› Forums › General Melanoma Community › Some perspective/advice – Stage 1b for my husband, worried about recurrence
- This topic has 9 replies, 3 voices, and was last updated 10 years, 9 months ago by
JulieW.
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- March 30, 2015 at 3:20 pm
Hi all,
Just looking for abit of advice/reassurance as my husband is about 1.5 years from his diagnosis of stage 1b of superficial spreading melanoma, it was 1.33 breslow deep. p2ta
I have obviousley been worried throughout but for some reason i am just so worked up and obsessing about it at the moment, scared beyond belief that it will come back for my husband. My husband is very very moley with big moles and seems to be new ones appearing all the time, little ones, just feel really scared that i am going to miss something or his dr will miss something. We are in the UK so i worry the treatment isn't as thorough as it might be in the U.S and again that it will be missed, particurley when there are so many moles to look at.
I am finding myself constantly searching/reading re stage 1b melanoma and making me incredibly anxious and depressed. We have a young 3 year old autistic son and i am 5 months pregnant and scared gonna lose my husband and what will i do and that it is a ticking time bomb :'(
How likely is it to come back?? Is it more likely to show in skin or lymph nodes? And any other stage 1bers that have gone on to be ok, i worry as he has so many moles it is inevitable it will come back :(?
Sorry for the long post and rant. Just really to talk to people who understand, i know there are people a lot worse off and very grateful for where we are now but still can't stop myself from worrying about it.
Thank you
Catherine
- Replies
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- March 30, 2015 at 5:14 pm
Hi
I realize how scared you are. I was to. I was dx in 2005 stage 1. Then 2009, my WLE on my foot caused a transit melanoma tumor to pop up in my thigh. Multiple recurences in my thigh thru 2011. Lots of scars!
Then 9/2011, cancer moved into both my lungs. DX stage 4. At stage 4, I also had metastisis in my brain
Entered a trial in 12/2011. I am now NED.
There is NO way to predict what will happen with your husnand. The one thing that I have learned dealing with melanoma for 10 yrs. is that every melanoma cancer patient is different. You will drive yourself crazy dealing with" what ifs".
My suggestions is to live each day as your last and keep vigilant looking for recurrences.
Good Luck
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- March 30, 2015 at 5:14 pm
Hi
I realize how scared you are. I was to. I was dx in 2005 stage 1. Then 2009, my WLE on my foot caused a transit melanoma tumor to pop up in my thigh. Multiple recurences in my thigh thru 2011. Lots of scars!
Then 9/2011, cancer moved into both my lungs. DX stage 4. At stage 4, I also had metastisis in my brain
Entered a trial in 12/2011. I am now NED.
There is NO way to predict what will happen with your husnand. The one thing that I have learned dealing with melanoma for 10 yrs. is that every melanoma cancer patient is different. You will drive yourself crazy dealing with" what ifs".
My suggestions is to live each day as your last and keep vigilant looking for recurrences.
Good Luck
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- March 30, 2015 at 5:14 pm
Hi
I realize how scared you are. I was to. I was dx in 2005 stage 1. Then 2009, my WLE on my foot caused a transit melanoma tumor to pop up in my thigh. Multiple recurences in my thigh thru 2011. Lots of scars!
Then 9/2011, cancer moved into both my lungs. DX stage 4. At stage 4, I also had metastisis in my brain
Entered a trial in 12/2011. I am now NED.
There is NO way to predict what will happen with your husnand. The one thing that I have learned dealing with melanoma for 10 yrs. is that every melanoma cancer patient is different. You will drive yourself crazy dealing with" what ifs".
My suggestions is to live each day as your last and keep vigilant looking for recurrences.
Good Luck
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- March 30, 2015 at 6:01 pm
Three melanoma primaries, two stage 1b. Originally diagnosed 23 years ago. Still here, still stage 1b.
Some recurrences are on the skin but more likely you'd see an enlarged lymph node. People who have dysplastic Nevus syndrome do have a harder time watching for new primaries – I always suggest taking some type of photographs to help monitor everything.
Pre-worry never helped anyone. I suspect your pregnancy is fueling the additional anxiety. But even a recurrence is NOT a death sentence. So don't put your husband in the grave while he is still here and healthy and kicking now! If there were ever a time to have melanoma, the time is now with new treatments and research either here or on the near horizon. Deal with melanoma when or IF it comes back. Stay away from the Internet because it will add not alleviate anxiety or tell you anything about your husband's specific outcomes. Stats reflect historical data and don't reflect new and promising treatments. He's melanoma free now so embrace that and live life NOW!
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- March 30, 2015 at 6:01 pm
Three melanoma primaries, two stage 1b. Originally diagnosed 23 years ago. Still here, still stage 1b.
Some recurrences are on the skin but more likely you'd see an enlarged lymph node. People who have dysplastic Nevus syndrome do have a harder time watching for new primaries – I always suggest taking some type of photographs to help monitor everything.
Pre-worry never helped anyone. I suspect your pregnancy is fueling the additional anxiety. But even a recurrence is NOT a death sentence. So don't put your husband in the grave while he is still here and healthy and kicking now! If there were ever a time to have melanoma, the time is now with new treatments and research either here or on the near horizon. Deal with melanoma when or IF it comes back. Stay away from the Internet because it will add not alleviate anxiety or tell you anything about your husband's specific outcomes. Stats reflect historical data and don't reflect new and promising treatments. He's melanoma free now so embrace that and live life NOW!
-
- March 30, 2015 at 6:01 pm
Three melanoma primaries, two stage 1b. Originally diagnosed 23 years ago. Still here, still stage 1b.
Some recurrences are on the skin but more likely you'd see an enlarged lymph node. People who have dysplastic Nevus syndrome do have a harder time watching for new primaries – I always suggest taking some type of photographs to help monitor everything.
Pre-worry never helped anyone. I suspect your pregnancy is fueling the additional anxiety. But even a recurrence is NOT a death sentence. So don't put your husband in the grave while he is still here and healthy and kicking now! If there were ever a time to have melanoma, the time is now with new treatments and research either here or on the near horizon. Deal with melanoma when or IF it comes back. Stay away from the Internet because it will add not alleviate anxiety or tell you anything about your husband's specific outcomes. Stats reflect historical data and don't reflect new and promising treatments. He's melanoma free now so embrace that and live life NOW!
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Tagged: cutaneous melanoma
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