of our journey.  

      Besh wishes for continued good health, living life large and NED status…..keep posting!

      Swanee 

      • July 21, 2014 at 3:15 am
      Swanee
      Participant

      Rocco,

      Wonderful good news,  thanks for sharing with all of us!  While we're all in the same battle, each journey can be so different than the next, each one so unique, with completely different responses to the many treatments we're offered/tried and so important that we keep posting the details of our journey.  

      Besh wishes for continued good health, living life large and NED status…..keep posting!

      Swanee 

      • July 28, 2014 at 9:49 pm
      Rebecca and Bob
      Participant

      Great to see, gives everyone hope. Congrats!!!!!

      Rebecca

      • July 28, 2014 at 9:49 pm
      Rebecca and Bob
      Participant

      Great to see, gives everyone hope. Congrats!!!!!

      Rebecca

      • July 28, 2014 at 9:49 pm
      Rebecca and Bob
      Participant

      Great to see, gives everyone hope. Congrats!!!!!

      Rebecca

Viewing 17 reply threads
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