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Recurrence
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Recurrence

› Forums › General Melanoma Community › Recurrence

  • Post
    • May 17, 2016 at 2:14 pm
    knittingirl
    Participant

      I was diagnosed stage 3 c in september 2015 and went through 3 infusions of ipi/nivo before stopping due to severe colitis. The Pet/CT scan in February showed no tumor.  I was NED. Unfortunately, the scan and MRI I took over the last two weeks showed a highly suspicious activity on my manubrium. My oncologist believed that melanoma had spread over there. I have to make a bone biopsy. I had already got 4 biopsies in the past but not in a bone.

      What should I expect for this procedure ? I was planning to ask for some kind of sedation, is it worth it or can I go through the procedure without it ?

      After the procedure I will resume the immunotherapy with either nivo or pembro.

      Anyone got a recurrence after immunotherapy ?

    Viewing 2 reply threads
    • Replies
        • May 17, 2016 at 6:44 pm
        beans920
        Participant

          Yes, I did a trial with both Yervoy and Interferon and 10 months later I had a flareup of a previous spot on my sternum.  Treated with radiation and it disappeared, but a scan last week showed it is active again.  Can't do radiation so I am heading back to Mayo for there expertise.  Not sure what will happen!

            • May 18, 2016 at 9:25 pm
            Lori Ann
            Participant

              I had surgery and radiation to remove tumor in my nasal cavity.  I was NED until April when they found another tumor.  I had surgery, again.  Now they are recommedning Yervoy.  Can you tell me what your experience was like?  I'm so confused.  Do you have Mucosal melanoma?

              • May 18, 2016 at 9:25 pm
              Lori Ann
              Participant

                I had surgery and radiation to remove tumor in my nasal cavity.  I was NED until April when they found another tumor.  I had surgery, again.  Now they are recommedning Yervoy.  Can you tell me what your experience was like?  I'm so confused.  Do you have Mucosal melanoma?

                • May 18, 2016 at 9:25 pm
                Lori Ann
                Participant

                  I had surgery and radiation to remove tumor in my nasal cavity.  I was NED until April when they found another tumor.  I had surgery, again.  Now they are recommedning Yervoy.  Can you tell me what your experience was like?  I'm so confused.  Do you have Mucosal melanoma?

                  • May 18, 2016 at 9:25 pm
                  Lori Ann
                  Participant

                    I had surgery and radiation to remove tumor in my nasal cavity.  I was NED until April when they found another tumor.  I had surgery, again.  Now they are recommedning Yervoy.  Can you tell me what your experience was like?  I'm so confused.  Do you have Mucosal melanoma?

                    • May 18, 2016 at 9:25 pm
                    Lori Ann
                    Participant

                      I had surgery and radiation to remove tumor in my nasal cavity.  I was NED until April when they found another tumor.  I had surgery, again.  Now they are recommedning Yervoy.  Can you tell me what your experience was like?  I'm so confused.  Do you have Mucosal melanoma?

                      • May 18, 2016 at 9:25 pm
                      Lori Ann
                      Participant

                        I had surgery and radiation to remove tumor in my nasal cavity.  I was NED until April when they found another tumor.  I had surgery, again.  Now they are recommedning Yervoy.  Can you tell me what your experience was like?  I'm so confused.  Do you have Mucosal melanoma?

                        • May 27, 2016 at 1:53 pm
                        Lori Ann
                        Participant

                          Thank you!  I don't think radiation is an option for me either but I'm looking into it.  It's so confusing as I get posts from people with positive experiences as well as negative.  Not sure what will happen here either but good luck!

                          • May 27, 2016 at 1:53 pm
                          Lori Ann
                          Participant

                            Thank you!  I don't think radiation is an option for me either but I'm looking into it.  It's so confusing as I get posts from people with positive experiences as well as negative.  Not sure what will happen here either but good luck!

                            • May 27, 2016 at 1:53 pm
                            Lori Ann
                            Participant

                              Thank you!  I don't think radiation is an option for me either but I'm looking into it.  It's so confusing as I get posts from people with positive experiences as well as negative.  Not sure what will happen here either but good luck!

                            • May 17, 2016 at 6:44 pm
                            beans920
                            Participant

                              Yes, I did a trial with both Yervoy and Interferon and 10 months later I had a flareup of a previous spot on my sternum.  Treated with radiation and it disappeared, but a scan last week showed it is active again.  Can't do radiation so I am heading back to Mayo for there expertise.  Not sure what will happen!

                              • May 17, 2016 at 6:44 pm
                              beans920
                              Participant

                                Yes, I did a trial with both Yervoy and Interferon and 10 months later I had a flareup of a previous spot on my sternum.  Treated with radiation and it disappeared, but a scan last week showed it is active again.  Can't do radiation so I am heading back to Mayo for there expertise.  Not sure what will happen!

                            Viewing 2 reply threads
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