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Really easy staging info
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Really easy staging info

› Forums › General Melanoma Community › Really easy staging info

  • Post
    • May 10, 2016 at 10:22 pm
    DZnDef
    Participant

      I just found this site today as my sister invited me to participate in a "fun run" they are sponsoring.  I know most of you have probably already noticed it.  I am posting it here because it is the easiest site to navigate about melanoma that I have yet seen.  It looks like the survival data is out of date (2009 – pre Yervoy, Keytruda, Opdivo), but it still told me worthwhile information about my own Stage IV disease.  Please let me know if this site has been discredited somehow.  It looks pretty legit to me (but what do I know).

      I am linking directly to the Stage IV page (because that's where I'm at) but the previous page lists all the stages.  Also looks like a pretty up-to-date list of melanoma specialists (I say that because my own specialist is listed at his new location).

      https://www.aimatmelanoma.org/stages-of-melanoma/stage-iv-melanoma/

    Viewing 8 reply threads
    • Replies
        • May 11, 2016 at 12:54 am
        Janner
        Participant

          It's a very legitimate site.  Jean Schlipman, one of the founders, posted here once upon a time, I believe.

          • May 11, 2016 at 12:54 am
          Janner
          Participant

            It's a very legitimate site.  Jean Schlipman, one of the founders, posted here once upon a time, I believe.

              • May 11, 2016 at 2:48 am
              DZnDef
              Participant

                Thanks for the confirmation, Janner.  I realized that much of the information on that site is also available on this site (and even more is available on this site).  Yet I learned more about my staging on the Aim at Melanoma site due to their intuitive set-up.  And thought the survival statistics are out of date, it was still useful for me to get a sense of relativity among the various stages and sub-stages.  I thought folks here might find it useful too.

                • May 11, 2016 at 2:48 am
                DZnDef
                Participant

                  Thanks for the confirmation, Janner.  I realized that much of the information on that site is also available on this site (and even more is available on this site).  Yet I learned more about my staging on the Aim at Melanoma site due to their intuitive set-up.  And thought the survival statistics are out of date, it was still useful for me to get a sense of relativity among the various stages and sub-stages.  I thought folks here might find it useful too.

                  • May 11, 2016 at 2:48 am
                  DZnDef
                  Participant

                    Thanks for the confirmation, Janner.  I realized that much of the information on that site is also available on this site (and even more is available on this site).  Yet I learned more about my staging on the Aim at Melanoma site due to their intuitive set-up.  And thought the survival statistics are out of date, it was still useful for me to get a sense of relativity among the various stages and sub-stages.  I thought folks here might find it useful too.

                  • May 11, 2016 at 12:54 am
                  Janner
                  Participant

                    It's a very legitimate site.  Jean Schlipman, one of the founders, posted here once upon a time, I believe.

                    • May 11, 2016 at 1:18 pm
                    WithinMySkin
                    Participant
                      Wow this is a good site. Very easy to understand, for both stage III and VI. I do wish we had a like button for these posts!
                      • May 11, 2016 at 1:18 pm
                      WithinMySkin
                      Participant
                        Wow this is a good site. Very easy to understand, for both stage III and VI. I do wish we had a like button for these posts!
                        • May 11, 2016 at 1:18 pm
                        WithinMySkin
                        Participant
                          Wow this is a good site. Very easy to understand, for both stage III and VI. I do wish we had a like button for these posts!
                          • May 13, 2016 at 11:19 pm
                          Charlie S
                          Participant

                            Do NOT use the internet as a subsiture for a doctor.

                            As an educational tool to make one more informed when engaging a doctor?  Certainly.

                            Get on the telephone and SPEAK with the people though.

                            Cancer is neither diagnosed nor treated via a keyboard.  It takes people, face to face, one on one, medical records in hand to get ahead.

                            I'm all for the internet and the information available, but it is NOT a substitute for face to face conversations with medical professionals.

                            Ever.

                            Charlie S

                             

                              • May 18, 2016 at 9:53 pm
                              DZnDef
                              Participant

                                Charlie, I'm surprised you thought this post required a warning.  I thought it was pretty non-controversial as it is a very good site for general information on melanoma.  I am not aware of anyone who has ever not discussed their melanoma with a doctor.  Are you?

                                • May 18, 2016 at 9:53 pm
                                DZnDef
                                Participant

                                  Charlie, I'm surprised you thought this post required a warning.  I thought it was pretty non-controversial as it is a very good site for general information on melanoma.  I am not aware of anyone who has ever not discussed their melanoma with a doctor.  Are you?

                                  • May 18, 2016 at 9:53 pm
                                  DZnDef
                                  Participant

                                    Charlie, I'm surprised you thought this post required a warning.  I thought it was pretty non-controversial as it is a very good site for general information on melanoma.  I am not aware of anyone who has ever not discussed their melanoma with a doctor.  Are you?

                                  • May 13, 2016 at 11:19 pm
                                  Charlie S
                                  Participant

                                    Do NOT use the internet as a subsiture for a doctor.

                                    As an educational tool to make one more informed when engaging a doctor?  Certainly.

                                    Get on the telephone and SPEAK with the people though.

                                    Cancer is neither diagnosed nor treated via a keyboard.  It takes people, face to face, one on one, medical records in hand to get ahead.

                                    I'm all for the internet and the information available, but it is NOT a substitute for face to face conversations with medical professionals.

                                    Ever.

                                    Charlie S

                                     

                                    • May 13, 2016 at 11:19 pm
                                    Charlie S
                                    Participant

                                      Do NOT use the internet as a subsiture for a doctor.

                                      As an educational tool to make one more informed when engaging a doctor?  Certainly.

                                      Get on the telephone and SPEAK with the people though.

                                      Cancer is neither diagnosed nor treated via a keyboard.  It takes people, face to face, one on one, medical records in hand to get ahead.

                                      I'm all for the internet and the information available, but it is NOT a substitute for face to face conversations with medical professionals.

                                      Ever.

                                      Charlie S

                                       

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