The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Stage IV NED

Forums General Melanoma Community Stage IV NED

  • This topic is empty.
  • Post
    Brendan
    Participant
      Hi Everyone,

      I signed up in September to thank Brenda (Brenda-you and Kevin continue to inspire me and others!), but this is my first post about myself.

      I have been stage IV since Sep 2011 (more details on my profile). I had a craniotomy in November to remove a brain met and just received the good news that I am still NED…MRI and CT came back clean.

      I have visited this site often and would like to thank everyone for their contibutions and honesty. I always say to myself, “We are fighting cancer-it’s not supposed to be easy,” and this website often helps in the fight.

      To the people out there who are new here I would like to offer some unsolicited advice that has helped me:
      1-Go to an oncologist who specializes in melanoma.
      2-Go to an oncologist who specializes in melanoma.
      3-Reread 1 and 2.
      4-Be careful with this website. I have learned to use it for inspiration. It has helped me through some tough days, but some days the scary stories make things worse (just my opinion-I realize we are all doing what we can and the scary stories are inevitable).
      5-Check out the posts of CharlieS. His story (and his grin!!) will make you smile.

      Good luck and God bless.
      Brendan

    • You must be logged in to reply to this topic.
    About the MRF Patient Forum

    The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

    The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

    Popular Topics