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Sadly questioning my results
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Sadly questioning my results

› Forums › Cutaneous Melanoma Community › Sadly questioning my results

  • Post
    • October 8, 2023 at 9:27 am
    anxietyalldaylong
    Participant
      Hi everyone !

      I am very anxious about my recent scan. I have been on keutruda for 1.5 year now, had my pet ct two weeks ago and took my results on Friday.

      My previous mets have disappeared except a mass on my lung, which was there for all the previous scans and which had a partial response since a year ago, with both reduction in size and FDG uptake.

      In the new pet the mass has an increased suv from previous scan (from 2.0 to 2.5). Also when I viewed the images on the CD they gave me, I think I see the mass to have grown a little bit. The radiologist though gave it back as stable. When I talked to my oncologist she told me that they gave it as stable because the suv of the liver in the previous exam was 1.7 but now it is 2.2. Also they did not mention any increase in size.

      Has anyone had any experience as this one ? Is really the liver suv taken into account when deciding what the progress is ? Also what about the small increase in size ? Could all this be due to inflammation even one year after apparent response ? The very first suv of the mass was over 5.

      I am very worried that my doctors are missing my apparent progress and next time I will be full of mets !!! Please help me understand what’s going on if possible !!!

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