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sinus mucosal Melanoma
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sinus mucosal Melanoma

› Forums › Mucosal Melanoma Community › sinus mucosal Melanoma

  • Post
    • February 21, 2016 at 10:15 pm
    kickinbutt
    Participant

      Hi everyone,

      I was diagnosed with sinus mucosal melanoma in Dec. 2013. My maxillary sinus and near my septum were the primary sites with melonomic spots on my palate and gums.

      I had surgery to remove the cancer–they got clear margins. This was followed up by tomoradiation therapy and ipi. In January of 2015 there was apparently very vague thing that was not really recognized as a problem on the PET scan until Aug and then it grew substantially in my gall bladder. That was removed this last Jan. Because this is so rare and I was on Ipi, I have had 2 different recommendations. 1 was Keytruda or a combimnation of of immunotherapies or, a course of chemo that is tomozilomide based. The is a recommendation from Dr. Bryce at Mayo who did have a very small research paper available. Both surgeries were sucessful and there were clear Margins. Fortunately, there are currently no more mets. However, because of the rapid return and metastisis, I'm wondering about other folks out there who may have some experience with sinus mucosal melanoma.

      Thanks.

      Kickinbutt

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