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Scott’s First Scan After Dasatinib Trial~Indianapolis

Forums Mucosal Melanoma Community Scott’s First Scan After Dasatinib Trial~Indianapolis

  • Post
    lrkg1234
    Participant

      My husband Scott is doing the Dasatinib study here in Indianapolis for Stage IV mucosal melanoma, C-Kit positive. Primary is in the esophagus, inoperaable at this time.  He just had his first scan and I wanted to share the results and see if anyone else has experience with Dasatinib or is involved in a trial.

      He was diagnosed August 7th and took about 5-6 weeks to get opinions and begin any type of treatment.  We don't know if there was any spread during this time while there was no treatment going on. 

      My husband Scott is doing the Dasatinib study here in Indianapolis for Stage IV mucosal melanoma, C-Kit positive. Primary is in the esophagus, inoperaable at this time.  He just had his first scan and I wanted to share the results and see if anyone else has experience with Dasatinib or is involved in a trial.

      He was diagnosed August 7th and took about 5-6 weeks to get opinions and begin any type of treatment.  We don't know if there was any spread during this time while there was no treatment going on. 

      He just had his first 6 week scan and there was a 14% growth in the tumor, but no new spreading.  It's hard to say whether the Dasatinib is working or not, because the baseline scan was about a month old. 

      So, if the cancer had spread 30% while there was no treatment and then only now showed a 14% growth there was some reduction and progress.  It's not great news, but could be worse.  He is sticking with it another 6 weeks to see what happens before moving on to something else. 

      His doctor is Leslie Fecher at IU health.  She was recommended by Dr. Sharfman at Johns Hopkins.  She was his understudy.  She's been great and is a melanoma specialist.  Just wanted to share in case someone else needs a doc and lives in the area.

      We have no idea about spreading rate etc.  Any thoughts??

    Viewing 14 reply threads
    • Replies
        POW
        Participant

          Yes, I understand you quandry… did the tumor grow during the 6 weeks it took to get started on Dasatinib and now it's shrinking? My brother has a similar situation with new brain mets while on Zelboraf. I think all you can do is give it another 6 weeks and stay optimistic.

          POW
          Participant

            Yes, I understand you quandry… did the tumor grow during the 6 weeks it took to get started on Dasatinib and now it's shrinking? My brother has a similar situation with new brain mets while on Zelboraf. I think all you can do is give it another 6 weeks and stay optimistic.

            POW
            Participant

              Yes, I understand you quandry… did the tumor grow during the 6 weeks it took to get started on Dasatinib and now it's shrinking? My brother has a similar situation with new brain mets while on Zelboraf. I think all you can do is give it another 6 weeks and stay optimistic.

                clientcommon
                Participant

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                  clientcommon
                  Participant

                    It is very shocking when i heard from someone about such strong disease and i am thinking that how can spend life with good manner.

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                    clientcommon
                    Participant

                      It is very shocking when i heard from someone about such strong disease and i am thinking that how can spend life with good manner.

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                    jupeter41
                    Participant

                      Feel very sad when read this article and pray to god never anyone face your situation and you will also cure from scuh a disease.

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                      jupeter41
                      Participant

                        Feel very sad when read this article and pray to god never anyone face your situation and you will also cure from scuh a disease.

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                        jupeter41
                        Participant

                          Feel very sad when read this article and pray to god never anyone face your situation and you will also cure from scuh a disease.

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                          clientcommon
                          Participant

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                              tuneseo
                              Participant

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                                tuneseo
                                Participant

                                  In first scan,you will in confuse mind and waiting for the scan result…do not worrry and go through positive way.

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                                  tuneseo
                                  Participant

                                    In first scan,you will in confuse mind and waiting for the scan result…do not worrry and go through positive way.

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                                  clientcommon
                                  Participant

                                    Found something new and amazing its a Great blog with informative article nice n useful information.

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                                    clientcommon
                                    Participant

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                                      merrick12
                                      Participant

                                        Melanoma is a cancer of melanocytes, the pigment-producing cells of the body that give skin its colour. Cutaneous or melanoma skin cancer is the most common form of melanoma. But there are also rarer forms of melanoma that arise from melanocytes located elsewhere, such as in the eye (ocular melanoma) and the mucosal surfaces that line the sinuses, nasal passages, mouth, vagina, anus, and other parts of the body (mucosal melanoma).

                                        <br/>

                                        <a href="http://www.asportinglife.com">sports pictures</a>

                                        merrick12
                                        Participant

                                          Melanoma is a cancer of melanocytes, the pigment-producing cells of the body that give skin its colour. Cutaneous or melanoma skin cancer is the most common form of melanoma. But there are also rarer forms of melanoma that arise from melanocytes located elsewhere, such as in the eye (ocular melanoma) and the mucosal surfaces that line the sinuses, nasal passages, mouth, vagina, anus, and other parts of the body (mucosal melanoma).

                                          <br/>

                                          <a href="http://www.asportinglife.com">sports pictures</a>

                                          merrick12
                                          Participant

                                            Melanoma is a cancer of melanocytes, the pigment-producing cells of the body that give skin its colour. Cutaneous or melanoma skin cancer is the most common form of melanoma. But there are also rarer forms of melanoma that arise from melanocytes located elsewhere, such as in the eye (ocular melanoma) and the mucosal surfaces that line the sinuses, nasal passages, mouth, vagina, anus, and other parts of the body (mucosal melanoma).

                                            <br/>

                                            <a href="http://www.asportinglife.com">sports pictures</a>

                                            Linny
                                            Participant

                                              I saw Dr. Fecher for a second opinion when she was still at University of Pennsylvania. The impression I got from her was that she would fight this cancer with you tooth and nail. You're in good hands with her. The only reason I didn't go to U of Penn was because Hopkins was closer to me. I just about keeled over when she told me she knew the crew at Hopkins who had initially seen me and that she had studied under Dr. Scharfmann.

                                              Linny
                                              Participant

                                                I saw Dr. Fecher for a second opinion when she was still at University of Pennsylvania. The impression I got from her was that she would fight this cancer with you tooth and nail. You're in good hands with her. The only reason I didn't go to U of Penn was because Hopkins was closer to me. I just about keeled over when she told me she knew the crew at Hopkins who had initially seen me and that she had studied under Dr. Scharfmann.

                                                Linny
                                                Participant

                                                  I saw Dr. Fecher for a second opinion when she was still at University of Pennsylvania. The impression I got from her was that she would fight this cancer with you tooth and nail. You're in good hands with her. The only reason I didn't go to U of Penn was because Hopkins was closer to me. I just about keeled over when she told me she knew the crew at Hopkins who had initially seen me and that she had studied under Dr. Scharfmann.

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