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Hi everyone, I have a question to all NED people who finished their 12 months adjuvant nivolumab treatment for stage 4 melanoma – what is/was the frequency of your scans after adjuvant therapy had been completed? Is it every 3 months? It looks like at my institution it’s every 6 months after finishing nivo, which does seems like a long time if you are stage 4. Think I would be way more happy with keeping doing the scans every 3-4months for another year and then moving to 6 monthly one’s in year 3. What’s your experience with this? Thanks guys!
I had a PET/CT scan at 3 months and just a CT scan at 6 months following the completion of nivolumab. My next CT is scheduled at the 3 month interval. Sometimes insurance companies control the frequency/type of scan. I’m currently on medicare with a supplement.
My last nivo was August of 2018 and have had ct scans every 3 months. It was my choice to stop nivo after 1 year of NED. My sister works at a cancer treatment center and they keep their patients on nivo after NED until their body can;t handle it anymore. Of course it is a private center so they are out to make money. My treatment has been through the VA so they are trying to save money. My last scans were 2 weeks ago and my dr said this would be a life long thing.
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