› Forums › General Melanoma Community › Stage II and III melanoma study
- This topic has 18 replies, 4 voices, and was last updated 7 years, 3 months ago by
Joycem.
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- December 19, 2016 at 9:53 pm
Dear MPIP Community:
Cardinal Health is conducting a study in melanoma and they'd like to reach out to you for help. Please see the message below to see if you qualify and learn more about the research study:
Do you have Stage II or III melanoma? Was your melanoma surgically removed? Are you currently employed? We want to hear from you!
Cardinal Health is currently conducting a Melanoma Study. The purpose of the study is to better understand the impact of melanoma on a patient’s work-life balance. They will collect information on how melanoma may affect your ability to work, your use of health care services such as doctor’s offices or the emergency room, and how you may feel on a day-to-day basis.
If you agree to participate, you will complete an online survey about the topics listed above. You will be asked to complete the same survey 5 times (once every 3 months). You will be notified by email 3 months following the prior survey and will have up to 7 days to complete each survey. Each survey will take approximately 30 minutes to complete. You will receive $50 for each of the surveys you complete and then an additional $50 bonus once you complete the 5th and final survey. In total, if you complete all 5 surveys you will be compensated $300 for your participation over the course of the project.
Please click HERE see if you qualify.
Thank you for your consideration and Happy Holidays to you and your families,
Shelby – MRF
- Replies
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- December 19, 2016 at 11:20 pm
Hi Shelby, the disclosure above fails to talk about the fact that Cardinal Health is being paid to do this study for some unknown pharmaceutical company. It also doesn't tell us that this is for comparision of patients that have taken either Interferon, peg interferon or ipilimumab. Now, I am sure that the goal of the study is probably a good one, the lack of disclosure about the questionaire is questionable!!!
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- December 19, 2016 at 11:20 pm
Hi Shelby, the disclosure above fails to talk about the fact that Cardinal Health is being paid to do this study for some unknown pharmaceutical company. It also doesn't tell us that this is for comparision of patients that have taken either Interferon, peg interferon or ipilimumab. Now, I am sure that the goal of the study is probably a good one, the lack of disclosure about the questionaire is questionable!!!
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- December 20, 2016 at 3:20 pm
Hi jsnew,
I have passed your feedback along to Cardinal Health and will email you when I get a response. I appreciate your feedback.
As a bit of background on study and interview participation opportunities, a few years ago we offered the MPIP community two options: 1) we allow the organizations to post opportunities themselves, leaving the MRF out of it, or 2) only the MRF will post opportunities that we have already spoken to the research organizations about and vetted ourselves. The MPIP community voted unanimously that it would be better if these opportunities came from the MRF – that way patients and caregivers would know they are legitimate.
I agree that the surveys should not appear to be questionable. I will let you know as soon as I hear back from our contacts at Cardinal Health. Thanks again!
Shelby – MRF
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- December 20, 2016 at 3:20 pm
Hi jsnew,
I have passed your feedback along to Cardinal Health and will email you when I get a response. I appreciate your feedback.
As a bit of background on study and interview participation opportunities, a few years ago we offered the MPIP community two options: 1) we allow the organizations to post opportunities themselves, leaving the MRF out of it, or 2) only the MRF will post opportunities that we have already spoken to the research organizations about and vetted ourselves. The MPIP community voted unanimously that it would be better if these opportunities came from the MRF – that way patients and caregivers would know they are legitimate.
I agree that the surveys should not appear to be questionable. I will let you know as soon as I hear back from our contacts at Cardinal Health. Thanks again!
Shelby – MRF
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- December 20, 2016 at 3:20 pm
Hi jsnew,
I have passed your feedback along to Cardinal Health and will email you when I get a response. I appreciate your feedback.
As a bit of background on study and interview participation opportunities, a few years ago we offered the MPIP community two options: 1) we allow the organizations to post opportunities themselves, leaving the MRF out of it, or 2) only the MRF will post opportunities that we have already spoken to the research organizations about and vetted ourselves. The MPIP community voted unanimously that it would be better if these opportunities came from the MRF – that way patients and caregivers would know they are legitimate.
I agree that the surveys should not appear to be questionable. I will let you know as soon as I hear back from our contacts at Cardinal Health. Thanks again!
Shelby – MRF
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- December 20, 2016 at 3:14 pm
Hi Ed,
I appreciate your note. I'll give them that feedback. I will say, however, that all of the study and interview opportunities that we post on MPIP are also funded by an unknown (unknown to us as well) pharmaceutical company, so this is not uncommon. Once I hear back from the folks at Cardinal Health, I'll let you know if they have any specific response to your feedback.
Thanks again for your note and feedback.
Shelby – MRF
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- December 20, 2016 at 5:14 pm
Dear MPIP Community:
I have just received an update from our contacts at Cardinal Health. They are very apologetic for the confusion. There was a hiccup with the technology and users should have be directed to a page to input contact information. This issue has now been fixed and will not continue to happen.
Unfortunately, there were 6 more respondents who filled in the survey and were not able to provide their contact information for the payment. If you filled out the survey and were not directed to input any contact info, please contact Cardinal Health directly at [email protected] so that they may collect your contact information and mail out your payment.
I apologize for the inconvenience and as always, we truly appreciate your willingness to share information and participate in research opportunities.
Please contact me directly at [email protected] if you have additional questions or concerns.
Best,
Shelby – MRF
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- December 20, 2016 at 5:14 pm
Dear MPIP Community:
I have just received an update from our contacts at Cardinal Health. They are very apologetic for the confusion. There was a hiccup with the technology and users should have be directed to a page to input contact information. This issue has now been fixed and will not continue to happen.
Unfortunately, there were 6 more respondents who filled in the survey and were not able to provide their contact information for the payment. If you filled out the survey and were not directed to input any contact info, please contact Cardinal Health directly at [email protected] so that they may collect your contact information and mail out your payment.
I apologize for the inconvenience and as always, we truly appreciate your willingness to share information and participate in research opportunities.
Please contact me directly at [email protected] if you have additional questions or concerns.
Best,
Shelby – MRF
-
- December 20, 2016 at 5:14 pm
Dear MPIP Community:
I have just received an update from our contacts at Cardinal Health. They are very apologetic for the confusion. There was a hiccup with the technology and users should have be directed to a page to input contact information. This issue has now been fixed and will not continue to happen.
Unfortunately, there were 6 more respondents who filled in the survey and were not able to provide their contact information for the payment. If you filled out the survey and were not directed to input any contact info, please contact Cardinal Health directly at [email protected] so that they may collect your contact information and mail out your payment.
I apologize for the inconvenience and as always, we truly appreciate your willingness to share information and participate in research opportunities.
Please contact me directly at [email protected] if you have additional questions or concerns.
Best,
Shelby – MRF
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- December 20, 2016 at 3:14 pm
Hi Ed,
I appreciate your note. I'll give them that feedback. I will say, however, that all of the study and interview opportunities that we post on MPIP are also funded by an unknown (unknown to us as well) pharmaceutical company, so this is not uncommon. Once I hear back from the folks at Cardinal Health, I'll let you know if they have any specific response to your feedback.
Thanks again for your note and feedback.
Shelby – MRF
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- December 20, 2016 at 3:14 pm
Hi Ed,
I appreciate your note. I'll give them that feedback. I will say, however, that all of the study and interview opportunities that we post on MPIP are also funded by an unknown (unknown to us as well) pharmaceutical company, so this is not uncommon. Once I hear back from the folks at Cardinal Health, I'll let you know if they have any specific response to your feedback.
Thanks again for your note and feedback.
Shelby – MRF
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- December 19, 2016 at 11:20 pm
Hi Shelby, the disclosure above fails to talk about the fact that Cardinal Health is being paid to do this study for some unknown pharmaceutical company. It also doesn't tell us that this is for comparision of patients that have taken either Interferon, peg interferon or ipilimumab. Now, I am sure that the goal of the study is probably a good one, the lack of disclosure about the questionaire is questionable!!!
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