› Forums › General Melanoma Community › Some questions
- This topic has 15 replies, 5 voices, and was last updated 11 years, 2 months ago by
MikeChris.
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- January 23, 2012 at 10:31 pm
Just had a chest x -ray which came out clear but while waiting for the results my brain started going into overdrive. Is there a place where I can find the survival rates of people that have nodular melanoma only? If my lesion started as a open ulcer and then closed up could this be construed as an ulcerated lesion? The biopsy results said that it wasn't ulcerated. How do they determine an ulcerated lesion? My doctors secretary said it was done microscopically.
Just had a chest x -ray which came out clear but while waiting for the results my brain started going into overdrive. Is there a place where I can find the survival rates of people that have nodular melanoma only? If my lesion started as a open ulcer and then closed up could this be construed as an ulcerated lesion? The biopsy results said that it wasn't ulcerated. How do they determine an ulcerated lesion? My doctors secretary said it was done microscopically. ( I been trying to connect with my doctor but we're playing phone tag ) Can anyone point me to a website for a diet for this disease?
My SNB came back clear in May of 2011 has anyone had the disease progress to other parts of the body with a clear SNB? Just give me the truth and I'll deal with it.
Thanks in advance
Gtown
Nodular Melanoma 1.9 mm on shoulder diagnosed 4/ 2011 Taken out at U of P hospital 5/2011
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- January 23, 2012 at 11:03 pm
Ulceration has to be determined by the pathologist. They look to see whether the epidermis is in tact at a microscopic level. Ulcerated lesions may have open sores, but that doesn't mean any lesion with a sore was ulcerated. The pathology report has to tell you, not just plain observation.
There are not really separate statistics for nodular melanoma. Survival stats are basically the same for each type of melanoma once diagnosed. Nodular melanoma tends to grow faster at the start and is often diagnosed later than other types. But that doesn't mean it has a prognosis that is different from the other types of melanoma that are the same depth.
The SNB is a good indication of the disease state at that time. It is a diagnostic and staging tool only, however, and is not a guarantee that you won't have future spread. However, having a negative SNB is where you want to be and does give you better odds.
As for diet, no diet has been proven to help prevent a melanoma recurrence. However, many here choose to change their diet as a way to feel more control over their health. If you do a search here, you'll find many postings on the subject in the past.
Best wishes,
Janner
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- January 23, 2012 at 11:03 pm
Ulceration has to be determined by the pathologist. They look to see whether the epidermis is in tact at a microscopic level. Ulcerated lesions may have open sores, but that doesn't mean any lesion with a sore was ulcerated. The pathology report has to tell you, not just plain observation.
There are not really separate statistics for nodular melanoma. Survival stats are basically the same for each type of melanoma once diagnosed. Nodular melanoma tends to grow faster at the start and is often diagnosed later than other types. But that doesn't mean it has a prognosis that is different from the other types of melanoma that are the same depth.
The SNB is a good indication of the disease state at that time. It is a diagnostic and staging tool only, however, and is not a guarantee that you won't have future spread. However, having a negative SNB is where you want to be and does give you better odds.
As for diet, no diet has been proven to help prevent a melanoma recurrence. However, many here choose to change their diet as a way to feel more control over their health. If you do a search here, you'll find many postings on the subject in the past.
Best wishes,
Janner
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- January 23, 2012 at 11:03 pm
Ulceration has to be determined by the pathologist. They look to see whether the epidermis is in tact at a microscopic level. Ulcerated lesions may have open sores, but that doesn't mean any lesion with a sore was ulcerated. The pathology report has to tell you, not just plain observation.
There are not really separate statistics for nodular melanoma. Survival stats are basically the same for each type of melanoma once diagnosed. Nodular melanoma tends to grow faster at the start and is often diagnosed later than other types. But that doesn't mean it has a prognosis that is different from the other types of melanoma that are the same depth.
The SNB is a good indication of the disease state at that time. It is a diagnostic and staging tool only, however, and is not a guarantee that you won't have future spread. However, having a negative SNB is where you want to be and does give you better odds.
As for diet, no diet has been proven to help prevent a melanoma recurrence. However, many here choose to change their diet as a way to feel more control over their health. If you do a search here, you'll find many postings on the subject in the past.
Best wishes,
Janner
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- January 24, 2012 at 1:29 am
My husband's nodular melanoma on his left forearm was diagnosed in April, 2008 and was 3.4 mm Breslow depth. He had the wide excision and SNB which came back clear so had no further treatment at that time. 18 months later they found a 5cm lymph node under arm which was melanoma and it had extra capsular extension. He had 5 high doses radiation and 32 nodes removed. Then he did a year leukine treatments and has been NED since. Other than having lymphedema in that arm he is just fine. He will be going for another check-up with his oncologist at the end of March but was told no more scans unless he has symptoms that would show up.
Each person is different so you just cannot go by anyones progression. At first we were scared to death but as time has gone by it has gotten easier. Why the SLB came back negative at first and then showed up in that area 18 months later is anyones guess and one we just dealt with. Hopefully this is the end of his journey with melanoma. Mainly now he is just vigilant about checking his skin and lymph node areas. Try not to worry but it is much easier to say than do. If you have any questions feel free to e-mail me at [email protected]
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- January 24, 2012 at 1:29 am
My husband's nodular melanoma on his left forearm was diagnosed in April, 2008 and was 3.4 mm Breslow depth. He had the wide excision and SNB which came back clear so had no further treatment at that time. 18 months later they found a 5cm lymph node under arm which was melanoma and it had extra capsular extension. He had 5 high doses radiation and 32 nodes removed. Then he did a year leukine treatments and has been NED since. Other than having lymphedema in that arm he is just fine. He will be going for another check-up with his oncologist at the end of March but was told no more scans unless he has symptoms that would show up.
Each person is different so you just cannot go by anyones progression. At first we were scared to death but as time has gone by it has gotten easier. Why the SLB came back negative at first and then showed up in that area 18 months later is anyones guess and one we just dealt with. Hopefully this is the end of his journey with melanoma. Mainly now he is just vigilant about checking his skin and lymph node areas. Try not to worry but it is much easier to say than do. If you have any questions feel free to e-mail me at [email protected]
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- January 24, 2012 at 1:29 am
My husband's nodular melanoma on his left forearm was diagnosed in April, 2008 and was 3.4 mm Breslow depth. He had the wide excision and SNB which came back clear so had no further treatment at that time. 18 months later they found a 5cm lymph node under arm which was melanoma and it had extra capsular extension. He had 5 high doses radiation and 32 nodes removed. Then he did a year leukine treatments and has been NED since. Other than having lymphedema in that arm he is just fine. He will be going for another check-up with his oncologist at the end of March but was told no more scans unless he has symptoms that would show up.
Each person is different so you just cannot go by anyones progression. At first we were scared to death but as time has gone by it has gotten easier. Why the SLB came back negative at first and then showed up in that area 18 months later is anyones guess and one we just dealt with. Hopefully this is the end of his journey with melanoma. Mainly now he is just vigilant about checking his skin and lymph node areas. Try not to worry but it is much easier to say than do. If you have any questions feel free to e-mail me at [email protected]
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- January 24, 2012 at 3:57 am
Thank you both for responding, but isn't there a statistic concerning negative SNB and the recurrance of melanoma at a later time? If there isn't that info available, it should be. It would just be a matter of collecting data. Am I missing something?
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- January 24, 2012 at 2:06 pm
The SNB tells you a picture at that particular time. The cells might not have gotten to the node yet. They don't all travel at the same time! My primary was in 79. REcurrances started in 06 and didn't get to the first node till 10'! Those nodes were not in the same basin! Melanoma does what it wants and relying on status just give the entire picture.
8% of melanoma goes through the blood line and doesn't touch the nodes.
Enjoy each day
Linda
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- January 24, 2012 at 2:06 pm
The SNB tells you a picture at that particular time. The cells might not have gotten to the node yet. They don't all travel at the same time! My primary was in 79. REcurrances started in 06 and didn't get to the first node till 10'! Those nodes were not in the same basin! Melanoma does what it wants and relying on status just give the entire picture.
8% of melanoma goes through the blood line and doesn't touch the nodes.
Enjoy each day
Linda
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- January 24, 2012 at 2:06 pm
The SNB tells you a picture at that particular time. The cells might not have gotten to the node yet. They don't all travel at the same time! My primary was in 79. REcurrances started in 06 and didn't get to the first node till 10'! Those nodes were not in the same basin! Melanoma does what it wants and relying on status just give the entire picture.
8% of melanoma goes through the blood line and doesn't touch the nodes.
Enjoy each day
Linda
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- January 24, 2012 at 3:57 am
Thank you both for responding, but isn't there a statistic concerning negative SNB and the recurrance of melanoma at a later time? If there isn't that info available, it should be. It would just be a matter of collecting data. Am I missing something?
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- January 24, 2012 at 3:57 am
Thank you both for responding, but isn't there a statistic concerning negative SNB and the recurrance of melanoma at a later time? If there isn't that info available, it should be. It would just be a matter of collecting data. Am I missing something?
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Tagged: cutaneous melanoma
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