Six Months on Zelboraf
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Six Months on Zelboraf

› Forums › General Melanoma Community › Six Months on Zelboraf

  • Post
    • March 12, 2012 at 9:59 pm
    aldakota22
    Participant

    Today I just completed my sixth month on Zelboraf.Drug for me is working as hoped.Have not had a scan of any kind since late last July 2011.Will see doc on the 3/21 and schedule one soon after.Side effects on drug are do able.Hoping to stay on this treatment for a lifetime as progress is being made on managing melanoma as a chronic disease.,Praying for myself and all other fighters out there. Thanks for keeping me in your thoughts….Al

    Today I just completed my sixth month on Zelboraf.Drug for me is working as hoped.Have not had a scan of any kind since late last July 2011.Will see doc on the 3/21 and schedule one soon after.Side effects on drug are do able.Hoping to stay on this treatment for a lifetime as progress is being made on managing melanoma as a chronic disease.,Praying for myself and all other fighters out there. Thanks for keeping me in your thoughts….Al

Viewing 11 reply threads
  • Replies
      • March 12, 2012 at 11:47 pm
      hope4cure1
      Participant

      Al,keep it up!  You're an inspiration to us all 🙂

      Hope

      • March 12, 2012 at 11:47 pm
      hope4cure1
      Participant

      Al,keep it up!  You're an inspiration to us all 🙂

      Hope

      • March 12, 2012 at 11:47 pm
      hope4cure1
      Participant

      Al,keep it up!  You're an inspiration to us all 🙂

      Hope

      • March 12, 2012 at 11:50 pm
      washoegal
      Participant

      Curious, why no scans in so long?  Where were your mets?  I check profile and it wasn't clear?  I am just curious how you know it working if no scans but so happy for you.  I hope it keeps working for a very, very long time.  Also BRAF+

      Mary

      Stage3

        • March 13, 2012 at 12:35 am
        deardad
        Participant

        Hi yes I am curious they haven't scanned you either? My dad is on his 7 month and has been having monthly scans up  until the 6 months mark when they go to 3 monthly scans. Regardless of that, Im glad the drugs are working and I too am hoping that this can be managed as chronic disease. I have to remain cautious because no-one can know what melanoma does in one individual to another and from the beginning we were told that there's a 0!!!! chance that the disease had spread to the blood (even I knew this was a big call considering his histology). 

        Anyway we all hope for the best and need to remain positive especially considering the research of current.

        Nahmi

        • March 13, 2012 at 12:35 am
        deardad
        Participant

        Hi yes I am curious they haven't scanned you either? My dad is on his 7 month and has been having monthly scans up  until the 6 months mark when they go to 3 monthly scans. Regardless of that, Im glad the drugs are working and I too am hoping that this can be managed as chronic disease. I have to remain cautious because no-one can know what melanoma does in one individual to another and from the beginning we were told that there's a 0!!!! chance that the disease had spread to the blood (even I knew this was a big call considering his histology). 

        Anyway we all hope for the best and need to remain positive especially considering the research of current.

        Nahmi

        • March 13, 2012 at 12:35 am
        deardad
        Participant

        Hi yes I am curious they haven't scanned you either? My dad is on his 7 month and has been having monthly scans up  until the 6 months mark when they go to 3 monthly scans. Regardless of that, Im glad the drugs are working and I too am hoping that this can be managed as chronic disease. I have to remain cautious because no-one can know what melanoma does in one individual to another and from the beginning we were told that there's a 0!!!! chance that the disease had spread to the blood (even I knew this was a big call considering his histology). 

        Anyway we all hope for the best and need to remain positive especially considering the research of current.

        Nahmi

        • March 13, 2012 at 12:47 am
        aldakota22
        Participant

        I am not as informed as so many of you are.Do not know when you ask for mets what they are. As for it working it was very obvious as a small growth on the neck.With in a week it shrunk and is no longer felt or visible.Will get the scans as soon as possible.All my lab blood work is always positive with good numbers when I visit oncologist.Will probably be searching for a melanoma specialist soon.Thanks for the good wishes.want the same foe all of us.

        • March 13, 2012 at 4:26 pm
        Linny
        Participant

        "Mets" is short for Metastasis. PETscans and/or CT scans are generally used to check for them. My understanding is that how often you have them depends on the type of treatment you've opted for and how far past the original diagnosis date you are. If your scans are clean it means the melanoma has not spread (metastasized) to other organs.

        Glad to hear your labwork is good!

        • March 13, 2012 at 4:26 pm
        Linny
        Participant

        "Mets" is short for Metastasis. PETscans and/or CT scans are generally used to check for them. My understanding is that how often you have them depends on the type of treatment you've opted for and how far past the original diagnosis date you are. If your scans are clean it means the melanoma has not spread (metastasized) to other organs.

        Glad to hear your labwork is good!

        • March 13, 2012 at 4:26 pm
        Linny
        Participant

        "Mets" is short for Metastasis. PETscans and/or CT scans are generally used to check for them. My understanding is that how often you have them depends on the type of treatment you've opted for and how far past the original diagnosis date you are. If your scans are clean it means the melanoma has not spread (metastasized) to other organs.

        Glad to hear your labwork is good!

        • March 13, 2012 at 12:47 am
        aldakota22
        Participant

        I am not as informed as so many of you are.Do not know when you ask for mets what they are. As for it working it was very obvious as a small growth on the neck.With in a week it shrunk and is no longer felt or visible.Will get the scans as soon as possible.All my lab blood work is always positive with good numbers when I visit oncologist.Will probably be searching for a melanoma specialist soon.Thanks for the good wishes.want the same foe all of us.

        • March 13, 2012 at 12:47 am
        aldakota22
        Participant

        I am not as informed as so many of you are.Do not know when you ask for mets what they are. As for it working it was very obvious as a small growth on the neck.With in a week it shrunk and is no longer felt or visible.Will get the scans as soon as possible.All my lab blood work is always positive with good numbers when I visit oncologist.Will probably be searching for a melanoma specialist soon.Thanks for the good wishes.want the same foe all of us.

      • March 12, 2012 at 11:50 pm
      washoegal
      Participant

      Curious, why no scans in so long?  Where were your mets?  I check profile and it wasn't clear?  I am just curious how you know it working if no scans but so happy for you.  I hope it keeps working for a very, very long time.  Also BRAF+

      Mary

      Stage3

      • March 12, 2012 at 11:50 pm
      washoegal
      Participant

      Curious, why no scans in so long?  Where were your mets?  I check profile and it wasn't clear?  I am just curious how you know it working if no scans but so happy for you.  I hope it keeps working for a very, very long time.  Also BRAF+

      Mary

      Stage3

      • March 13, 2012 at 12:46 am
      Theresa123
      Participant

      You go girl!!  you are an inspiration.  Especially since I might be on Zelboraf soon.  What are the side effects?  I heard warts, of all things.  Does it stop working after a certain time?

      stay in there!

      • March 13, 2012 at 12:46 am
      Theresa123
      Participant

      You go girl!!  you are an inspiration.  Especially since I might be on Zelboraf soon.  What are the side effects?  I heard warts, of all things.  Does it stop working after a certain time?

      stay in there!

      • March 13, 2012 at 12:46 am
      Theresa123
      Participant

      You go girl!!  you are an inspiration.  Especially since I might be on Zelboraf soon.  What are the side effects?  I heard warts, of all things.  Does it stop working after a certain time?

      stay in there!

      • March 13, 2012 at 1:27 pm
      Richard_K
      Participant

      Al

      Great news.  I always like to hear of other people doing well on Zelboraf.  Keep it going.

      Dick

      • March 13, 2012 at 1:27 pm
      Richard_K
      Participant

      Al

      Great news.  I always like to hear of other people doing well on Zelboraf.  Keep it going.

      Dick

      • March 13, 2012 at 1:27 pm
      Richard_K
      Participant

      Al

      Great news.  I always like to hear of other people doing well on Zelboraf.  Keep it going.

      Dick

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