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Quickly went to 21 known primaries
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Quickly went to 21 known primaries

› Forums › General Melanoma Community › Quickly went to 21 known primaries

  • Post
    • April 13, 2023 at 2:31 am
    Bobman
    Participant
      Hey everybody!

      Was so good to see some familiar people since last posted. Beloved Les, Marc, Jud and other’s.
      Means a lot you all chiming in, like day’s of old yeah?
      So , meant to answer everyone personally, but been getting hectic as it does with this disease.
      Interesting results from last go round. Wide excisions on known insitu’s, turned up an invasive melanoma which wasn’t even on the radar.Wasn’t visible like the insitu excised, and detected on the margin for the wide excision. Only .2mm depth, but, didn’t know it was there. So, need clear margins on that, as well as keep up with a fairly rigorous biopsy routine for the next couple month’s.New Oncologist was great. Ordered me some genetic testing which has been recommended by many on here over the year’s. Keep picking off these lesions until they start showing better results. Discounted my theory on mets to the epidermis, since I am still here…which made sense to me. Concerned that an invasive was discovered without even a slight sign of showing itself except for inadvertently being picked up in wide excision for a known insitu. Whew! That boggles my mind too, but I’ve come to learn over the year’s that this thing is unpredictable at best.
      Anyway, wide excision on the ghost primary, continued biopsies…literally like 12 or so to go, or as my Oncologist said…let’s keep picking off these lesions until we get better results.I concur.
      Love ya Les…you’re my hero!

      Aloha
      Bob

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        • April 17, 2023 at 10:39 pm
        JudiAU
        Participant
          Lol. I hope you know I mean this in the best possible way but! You must be an extremely exciting patient to have! Sorry to hear about the new site.
            • April 18, 2023 at 5:15 pm
            Bobman
            Participant
              Hey Judi,
              I do take that in the best possible way! Had a few biopsies yesterday to keep picking these lesions off. My surgeon said, “I don’t even know where to start with you!” To which I replied “Neither do I!”
              Somethings going on different these days…hundreds of lesions to choose from. So many looking sketchy.
              I just don’t know.

              Aloha,

              Bob

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