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Re pigmentation after vitiligo from Ipi
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Re pigmentation after vitiligo from Ipi

› Forums › General Melanoma Community › Re pigmentation after vitiligo from Ipi

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    • July 12, 2020 at 7:55 pm
    Ilikestargate
    Participant
      Eight tumors completely wiped out by Yervoy. Still in remission nearly a year later. First course of Opdivo prior to Yervoy produced vitiligo. on arms, hands, and legs. Yervoy caused white eyebrows and lashes. I started getting what looked like age/liver spots on hands, arms, and legs about 8 months ago. These spots are now so prevalent that they cover everything but my trunk and face/neck so completely that I look like a mutated giraffe. Both oncologist and dermatologist think that this is re pigmentation of previous vitiligo areas. Personally, I think that they have no idea what it is. Has anyone heard of this condition (or experienced it)? Both docs agree that the spots, which now number in the thousands (no exaggeration and many areas have merged into large light brown patches of skin) aren’t dangerous. While certainly grateful to still be in remission, i certainly wouldn’t mind my skin going back to “normal”. Thanks for feedback.
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        • July 14, 2020 at 2:06 pm
        Gene_S
        Participant
          Hello John,
          My husband was on Yervoy and he developed vitiligo and the white eyebrows and beard. This also made his face white down to the collar bone.
          He also has white spots on his arms. He has been NED for 8 years and still has all of the things that turned white.

          He stopped the Yervoy in Dec. 2013.

          Judy the loving wife of Gene Stage !V Clinical Trial of Ipi (Yervoy) 10 mg/kg and GMCSF self injections

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