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Recommendation for Onc Northern Nevada/CA area
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Recommendation for Onc Northern Nevada/CA area

› Forums › General Melanoma Community › Recommendation for Onc Northern Nevada/CA area

  • Post
    • November 13, 2010 at 7:54 pm
    washoegal
    Participant

      First the good news!  I am now 8 months NED!  Yahoo!  Quick review:  Diag Jan. 2010  3.1mm tumor RT , March 2010 SNB 2 nodes microscopic amounts of cancer, complete Lymph Node Dissection.  No other treatment.

      First the good news!  I am now 8 months NED!  Yahoo!  Quick review:  Diag Jan. 2010  3.1mm tumor RT , March 2010 SNB 2 nodes microscopic amounts of cancer, complete Lymph Node Dissection.  No other treatment.

      My original Onc, who was in Santa Monica California, is now at Yale.  I followed up with the Dept head who is a brilliant man and has written tons of paper on melanoma.  However, he is not the doctor for me.  The nurse came in with the good news, the doctor follows up with  " if you survive melanoma" and starts giving statistics about recurrence rates, etc.  Boy, how to ruin a happy day! 

      So…to make a long story short, I don't think this is the guy for me.  If I need someone fighting for me, I'd like someone a little more positive.  Would like some recommendations:  San Francisco, Santa Monica, UCLA area, all OK.  Unfortunately, Nevada has no Melanoma specialists.

      Thanks,

      Mary

      Stage 3

    Viewing 13 reply threads
    • Replies
        • November 14, 2010 at 2:25 am
        Becky
        Participant

          I have heard good things about Dr Kashani and Dr Minor at the California Pacific Medical center in San Francisco. Dr Kashani used to be at UCSF…they have a good repuation as well.

          • November 14, 2010 at 2:25 am
          Becky
          Participant

            I have heard good things about Dr Kashani and Dr Minor at the California Pacific Medical center in San Francisco. Dr Kashani used to be at UCSF…they have a good repuation as well.

            • November 14, 2010 at 3:07 am
            dian in spokane
            Participant

              what about salt lake city?

               

              Hopefully Janner will see your post, otherwise, please check some of these other posts for Janner's email addy, or her profile

              • November 14, 2010 at 3:07 am
              dian in spokane
              Participant

                what about salt lake city?

                 

                Hopefully Janner will see your post, otherwise, please check some of these other posts for Janner's email addy, or her profile

                • November 14, 2010 at 4:17 pm
                Janner
                Participant

                  There is a melanoma specialist in Las Vegas.  He used to be in Salt Lake and moved to a new cancer center there.  Wolfram Samlowski.  Very well respected when he was here.  There are melanoma specialists in Salt Lake although it sounds like CA might be closer for you.

                  • November 14, 2010 at 4:17 pm
                  Janner
                  Participant

                    There is a melanoma specialist in Las Vegas.  He used to be in Salt Lake and moved to a new cancer center there.  Wolfram Samlowski.  Very well respected when he was here.  There are melanoma specialists in Salt Lake although it sounds like CA might be closer for you.

                    • November 14, 2010 at 4:37 pm
                    Suzan AB
                    Participant

                      Dr. Daud is my Oco doctor at UCSF.  He and his staff are wonderful!  Dr. Sabet is a wonderful Skin doctor, not an Oco doctor.  I use my local skin doctor who works closely with Dr. Daud and Dr. Sabet.  I haven't had a recurrence on my skin since 1/08.  Presently waiting on Dr. Daud's review of my most recent PET scan and possible node involvement in my right lung.  But I will cross that bridge when I get to it on Monday.  Going fishing today!

                      Good luck on finding the right doctor for you!

                      My best, Suzan AB

                      Stage IV Warriorist

                      • November 14, 2010 at 4:37 pm
                      Suzan AB
                      Participant

                        Dr. Daud is my Oco doctor at UCSF.  He and his staff are wonderful!  Dr. Sabet is a wonderful Skin doctor, not an Oco doctor.  I use my local skin doctor who works closely with Dr. Daud and Dr. Sabet.  I haven't had a recurrence on my skin since 1/08.  Presently waiting on Dr. Daud's review of my most recent PET scan and possible node involvement in my right lung.  But I will cross that bridge when I get to it on Monday.  Going fishing today!

                        Good luck on finding the right doctor for you!

                        My best, Suzan AB

                        Stage IV Warriorist

                        • November 16, 2010 at 8:27 am
                        rj
                        Participant

                          Glad you're NED!!  Dr. Daud is great at UCSF, and if you ever need a melanoma surgeon, you will never find better than Dr. Leong.  He used to be at UCSF and is now at California Pacific. 

                          • November 16, 2010 at 8:27 am
                          rj
                          Participant

                            Glad you're NED!!  Dr. Daud is great at UCSF, and if you ever need a melanoma surgeon, you will never find better than Dr. Leong.  He used to be at UCSF and is now at California Pacific. 

                            • November 16, 2010 at 10:35 pm
                            EmilyandMike
                            Participant

                              Hi Mary

                              Unfortunately the experts don't always have a good bedside manner.   As much as we like our current oncologist personally, he is not a specialist in melanoma.   

                              In San Francisco, I recommend Daud at UCSF, Minor at Cal Pacific, and Spitler at Nor Cal melanoma center.   Last year, Cal Pacific recruited all of the top melanoma docs from UCSF.

                              In So Cal – Steven O'Day at the Angeles Clinic.

                              My husband has seen Daud at UCSF on a referral from his regular doctor and they are quite nice.  He now has the opportunity to switch from our local oncologist to Dr Minor at Cal Pacific so we are going taking advantage of that.  Minor has a number of stage IV survivors that I know of…due to his biochemo recipe.  

                              Best,

                              Emily 

                               

                              • November 16, 2010 at 10:35 pm
                              EmilyandMike
                              Participant

                                Hi Mary

                                Unfortunately the experts don't always have a good bedside manner.   As much as we like our current oncologist personally, he is not a specialist in melanoma.   

                                In San Francisco, I recommend Daud at UCSF, Minor at Cal Pacific, and Spitler at Nor Cal melanoma center.   Last year, Cal Pacific recruited all of the top melanoma docs from UCSF.

                                In So Cal – Steven O'Day at the Angeles Clinic.

                                My husband has seen Daud at UCSF on a referral from his regular doctor and they are quite nice.  He now has the opportunity to switch from our local oncologist to Dr Minor at Cal Pacific so we are going taking advantage of that.  Minor has a number of stage IV survivors that I know of…due to his biochemo recipe.  

                                Best,

                                Emily 

                                 

                                • November 17, 2010 at 5:21 am
                                Napa K
                                Participant

                                  Over the last eight years (stage IV), I have visited/been treated by a majority of the Nor/So Cal melanoma docs (and a handful of experts on the other coast).  With that, my votes would go to Dr. Minor at CPMC (a ++ with Dr. Kashani there as well now) and Dr. O'Day at Angeles Clinic; all have been incredibly helpful, thorough, supportive and compassionate on this very long ride.

                                    • November 17, 2010 at 5:51 am
                                    Suzan AB
                                    Participant

                                      Wow Kari,

                                      Is that 8 years as Stage IV.  Wonderful!  What treatments have you had?

                                      thanks,

                                      Suzan AB

                                      Stage IV

                                      • November 17, 2010 at 5:51 am
                                      Suzan AB
                                      Participant

                                        Wow Kari,

                                        Is that 8 years as Stage IV.  Wonderful!  What treatments have you had?

                                        thanks,

                                        Suzan AB

                                        Stage IV

                                      • November 17, 2010 at 5:21 am
                                      Napa K
                                      Participant

                                        Over the last eight years (stage IV), I have visited/been treated by a majority of the Nor/So Cal melanoma docs (and a handful of experts on the other coast).  With that, my votes would go to Dr. Minor at CPMC (a ++ with Dr. Kashani there as well now) and Dr. O'Day at Angeles Clinic; all have been incredibly helpful, thorough, supportive and compassionate on this very long ride.

                                    Viewing 13 reply threads
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