Greetings…I haven't posted since late 2013 when diagnsed with recurrent lung mets (recurrent after a VATS procedue in 9.2013). I entered aipi/nivo clinical trial; found out after the fact I'd been double-blinded to the ipi//nivo arm and completed 2 yrs of every other week infusions. However by the end of the first year (2014) I was NED ( small nodules bilt in lungs). I've continued with every 3 month CT scans and have remained NED. Next CT scans are scheduled for this coming Monday. Last week saw my regular oncologist and my LDH was elevated, a tad over the upper limit but during the past 4 yrs it has not even been near the upper limit, rather it has stayed in the mid-range between the high and low end (i looked back to the last 12 values at both my oncologist's and melanoma specialit's offices) it is now about 35-30 units higher then its been over the past 12 months and previuos to that, all normal … the only times its been eleveated was in correlation with metastasis…today I had a 2cm diameter round, not irregularly so, cutaneous lesion removed, sent for biopsy…in 2012 had a seborrheic keratosis, or so my derm, now since retired, said..removed in exact same place..returned couple of years ago, stable and and recently changed (larger, dark, bled if top cap removed, you know the drill!)…my oncologist who works closely with my melanoma specialist just ordered PET scan for next Thursday…
My question is…IF I am experiencing a recurrence after having been a complete responder to NIVO/IPI…WHAT ARE MY TREATMENT OPTIONS? I'm a, freaking out….THANK YOU up front Bubbles etc. NO words can describe my grafefulllness for whatever beedback this note may generate
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