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Greetings warriors . …Had a pet scan last Thursday , and here is how it reads:
"There is a mildly hypermetabolic complex nodule in the superior right upper lobe that has SUV max of 1.2 new since the previous study of 4/28/16. This lesion may have an underestimated SUV-max due to its small size. This could be either inflammatory /infectious or metastatic . Previously in the same region there was a cavitary lesion that was not metabolic . "
There is persistence of the anorectal activity with SUV max of 6.2, previously 8.1 that requires endoscopic evaluation , if not already done.
So , as many of you know I'm in a holding pattern trying to get to the specialists at UCSF. Been denied twice by insurance , and currently in appeal ,which the folks at the University helped to organize . They want to see me ,but we're just waiting the decision on the appeal before moving forward . Should know within a couple weeks on that. In the meantime , I'm going to rest up another week , then start the cutting again . I have about 20 more lesions that need to come off pretty quick . It's just me and my surgeon until I get to California .
As a side note about my oncologist and the current results , at first he was all gung-ho about my heading to the university , but when I pushed him hard to put it in writing to help me, as my surgeon did…he back pedaled and said he didn't think they could offer anything more than I get here.
I know better after all my experience now,that's it's true what you all have stated so many times……get to a melanoma specialist ! !
I'm trying like hell, and it's going to happen . Eleven primaries , and holding.
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