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  • Post
    • March 1, 2012 at 9:52 pm
    audgator
    Participant

      I haven't contributed much here but I just posted a profile for anyone who wants the history. After a couple clear post-interefron scans they found mets in my lungs & liver last August. I did the ipi for 4 infusions. Follow-up scans on Tuesday found more & the previous ones growing. Some are now over 1 cm. So the Moffitt folks have enrolled me in the anti-PD1 trial pending clearance after a brain MRI, bloodwork & an EKG. I keep telling my docs, "Keep me alive til you find a cure!"

      Dan

      I haven't contributed much here but I just posted a profile for anyone who wants the history. After a couple clear post-interefron scans they found mets in my lungs & liver last August. I did the ipi for 4 infusions. Follow-up scans on Tuesday found more & the previous ones growing. Some are now over 1 cm. So the Moffitt folks have enrolled me in the anti-PD1 trial pending clearance after a brain MRI, bloodwork & an EKG. I keep telling my docs, "Keep me alive til you find a cure!"

      Dan

    Viewing 5 reply threads
    • Replies
        • March 1, 2012 at 11:36 pm
        WendyPam
        Participant

          Hi Dan,

          My Mom is Stge 4 and a patient with Dr. Lutzky.  We are currently doing a reinduction of Yervoy. I was wondering are you going to be doing the BMS Anti-pd1 at Moffit with Dr. Webber? Dr. Lutsky told us if and when needed he  would send us to Moffitt for the same treatment. I wish you the best results with your new  treatment.

          best regards,

           

          Wendy

            • March 2, 2012 at 3:24 am
            audgator
            Participant

              Wendy, yes on the trilal at Moffitt if all goes well with the pre-tests. Thanks for the good wishes.    Dan

              • March 2, 2012 at 3:24 am
              audgator
              Participant

                Wendy, yes on the trilal at Moffitt if all goes well with the pre-tests. Thanks for the good wishes.    Dan

                • March 2, 2012 at 3:24 am
                audgator
                Participant

                  Wendy, yes on the trilal at Moffitt if all goes well with the pre-tests. Thanks for the good wishes.    Dan

                  • March 2, 2012 at 7:24 pm
                  Kelly7
                  Participant

                    Hi Wendy,

                     

                    You mentioned your doctor is Dr. Lutzky, is that the same Lutzky out of Miami(Mt. Sinai)? That is where my brother is going and he is seeing a Dr. Lutzky. My brother just finished the IL-2 treatment and now we are waiting the 6 weeks to see if it is working!

                    So, he is willing to help your mom go to the Moffit center? I just want to know all the options my brother has.

                    Well, we live in Fort Lauderdale- Please take care,

                     

                    Kelly

                    • March 2, 2012 at 7:24 pm
                    Kelly7
                    Participant

                      Hi Wendy,

                       

                      You mentioned your doctor is Dr. Lutzky, is that the same Lutzky out of Miami(Mt. Sinai)? That is where my brother is going and he is seeing a Dr. Lutzky. My brother just finished the IL-2 treatment and now we are waiting the 6 weeks to see if it is working!

                      So, he is willing to help your mom go to the Moffit center? I just want to know all the options my brother has.

                      Well, we live in Fort Lauderdale- Please take care,

                       

                      Kelly

                      • March 2, 2012 at 7:24 pm
                      Kelly7
                      Participant

                        Hi Wendy,

                         

                        You mentioned your doctor is Dr. Lutzky, is that the same Lutzky out of Miami(Mt. Sinai)? That is where my brother is going and he is seeing a Dr. Lutzky. My brother just finished the IL-2 treatment and now we are waiting the 6 weeks to see if it is working!

                        So, he is willing to help your mom go to the Moffit center? I just want to know all the options my brother has.

                        Well, we live in Fort Lauderdale- Please take care,

                         

                        Kelly

                      • March 1, 2012 at 11:36 pm
                      WendyPam
                      Participant

                        Hi Dan,

                        My Mom is Stge 4 and a patient with Dr. Lutzky.  We are currently doing a reinduction of Yervoy. I was wondering are you going to be doing the BMS Anti-pd1 at Moffit with Dr. Webber? Dr. Lutsky told us if and when needed he  would send us to Moffitt for the same treatment. I wish you the best results with your new  treatment.

                        best regards,

                         

                        Wendy

                        • March 1, 2012 at 11:36 pm
                        WendyPam
                        Participant

                          Hi Dan,

                          My Mom is Stge 4 and a patient with Dr. Lutzky.  We are currently doing a reinduction of Yervoy. I was wondering are you going to be doing the BMS Anti-pd1 at Moffit with Dr. Webber? Dr. Lutsky told us if and when needed he  would send us to Moffitt for the same treatment. I wish you the best results with your new  treatment.

                          best regards,

                           

                          Wendy

                          • March 2, 2012 at 1:53 am
                          aldakota22
                          Participant

                            Dan make sure your doc does his part. A cure is in the near future.My prayers with you.   Al

                            • March 2, 2012 at 1:53 am
                            aldakota22
                            Participant

                              Dan make sure your doc does his part. A cure is in the near future.My prayers with you.   Al

                              • March 2, 2012 at 1:53 am
                              aldakota22
                              Participant

                                Dan make sure your doc does his part. A cure is in the near future.My prayers with you.   Al

                            Viewing 5 reply threads
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