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return of brain mets
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return of brain mets

› Forums › General Melanoma Community › return of brain mets

  • Post
    • February 21, 2012 at 1:40 am
    annem
    Participant

      I recently posted about my husband, dx stage iv in 1998.  He began to lose weight and complain of headaches about 6 weeks ago.  Had MRI two weeks ago and his oncologist and neurosurgeon diagnosed pacymeningeal metastatic disease.  Neuro asked about taking him back to MD Anderson but I have decided not to do that.  He has been fighting this disease off and on for 14 years.  He had a stroke about a year ago and also suffers from radiation induced dementia from the whole brain radiation done on the initial brain tumor in '98.  The doctors have suggested hospic

      I recently posted about my husband, dx stage iv in 1998.  He began to lose weight and complain of headaches about 6 weeks ago.  Had MRI two weeks ago and his oncologist and neurosurgeon diagnosed pacymeningeal metastatic disease.  Neuro asked about taking him back to MD Anderson but I have decided not to do that.  He has been fighting this disease off and on for 14 years.  He had a stroke about a year ago and also suffers from radiation induced dementia from the whole brain radiation done on the initial brain tumor in '98.  The doctors have suggested hospice.  Has anyone had any experience with this diagnosis?   His oncologist has told me that the normal course of the disease is about 3 months and that my husband will probably have another massive stroke.  It is all overwhelming but I do not want him in pain.  Right now he is pretty much the way he has been since the stroke.  Some good days and some not so good.  He is fairly lucid in the mornings but the stroke left him unable to talk or walk without a walker.  Thanks for any info anyone has about this diagnosis.  Anne M, caretake to husband, stage iv

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    • Replies
        • February 21, 2012 at 3:20 am
        LynnLuc
        Participant

          Since the neurologist asked you about taking him to MD Anderson and you decided not to, it sounds like you have made your decision.If he is "fairly lucid" in the morning, have you asked him what he wants and is he able to communicate his wishes? If you don't do anything, accepting hospice will help you in his last days.

          • February 21, 2012 at 3:20 am
          LynnLuc
          Participant

            Since the neurologist asked you about taking him to MD Anderson and you decided not to, it sounds like you have made your decision.If he is "fairly lucid" in the morning, have you asked him what he wants and is he able to communicate his wishes? If you don't do anything, accepting hospice will help you in his last days.

            • February 21, 2012 at 3:20 am
            LynnLuc
            Participant

              Since the neurologist asked you about taking him to MD Anderson and you decided not to, it sounds like you have made your decision.If he is "fairly lucid" in the morning, have you asked him what he wants and is he able to communicate his wishes? If you don't do anything, accepting hospice will help you in his last days.

              • February 21, 2012 at 3:54 am
              Ali
              Participant

                Nothing really to offer but prayers.  I know if you choose hospice, they do a wonderful job of keeping people comfortable.  Take care.

                Ali

                • February 21, 2012 at 3:54 am
                Ali
                Participant

                  Nothing really to offer but prayers.  I know if you choose hospice, they do a wonderful job of keeping people comfortable.  Take care.

                  Ali

                  • February 21, 2012 at 3:54 am
                  Ali
                  Participant

                    Nothing really to offer but prayers.  I know if you choose hospice, they do a wonderful job of keeping people comfortable.  Take care.

                    Ali

                    • February 21, 2012 at 6:16 am
                    KRob
                    Participant

                      I'm sorry to hear of your husband's prognosis. I don't have experience with the type of melanoma he has, but hospice sounds like the next step to give you and your husband assistance and comfort.

                      Blessings to you both,

                      Karen

                      • February 21, 2012 at 6:16 am
                      KRob
                      Participant

                        I'm sorry to hear of your husband's prognosis. I don't have experience with the type of melanoma he has, but hospice sounds like the next step to give you and your husband assistance and comfort.

                        Blessings to you both,

                        Karen

                        • February 21, 2012 at 6:16 am
                        KRob
                        Participant

                          I'm sorry to hear of your husband's prognosis. I don't have experience with the type of melanoma he has, but hospice sounds like the next step to give you and your husband assistance and comfort.

                          Blessings to you both,

                          Karen

                          • February 21, 2012 at 5:47 pm
                          dearfoam
                          Participant

                            I don't know what the "pacymeningeal" part is, but dad had metastatic melanoma in the brain and elsewhere. The radiation and tumors really affected his judgement and he flipped a lot between lucid and unreasonable. He had a lot of complications with heart, blood, and lungs. I wish we had made the move to hospice sooner than we did, but he was in aso much denial, I did not want to push and make him more angry at me (the scapegoat). For what it's worth, I think hospice helped a lot when treatments seemed less and less effective. Becaus eof his mental state, I think comfort is really important.

                            Best to you and your husband,

                            DF

                            • February 21, 2012 at 5:47 pm
                            dearfoam
                            Participant

                              I don't know what the "pacymeningeal" part is, but dad had metastatic melanoma in the brain and elsewhere. The radiation and tumors really affected his judgement and he flipped a lot between lucid and unreasonable. He had a lot of complications with heart, blood, and lungs. I wish we had made the move to hospice sooner than we did, but he was in aso much denial, I did not want to push and make him more angry at me (the scapegoat). For what it's worth, I think hospice helped a lot when treatments seemed less and less effective. Becaus eof his mental state, I think comfort is really important.

                              Best to you and your husband,

                              DF

                              • February 21, 2012 at 5:47 pm
                              dearfoam
                              Participant

                                I don't know what the "pacymeningeal" part is, but dad had metastatic melanoma in the brain and elsewhere. The radiation and tumors really affected his judgement and he flipped a lot between lucid and unreasonable. He had a lot of complications with heart, blood, and lungs. I wish we had made the move to hospice sooner than we did, but he was in aso much denial, I did not want to push and make him more angry at me (the scapegoat). For what it's worth, I think hospice helped a lot when treatments seemed less and less effective. Becaus eof his mental state, I think comfort is really important.

                                Best to you and your husband,

                                DF

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