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Stage iv – need treatment advise

Forums General Melanoma Community Stage iv – need treatment advise

  • Post
    CancerSucks
    Participant
      Just found out a family member has stage iv melanoma – mets in lungs, liver, and lymph. We all live in North Carolina and had an initial visit at duke (not very impressed with staff there so far – does anyone have experience? I cant get over how long it takes to schedule anything). They recommend il-2 as first line treatment followed by ippi (or something like that) if il-2 doesn’t work.

      Here’s my question: is that standard treatment? Is it worth getting a second opinion? My understanding is that duke has the best melanoma treatment in nc – wondering if its worth getting an opinion from another oncologist.

      Sorry! This is all still new…

    Viewing 23 reply threads
    • Replies
        Janner
        Participant

          There is no "standard" approach when it comes to stage IV melanoma.  Different facilities have different preferences.  The approach you mention has its merits but is certainly not the "standard" at every institution.  Certain therapies are better than other based on patient age, condition, amount of disease, metastases types and other factors.  Certainly, NC has several good facilities to choose from.  However, it never hurts to get another opinion.  Clinical trials can also be an option and shouldn't be overlooked.

          Best wishes,

          Janner

          Janner
          Participant

            There is no "standard" approach when it comes to stage IV melanoma.  Different facilities have different preferences.  The approach you mention has its merits but is certainly not the "standard" at every institution.  Certain therapies are better than other based on patient age, condition, amount of disease, metastases types and other factors.  Certainly, NC has several good facilities to choose from.  However, it never hurts to get another opinion.  Clinical trials can also be an option and shouldn't be overlooked.

            Best wishes,

            Janner

            Janner
            Participant

              There is no "standard" approach when it comes to stage IV melanoma.  Different facilities have different preferences.  The approach you mention has its merits but is certainly not the "standard" at every institution.  Certain therapies are better than other based on patient age, condition, amount of disease, metastases types and other factors.  Certainly, NC has several good facilities to choose from.  However, it never hurts to get another opinion.  Clinical trials can also be an option and shouldn't be overlooked.

              Best wishes,

              Janner

              michelleg
              Participant

                Another close facility  you might want to contact is UNC-Chapel Hill.  I have attended some of their melanoma conferences and have come away with a good impression of their surgeons and oncologists.  I am not a patient of UNC but would consider going there myself if I ever need another opinion.

                Best of luck!

                Michelle /3B

                  michelleg
                  Participant

                    Since others have brought up UVA, that is where I go.  I see Dr Slingluff and have been very pleased with him and his staff.  I am blessed to be celebrating my 3 year "cancerversary" next month and NED!

                    Michelle 3B

                    michelleg
                    Participant

                      Since others have brought up UVA, that is where I go.  I see Dr Slingluff and have been very pleased with him and his staff.  I am blessed to be celebrating my 3 year "cancerversary" next month and NED!

                      Michelle 3B

                      michelleg
                      Participant

                        Since others have brought up UVA, that is where I go.  I see Dr Slingluff and have been very pleased with him and his staff.  I am blessed to be celebrating my 3 year "cancerversary" next month and NED!

                        Michelle 3B

                      michelleg
                      Participant

                        Another close facility  you might want to contact is UNC-Chapel Hill.  I have attended some of their melanoma conferences and have come away with a good impression of their surgeons and oncologists.  I am not a patient of UNC but would consider going there myself if I ever need another opinion.

                        Best of luck!

                        Michelle /3B

                        michelleg
                        Participant

                          Another close facility  you might want to contact is UNC-Chapel Hill.  I have attended some of their melanoma conferences and have come away with a good impression of their surgeons and oncologists.  I am not a patient of UNC but would consider going there myself if I ever need another opinion.

                          Best of luck!

                          Michelle /3B

                          hbecker
                          Participant

                            I think second and even third opinions can be valuable, particularly if you don't understand everything or are not sure you are getting the best advice. If you aren't too far from Charlottesville it might be worth going to see someone at UVa. They have a large melanoma team, and Craig Slingluff is doing some interesting research.

                            hbecker
                            Participant

                              I think second and even third opinions can be valuable, particularly if you don't understand everything or are not sure you are getting the best advice. If you aren't too far from Charlottesville it might be worth going to see someone at UVa. They have a large melanoma team, and Craig Slingluff is doing some interesting research.

                              hbecker
                              Participant

                                I think second and even third opinions can be valuable, particularly if you don't understand everything or are not sure you are getting the best advice. If you aren't too far from Charlottesville it might be worth going to see someone at UVa. They have a large melanoma team, and Craig Slingluff is doing some interesting research.

                                kpcollins31
                                Participant

                                  I am in North Carolina as well and am seeing Dr. John Stewart at Wake Forest Baptist Health (Winston-Salem). He is a melanoma specialist and I am very happy with him. I have also heard that Dr. Asim Amin at Blumenthal Cancer Center is excellent (Charlotte).

                                  Kevin

                                    

                                  kpcollins31
                                  Participant

                                    I am in North Carolina as well and am seeing Dr. John Stewart at Wake Forest Baptist Health (Winston-Salem). He is a melanoma specialist and I am very happy with him. I have also heard that Dr. Asim Amin at Blumenthal Cancer Center is excellent (Charlotte).

                                    Kevin

                                      

                                    kpcollins31
                                    Participant

                                      I am in North Carolina as well and am seeing Dr. John Stewart at Wake Forest Baptist Health (Winston-Salem). He is a melanoma specialist and I am very happy with him. I have also heard that Dr. Asim Amin at Blumenthal Cancer Center is excellent (Charlotte).

                                      Kevin

                                        

                                      JGreen
                                      Participant

                                        I have been battling stage IV acral lentiginous melanoma since April 2010, with my primary treatment at Duke. I can understand how you feel with the initial visit but I can assure you, they will do EVERYTHING they can. I know you wrote as a family member and your feelngs are justifiable, but please, please…listen to what your family member wants to do and support their decisions in the treatment(s) they choose. They will need your help and support without adding more stress(I don't want to come across hateful, but our caretakers/family members need to understand the dire importance of it). I pray the Lord blesses and keeps you, giving you all peace on the hard journey ahead.

                                        JGreen
                                        Participant

                                          I have been battling stage IV acral lentiginous melanoma since April 2010, with my primary treatment at Duke. I can understand how you feel with the initial visit but I can assure you, they will do EVERYTHING they can. I know you wrote as a family member and your feelngs are justifiable, but please, please…listen to what your family member wants to do and support their decisions in the treatment(s) they choose. They will need your help and support without adding more stress(I don't want to come across hateful, but our caretakers/family members need to understand the dire importance of it). I pray the Lord blesses and keeps you, giving you all peace on the hard journey ahead.

                                          JGreen
                                          Participant

                                            I have been battling stage IV acral lentiginous melanoma since April 2010, with my primary treatment at Duke. I can understand how you feel with the initial visit but I can assure you, they will do EVERYTHING they can. I know you wrote as a family member and your feelngs are justifiable, but please, please…listen to what your family member wants to do and support their decisions in the treatment(s) they choose. They will need your help and support without adding more stress(I don't want to come across hateful, but our caretakers/family members need to understand the dire importance of it). I pray the Lord blesses and keeps you, giving you all peace on the hard journey ahead.

                                            JGreen
                                            Participant

                                              I have been battling stage IV acral lentiginous melanoma since April 2010, with my primary treatment at Duke. I can understand how you feel with the initial visit but I can assure you, they will do EVERYTHING they can. I know you wrote as a family member and your feelings are justifiable, but please, please…listen to what your family member wants to do and support their decisions in the treatment(s) they choose. They will need your help and support without adding more stress(I don't want to come across hateful, but our caretakers/family members need to understand the dire importance of it). I pray the Lord blesses and keeps you, giving you all peace on the hard journey ahead.

                                              JGreen
                                              Participant

                                                I have been battling stage IV acral lentiginous melanoma since April 2010, with my primary treatment at Duke. I can understand how you feel with the initial visit but I can assure you, they will do EVERYTHING they can. I know you wrote as a family member and your feelings are justifiable, but please, please…listen to what your family member wants to do and support their decisions in the treatment(s) they choose. They will need your help and support without adding more stress(I don't want to come across hateful, but our caretakers/family members need to understand the dire importance of it). I pray the Lord blesses and keeps you, giving you all peace on the hard journey ahead.

                                                JGreen
                                                Participant

                                                  I have been battling stage IV acral lentiginous melanoma since April 2010, with my primary treatment at Duke. I can understand how you feel with the initial visit but I can assure you, they will do EVERYTHING they can. I know you wrote as a family member and your feelings are justifiable, but please, please…listen to what your family member wants to do and support their decisions in the treatment(s) they choose. They will need your help and support without adding more stress(I don't want to come across hateful, but our caretakers/family members need to understand the dire importance of it). I pray the Lord blesses and keeps you, giving you all peace on the hard journey ahead.

                                                  BrianP
                                                  Participant

                                                    I've had treatments and consults at Duke over the last couple years.  I've had surgery performed by Dr. Doug Tyler on two occasions.  He specializes in Melanoma surgeries and is outstanding.  If you do end up needing surgery you would have hard time finding anyone better and more respected than he is.  I've also consulted a Melanoma oncologist there as well and I was not impressed.  Momma always said if you can't say anything nice then don't say anything at all but if you want specifics feel free to message me and I'll give you more detalis.  In some surveys Duke is ranked as a top 10 cancer treatment hospital in the country but that is an overall rating and not specifically addressing melanoma treatment.  The facility is awesome.  I have heard good things about UNC and I remember hearing that they seem to take a little more agressive approach to treatment but that info was purely through the grapevine and I have no evidence or experience to support that statement.  I also would second the Dr. Slingluff at UVA recommendation.  I have an appointment to see them next week.  So far I have been very impressed with everyone I dealt with over the phone.

                                                    Good luck.

                                                    Brian

                                                    BrianP
                                                    Participant

                                                      I've had treatments and consults at Duke over the last couple years.  I've had surgery performed by Dr. Doug Tyler on two occasions.  He specializes in Melanoma surgeries and is outstanding.  If you do end up needing surgery you would have hard time finding anyone better and more respected than he is.  I've also consulted a Melanoma oncologist there as well and I was not impressed.  Momma always said if you can't say anything nice then don't say anything at all but if you want specifics feel free to message me and I'll give you more detalis.  In some surveys Duke is ranked as a top 10 cancer treatment hospital in the country but that is an overall rating and not specifically addressing melanoma treatment.  The facility is awesome.  I have heard good things about UNC and I remember hearing that they seem to take a little more agressive approach to treatment but that info was purely through the grapevine and I have no evidence or experience to support that statement.  I also would second the Dr. Slingluff at UVA recommendation.  I have an appointment to see them next week.  So far I have been very impressed with everyone I dealt with over the phone.

                                                      Good luck.

                                                      Brian

                                                      BrianP
                                                      Participant

                                                        I've had treatments and consults at Duke over the last couple years.  I've had surgery performed by Dr. Doug Tyler on two occasions.  He specializes in Melanoma surgeries and is outstanding.  If you do end up needing surgery you would have hard time finding anyone better and more respected than he is.  I've also consulted a Melanoma oncologist there as well and I was not impressed.  Momma always said if you can't say anything nice then don't say anything at all but if you want specifics feel free to message me and I'll give you more detalis.  In some surveys Duke is ranked as a top 10 cancer treatment hospital in the country but that is an overall rating and not specifically addressing melanoma treatment.  The facility is awesome.  I have heard good things about UNC and I remember hearing that they seem to take a little more agressive approach to treatment but that info was purely through the grapevine and I have no evidence or experience to support that statement.  I also would second the Dr. Slingluff at UVA recommendation.  I have an appointment to see them next week.  So far I have been very impressed with everyone I dealt with over the phone.

                                                        Good luck.

                                                        Brian

                                                        CancerSucks
                                                        Participant
                                                          Wow… Thank you so much for the feedback!!!
                                                          CancerSucks
                                                          Participant
                                                            Wow… Thank you so much for the feedback!!!
                                                            CancerSucks
                                                            Participant
                                                              Wow… Thank you so much for the feedback!!!
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