Sinus mucosal

To: greatladywilson…   I'm a 68 year old male being treated at Dana Farber for mm in the maxillary sinus that was diagnosed in May, 2015.  I decided against the radical surgery which up to recently has been often done with, in my opinion reading the research, of qustionable value for long-term duration. Was on Ipi/NIvo for a short time but side effects were too harsh.  After recovery, I switched to Keytruda (Pembrolizumab) in Sept, 2015 and am still on it.  Much clear progress of the Pembro but also clear that it was not enough.  On Jan 2, '16 I began an aggressive 7 week IMRT radiation of the tumor.  Many researcher docs feel that newest research suggests that the combo of Pembro and radiation can be a stimulus for each to do better.  Feel free to ask any specific questions & I'll try to answer.  It may help for you to refer back to all of my previous posts for a fuller history.  Also many others have been dealing with this far longer than I.  Hopefully, they will chime in with their stories too.   Chris Holder

To greatladywilson and chrisholder … it took me a while scrolling through all of the posts to find one related to Mucosal Melanoma. I was diagnosted with sinonasal mm in April 2015. Had successful laproscoptic surgery followed by  6 weeks (30 sessions) of targeted rafiation and released in remission. My 1st followup PET scan after 3 months was clean. My next followup appointment in April will include a visit with a Hemotologist/Chemotherapy specialist. Since I am so knew to all of this, I am glad to find a place to connect with others who share my journey. I have been doing a lot of research in preperation for the next visit in anticipation that the doctors on my cancer team may want me to consider imunotherapy. As we know, this rare cancer does not offer a lot of research information so I would be eager to hear from those with mm and what you are learning and doing about it.

Thanks, GA Peach

To greatladywilson and chrisholder … it took me a while scrolling through all of the posts to find one related to Mucosal Melanoma. I was diagnosted with sinonasal mm in April 2015. Had successful laproscoptic surgery followed by  6 weeks (30 sessions) of targeted rafiation and released in remission. My 1st followup PET scan after 3 months was clean. My next followup appointment in April will include a visit with a Hemotologist/Chemotherapy specialist. Since I am so knew to all of this, I am glad to find a place to connect with others who share my journey. I have been doing a lot of research in preperation for the next visit in anticipation that the doctors on my cancer team may want me to consider imunotherapy. As we know, this rare cancer does not offer a lot of research information so I would be eager to hear from those with mm and what you are learning and doing about it.

Thanks, GA Peach

To greatladywilson and chrisholder … it took me a while scrolling through all of the posts to find one related to Mucosal Melanoma. I was diagnosted with sinonasal mm in April 2015. Had successful laproscoptic surgery followed by  6 weeks (30 sessions) of targeted rafiation and released in remission. My 1st followup PET scan after 3 months was clean. My next followup appointment in April will include a visit with a Hemotologist/Chemotherapy specialist. Since I am so knew to all of this, I am glad to find a place to connect with others who share my journey. I have been doing a lot of research in preperation for the next visit in anticipation that the doctors on my cancer team may want me to consider imunotherapy. As we know, this rare cancer does not offer a lot of research information so I would be eager to hear from those with mm and what you are learning and doing about it.

Thanks, GA Peach

To greatladywilson and chrisholder … it took me a while scrolling through all of the posts to find one related to Mucosal Melanoma. I was diagnosted with sinonasal mm in April 2015. Had successful laproscoptic surgery followed by  6 weeks (30 sessions) of targeted rafiation and released in remission. My 1st followup PET scan after 3 months was clean. My next followup appointment in April will include a visit with a Hemotologist/Chemotherapy specialist. Since I am so knew to all of this, I am glad to find a place to connect with others who share my journey. I have been doing a lot of research in preperation for the next visit in anticipation that the doctors on my cancer team may want me to consider imunotherapy. As we know, this rare cancer does not offer a lot of research information so I would be eager to hear from those with mm and what you are learning and doing about it.

Thanks, GA Peach

To greatladywilson and chrisholder … it took me a while scrolling through all of the posts to find one related to Mucosal Melanoma. I was diagnosted with sinonasal mm in April 2015. Had successful laproscoptic surgery followed by  6 weeks (30 sessions) of targeted rafiation and released in remission. My 1st followup PET scan after 3 months was clean. My next followup appointment in April will include a visit with a Hemotologist/Chemotherapy specialist. Since I am so knew to all of this, I am glad to find a place to connect with others who share my journey. I have been doing a lot of research in preperation for the next visit in anticipation that the doctors on my cancer team may want me to consider imunotherapy. As we know, this rare cancer does not offer a lot of research information so I would be eager to hear from those with mm and what you are learning and doing about it.

Thanks, GA Peach

To greatladywilson and chrisholder … it took me a while scrolling through all of the posts to find one related to Mucosal Melanoma. I was diagnosted with sinonasal mm in April 2015. Had successful laproscoptic surgery followed by  6 weeks (30 sessions) of targeted rafiation and released in remission. My 1st followup PET scan after 3 months was clean. My next followup appointment in April will include a visit with a Hemotologist/Chemotherapy specialist. Since I am so knew to all of this, I am glad to find a place to connect with others who share my journey. I have been doing a lot of research in preperation for the next visit in anticipation that the doctors on my cancer team may want me to consider imunotherapy. As we know, this rare cancer does not offer a lot of research information so I would be eager to hear from those with mm and what you are learning and doing about it.

Thanks, GA Peach

To: greatladywilson…   I'm a 68 year old male being treated at Dana Farber for mm in the maxillary sinus that was diagnosed in May, 2015.  I decided against the radical surgery which up to recently has been often done with, in my opinion reading the research, of qustionable value for long-term duration. Was on Ipi/NIvo for a short time but side effects were too harsh.  After recovery, I switched to Keytruda (Pembrolizumab) in Sept, 2015 and am still on it.  Much clear progress of the Pembro but also clear that it was not enough.  On Jan 2, '16 I began an aggressive 7 week IMRT radiation of the tumor.  Many researcher docs feel that newest research suggests that the combo of Pembro and radiation can be a stimulus for each to do better.  Feel free to ask any specific questions & I'll try to answer.  It may help for you to refer back to all of my previous posts for a fuller history.  Also many others have been dealing with this far longer than I.  Hopefully, they will chime in with their stories too.   Chris Holder

To: greatladywilson…   I'm a 68 year old male being treated at Dana Farber for mm in the maxillary sinus that was diagnosed in May, 2015.  I decided against the radical surgery which up to recently has been often done with, in my opinion reading the research, of qustionable value for long-term duration. Was on Ipi/NIvo for a short time but side effects were too harsh.  After recovery, I switched to Keytruda (Pembrolizumab) in Sept, 2015 and am still on it.  Much clear progress of the Pembro but also clear that it was not enough.  On Jan 2, '16 I began an aggressive 7 week IMRT radiation of the tumor.  Many researcher docs feel that newest research suggests that the combo of Pembro and radiation can be a stimulus for each to do better.  Feel free to ask any specific questions & I'll try to answer.  It may help for you to refer back to all of my previous posts for a fuller history.  Also many others have been dealing with this far longer than I.  Hopefully, they will chime in with their stories too.   Chris Holder