The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Question for those who’ve had LND (groin)

Forums General Melanoma Community Question for those who’ve had LND (groin)

  • Post
    joy_
    Participant

      My husband is 6 weeks into recovery from LND of the groin.  He still can't completely straighten his leg.  He says it feels like his tendon is too short (pulls from behind his knee up to his groin).  Is this normal?  Has anyone else experienced this?  If so about how long until things were back to "normal."

      He also says he has a "big section" of the front side of his leg where he feels nothing.  Permanent nerve damage?  Get better over time?

      My husband is 6 weeks into recovery from LND of the groin.  He still can't completely straighten his leg.  He says it feels like his tendon is too short (pulls from behind his knee up to his groin).  Is this normal?  Has anyone else experienced this?  If so about how long until things were back to "normal."

      He also says he has a "big section" of the front side of his leg where he feels nothing.  Permanent nerve damage?  Get better over time?

      I guess we could wait until his recheck in a couple of weeks to ask the Dr but you all are so kind and helpful that I thought I would go ahead and ask here.

      Thanks in advance for any and all responses.

      Tracy

      wife to Bill, stage IIIc

      Loading spinner
    Viewing 9 reply threads
    • Replies
        Carver
        Participant

          I had the groin lymph node dissection in 2005. I have never gotten all of my normal feeling back in my thigh but a lot of that numbness did go away over time. In terms of permanent loss of feeling for me it's fairly mild whereas the initial loss was severe. That feeling he described in terms of pulling back is something else that was much more severe at first but is milder over time. I had a lot of problems after my groin dissection and have had some long terms issues. In my case I think I tried to be too active too fast. It is good to do some walking so the nerves find the new pathways but better not  to overdo it, particularly at first. The leg should be elevated (above heart level) at night when resting, watching TV etc. This will help with lymphedema. Some lyphedema post surgery happens to most people but the long term permanent kind is something to try to avoid by keeping leg elevated. I do have lymphedema (fluid that backs up in leg and sometimes down to foot) but not too severe.  If you click here for the Roswell Park Handbook they have information on lymphedema prevention and other topics related to groin dissection. Best of luck, Carver

          Loading spinner
          djpayn
          Participant

            i had a full LND to the right groin and i stll have no feeling over 50% of my thigh. my LND was 2 years ago. i still have tightness in my leg muscles but found that stretching relieves that. i hope ths helps!!!

            Loading spinner
            djpayn
            Participant

              i had a full LND to the right groin and i stll have no feeling over 50% of my thigh. my LND was 2 years ago. i still have tightness in my leg muscles but found that stretching relieves that. i hope ths helps!!!

              Loading spinner
              PeterO
              Participant

                My left side LND in '08 resulted in the permanent loss of feeling on the top of my thigh. It bothers me, but I've gotten used to it. I also have fibrosis that makes that thigh slightly larger than the other. I'm still a distance runner and work hard at maintaining flexibility in the leg.

                Loading spinner
                  John T
                  Participant

                    Hi

                    Similar story to the others. Even after 2.5 years still have loss of feeling and tightness – but no loss of functionality. Run regular 10 km runs and do  "mini Iron man" (cycling, swiming, running) events and right leg (operation) is no more tired than left leg. My times are now better than before operation! Additonally excecise does not make leg feel worse, or better, than not exercising – just the same.

                    I think, once you are  ready, exercise is good to help leg get back to normal ASAP.

                    For further encouragement I am still NED afetr 2.5 years with "surgery only" option (i.e No Interferon or other treatement.)

                    Live Strong.

                    John from Bangkok.

                    Loading spinner
                    John T
                    Participant

                      Hi

                      Similar story to the others. Even after 2.5 years still have loss of feeling and tightness – but no loss of functionality. Run regular 10 km runs and do  "mini Iron man" (cycling, swiming, running) events and right leg (operation) is no more tired than left leg. My times are now better than before operation! Additonally excecise does not make leg feel worse, or better, than not exercising – just the same.

                      I think, once you are  ready, exercise is good to help leg get back to normal ASAP.

                      For further encouragement I am still NED afetr 2.5 years with "surgery only" option (i.e No Interferon or other treatement.)

                      Live Strong.

                      John from Bangkok.

                      Loading spinner
                      John T
                      Participant

                        Hi

                        Similar story to the others. Even after 2.5 years still have loss of feeling and tightness – but no loss of functionality. Run regular 10 km runs and do  "mini Iron man" (cycling, swiming, running) events and right leg (operation) is no more tired than left leg. My times are now better than before operation! Additonally excecise does not make leg feel worse, or better, than not exercising – just the same.

                        I think, once you are  ready, exercise is good to help leg get back to normal ASAP.

                        For further encouragement I am still NED afetr 2.5 years with "surgery only" option (i.e No Interferon or other treatement.)

                        Live Strong.

                        John from Bangkok.

                        Loading spinner
                        John T
                        Participant

                          Hi

                          Similar story to the others. Even after 2.5 years still have loss of feeling and tightness – but no loss of functionality. Run regular 10 km runs and do  "mini Iron man" (cycling, swiming, running) events and right leg (operation) is no more tired than left leg. My times are now better than before operation! Additonally excecise does not make leg feel worse, or better, than not exercising – just the same.

                          I think, once you are  ready, exercise is good to help leg get back to normal ASAP.

                          For further encouragement I am still NED afetr 2.5 years with "surgery only" option (i.e No Interferon or other treatement.)

                          Live Strong.

                          John from Bangkok.

                          Loading spinner
                        Sharyn
                        Participant

                          Hi Tracy,

                          Like the others who have responded, I too have nerve damage to my leg. LND was June 2007. I don't even notice it anymore. I wear a compression stocking every day to reduce the swelling from lymphodema. I also had a lot of trouble with my groin wound, had to be attached to a VAC machine (Vacuum Assisted Closure) for a few weeks, and I had a huge ligature, making it difficult to straighten my leg. But I did physio, and it eventually relaxed after several months — maybe a year. Now I don't feel it or notice it, and I walk perfectly normally.

                          Tell Bill to be patient, exercise it when he's ready, and ask his doctor about physio. It will get better, but it takes time.

                          Hugs

                          Sharyn

                          Stage IV

                           

                          Loading spinner
                          Sharyn
                          Participant

                            Hi Tracy,

                            Like the others who have responded, I too have nerve damage to my leg. LND was June 2007. I don't even notice it anymore. I wear a compression stocking every day to reduce the swelling from lymphodema. I also had a lot of trouble with my groin wound, had to be attached to a VAC machine (Vacuum Assisted Closure) for a few weeks, and I had a huge ligature, making it difficult to straighten my leg. But I did physio, and it eventually relaxed after several months — maybe a year. Now I don't feel it or notice it, and I walk perfectly normally.

                            Tell Bill to be patient, exercise it when he's ready, and ask his doctor about physio. It will get better, but it takes time.

                            Hugs

                            Sharyn

                            Stage IV

                             

                            Loading spinner
                            melanomafighter
                            Participant

                              I too had LND in groin this year in April, I have 50% loss of feeling in my thigh.  My surgeon said it could be temporary or permanent.  He had to go in and around alot of nerves for the surgery, he took 28 of my lymphe nodes out (all were negative!)  I have gotten used to it too, I wear my compression stocking and my "biker shorts" to help with the swelling of lymhedema.  I can't walk for long periods without it swelling up.  I am sure we both may have permanent nerve damage.  I am hoping mine will get better over time.  Good luck to you and your husband, I am stage 3B.  Teresa in Indianapolis

                              Loading spinner
                              melanomafighter
                              Participant

                                I too had LND in groin this year in April, I have 50% loss of feeling in my thigh.  My surgeon said it could be temporary or permanent.  He had to go in and around alot of nerves for the surgery, he took 28 of my lymphe nodes out (all were negative!)  I have gotten used to it too, I wear my compression stocking and my "biker shorts" to help with the swelling of lymhedema.  I can't walk for long periods without it swelling up.  I am sure we both may have permanent nerve damage.  I am hoping mine will get better over time.  Good luck to you and your husband, I am stage 3B.  Teresa in Indianapolis

                                Loading spinner
                                Meg1414
                                Participant

                                  Hi, Tracy. My info is similar to what the others have said. I was stage IV and had 17 lymph nodes removed 8 years ago. Also had skin for grafts taken from the outside of that thigh. It took a little while before I felt like I was walking "normally" and I had most of the top of my leg that was numb. (I thought that would maybe be a good spot to give myself an interferon shot, but that was a bad idea – it hurt so much worse!) It got better though. Now, I just have a little section over the top of my knee, but I don't really notice it at all. I deal with lymphedema some, but they have a lot to help with that. (I sleep in a magical boot thing that I couldn't live without.) Wishing you guys the best!

                                  Loading spinner
                                  Meg1414
                                  Participant

                                    Hi, Tracy. My info is similar to what the others have said. I was stage IV and had 17 lymph nodes removed 8 years ago. Also had skin for grafts taken from the outside of that thigh. It took a little while before I felt like I was walking "normally" and I had most of the top of my leg that was numb. (I thought that would maybe be a good spot to give myself an interferon shot, but that was a bad idea – it hurt so much worse!) It got better though. Now, I just have a little section over the top of my knee, but I don't really notice it at all. I deal with lymphedema some, but they have a lot to help with that. (I sleep in a magical boot thing that I couldn't live without.) Wishing you guys the best!

                                    Loading spinner
                                Viewing 9 reply threads
                                • You must be logged in to reply to this topic.
                                About the MRF Patient Forum

                                The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.