› Forums › Ocular Melanoma Community › Questions a new pateint should ask their ocular oncologist , medical oncologist liver surgeon interventionsit
- This topic has 6 replies, 2 voices, and was last updated 10 years, 5 months ago by Anonymous.
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- October 10, 2013 at 3:36 pm
I am looking for ideas on questions that newly diagnosed eye pateints should ask their ocular oncologists- suggestions please
Then what one should ask one s liver surgeon
questions for interventionsis
questions for oncologist.
Please all think what would be good questions we should ask
thanks
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- October 16, 2013 at 2:32 pm
Come on guys – there must be something you asked or you felt you should have asked?
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- October 25, 2013 at 6:06 pm
Hello lak,
Actually, Sara, Molly and I have just started working on a 'Questions to Ask Your Doctor' document. It is not finished and will be reviewed several more times by staff and also by patients, but here is the short list we have come up with for metastatic disease:
- Why do you think I have metastatic disease?
- What are my treatment options and what are the differences between each of them?
- Which treatment do you think is best for me and why?
- Are there different treatments at different centers that I should learn about?
- What is the difference between liver-directed therapy and other local controls versus systemic treatments like immunotherapy, chemotherapy, and targeted therapy? Can the different treatments be combined?
- Are there different outcomes depending on the treatment?
- What are the side effects of each treatment?
- Have you tested my melanoma for genetic mutations such as the GNAQ mutation? What about other mutations? Are any of the skin melanoma mutations relevant to OM? Will this help direct us toward a particular effective treatment?
- Will I be able to continue my normal daily life?
- What clinical trials would you recommend?
Please, if you or if anyone else has additional question, you can send them directly to me at [email protected]. Our list will contain questions for both primary disease and for metastatic disease.
I hope this helps get you started. Thanks in advance for any additional recommendations you have!
Shelby – MRF
Education Program Manager
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- October 25, 2013 at 6:06 pm
Hello lak,
Actually, Sara, Molly and I have just started working on a 'Questions to Ask Your Doctor' document. It is not finished and will be reviewed several more times by staff and also by patients, but here is the short list we have come up with for metastatic disease:
- Why do you think I have metastatic disease?
- What are my treatment options and what are the differences between each of them?
- Which treatment do you think is best for me and why?
- Are there different treatments at different centers that I should learn about?
- What is the difference between liver-directed therapy and other local controls versus systemic treatments like immunotherapy, chemotherapy, and targeted therapy? Can the different treatments be combined?
- Are there different outcomes depending on the treatment?
- What are the side effects of each treatment?
- Have you tested my melanoma for genetic mutations such as the GNAQ mutation? What about other mutations? Are any of the skin melanoma mutations relevant to OM? Will this help direct us toward a particular effective treatment?
- Will I be able to continue my normal daily life?
- What clinical trials would you recommend?
Please, if you or if anyone else has additional question, you can send them directly to me at [email protected]. Our list will contain questions for both primary disease and for metastatic disease.
I hope this helps get you started. Thanks in advance for any additional recommendations you have!
Shelby – MRF
Education Program Manager
-
- October 25, 2013 at 6:06 pm
Hello lak,
Actually, Sara, Molly and I have just started working on a 'Questions to Ask Your Doctor' document. It is not finished and will be reviewed several more times by staff and also by patients, but here is the short list we have come up with for metastatic disease:
- Why do you think I have metastatic disease?
- What are my treatment options and what are the differences between each of them?
- Which treatment do you think is best for me and why?
- Are there different treatments at different centers that I should learn about?
- What is the difference between liver-directed therapy and other local controls versus systemic treatments like immunotherapy, chemotherapy, and targeted therapy? Can the different treatments be combined?
- Are there different outcomes depending on the treatment?
- What are the side effects of each treatment?
- Have you tested my melanoma for genetic mutations such as the GNAQ mutation? What about other mutations? Are any of the skin melanoma mutations relevant to OM? Will this help direct us toward a particular effective treatment?
- Will I be able to continue my normal daily life?
- What clinical trials would you recommend?
Please, if you or if anyone else has additional question, you can send them directly to me at [email protected]. Our list will contain questions for both primary disease and for metastatic disease.
I hope this helps get you started. Thanks in advance for any additional recommendations you have!
Shelby – MRF
Education Program Manager
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Tagged: ocular melanoma
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