› Forums › General Melanoma Community › Question about my wife’s throat and stomach
- This topic has 9 replies, 3 voices, and was last updated 11 years ago by
5374brian.
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- March 29, 2013 at 8:31 pm
My wife finished her 4 treatment of Ipi on 3/19. A week before her final treatment the tumor on her throat began to bother her. By looking in her throat it looked as the tumor had grown into her throat area causing some obstruction. We called Moffitt and the oncologist said to come on in for it to be checked. They did a scan of her neck. The scan showed that the tumor had not grown any since Jan. 2013. They assured us that she has plenty of room for drinking and eating but due to it being a high traffic area it must feel strange.
My wife finished her 4 treatment of Ipi on 3/19. A week before her final treatment the tumor on her throat began to bother her. By looking in her throat it looked as the tumor had grown into her throat area causing some obstruction. We called Moffitt and the oncologist said to come on in for it to be checked. They did a scan of her neck. The scan showed that the tumor had not grown any since Jan. 2013. They assured us that she has plenty of room for drinking and eating but due to it being a high traffic area it must feel strange. The reason given for the feeling of the size change was the tissue and lymph nodes are swollen in that area. We are scheduled April 4th to see a throat specialist at Moffit to see if he has an opinion. The next thing that has started happening now is the lesion in the throat seems to be building up mucus and causes her to gag and spit on a regular basis. Whatever the stuff is coming from the lesion in the throat in the mornings it causes her to have a sour stomach. She said it is the worst tasting stuff she can imagine. Is all of this the treatment attacking the tumor? What is the stuff dripping from the tumor? Thanks for your opinions and help.
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- April 29, 2013 at 12:36 pm
My husband Scott (stage IV) has a tumor in the esophagus (primary) and has the same thing as your wife with the mucus, spitting etc. I have no real tips on how to help that, but I think it's pretty common when you look at other online sites regarding head and neck cancers. Your wife is the only other person that I have heard of having the tumor in the throat on this melanoma board.
I looked at your other posts and saw that your wife also just completed IPI and WBR. Scott has had the exact same treatments and is going to get scans in a couple of weeks. We are going down to MD Anderson to see if they have any more ideas. The only option left is some type of combination treatment or an anti-PD1 trial if we could find a spot.
Does your wife take Zofran for the nausea? That seems to help. It's hard to tell what is causing the problem when they have had both radiation and IPI. Both could cause nausea or tiredness. Fatigue with nausea has been the most common side effects for my husband. The best thing so far has been the Zofran. You will probably have to fight the insurance company to get more than 11 pills at a time, but it's worth the battle.
I saw your post about the blind study. Not sure if I would go that way. It would be great if she got the treatment, but not so great if she was in the unlucky group. I didn't remember if she is C-kit positive or not, but Dasatinib is an option if she is positive.
Scott is taking Temodor (pills) right now which is supposed to cross the blood brain barrier and help with mets. Did your wife do that yet or has it been suggested?
Best to you and your wife.
Lisa
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- May 6, 2013 at 3:10 am
Sorry for the delay. My wife had surgery to remove the tumor in the tonsil area which helped with the swallowing and spitting. She starting having what we all thought was bad gas pains and was given bentyl to help relieve the pain which seemed to work. We were on our way to here 6 out of 10 WBR and she was in so much stomach pain that i contacted Moffitt on the way there. She was admitted right after her radition treatment for scans and was found to have intussusception due to a tumor that was weighting on the intestine. Our doctor and surgeon team meet with us for a decision on wether to operate or not. The operation would possilbe stop us from a trial coming up that our team wanted her to try for. If we didnt do the trial then we could go home and hope the intestines would gradually release and she could eat better and feel better. We chose to due the surgery so she can return home and be able to eat. We realized doing this was stoping the possilbe upcoming systemic treatment but have faith that the IPI can still help and she is strong and will make it to the next trail coming around the corner. She was given Temodor and Zofran but was not able to start taking during WBR due to the surgery that was on 4/30/13. We have been in recovery at Moffitt since 04/30. Since she is 35 and going strong they are looing for us to be released 05/08/13. I have learned this site is full on information so read and ask as much as you can. I pray that all goes well with you and Scott.
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- May 6, 2013 at 3:10 am
Sorry for the delay. My wife had surgery to remove the tumor in the tonsil area which helped with the swallowing and spitting. She starting having what we all thought was bad gas pains and was given bentyl to help relieve the pain which seemed to work. We were on our way to here 6 out of 10 WBR and she was in so much stomach pain that i contacted Moffitt on the way there. She was admitted right after her radition treatment for scans and was found to have intussusception due to a tumor that was weighting on the intestine. Our doctor and surgeon team meet with us for a decision on wether to operate or not. The operation would possilbe stop us from a trial coming up that our team wanted her to try for. If we didnt do the trial then we could go home and hope the intestines would gradually release and she could eat better and feel better. We chose to due the surgery so she can return home and be able to eat. We realized doing this was stoping the possilbe upcoming systemic treatment but have faith that the IPI can still help and she is strong and will make it to the next trail coming around the corner. She was given Temodor and Zofran but was not able to start taking during WBR due to the surgery that was on 4/30/13. We have been in recovery at Moffitt since 04/30. Since she is 35 and going strong they are looing for us to be released 05/08/13. I have learned this site is full on information so read and ask as much as you can. I pray that all goes well with you and Scott.
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- May 6, 2013 at 3:10 am
Sorry for the delay. My wife had surgery to remove the tumor in the tonsil area which helped with the swallowing and spitting. She starting having what we all thought was bad gas pains and was given bentyl to help relieve the pain which seemed to work. We were on our way to here 6 out of 10 WBR and she was in so much stomach pain that i contacted Moffitt on the way there. She was admitted right after her radition treatment for scans and was found to have intussusception due to a tumor that was weighting on the intestine. Our doctor and surgeon team meet with us for a decision on wether to operate or not. The operation would possilbe stop us from a trial coming up that our team wanted her to try for. If we didnt do the trial then we could go home and hope the intestines would gradually release and she could eat better and feel better. We chose to due the surgery so she can return home and be able to eat. We realized doing this was stoping the possilbe upcoming systemic treatment but have faith that the IPI can still help and she is strong and will make it to the next trail coming around the corner. She was given Temodor and Zofran but was not able to start taking during WBR due to the surgery that was on 4/30/13. We have been in recovery at Moffitt since 04/30. Since she is 35 and going strong they are looing for us to be released 05/08/13. I have learned this site is full on information so read and ask as much as you can. I pray that all goes well with you and Scott.
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- April 29, 2013 at 12:36 pm
My husband Scott (stage IV) has a tumor in the esophagus (primary) and has the same thing as your wife with the mucus, spitting etc. I have no real tips on how to help that, but I think it's pretty common when you look at other online sites regarding head and neck cancers. Your wife is the only other person that I have heard of having the tumor in the throat on this melanoma board.
I looked at your other posts and saw that your wife also just completed IPI and WBR. Scott has had the exact same treatments and is going to get scans in a couple of weeks. We are going down to MD Anderson to see if they have any more ideas. The only option left is some type of combination treatment or an anti-PD1 trial if we could find a spot.
Does your wife take Zofran for the nausea? That seems to help. It's hard to tell what is causing the problem when they have had both radiation and IPI. Both could cause nausea or tiredness. Fatigue with nausea has been the most common side effects for my husband. The best thing so far has been the Zofran. You will probably have to fight the insurance company to get more than 11 pills at a time, but it's worth the battle.
I saw your post about the blind study. Not sure if I would go that way. It would be great if she got the treatment, but not so great if she was in the unlucky group. I didn't remember if she is C-kit positive or not, but Dasatinib is an option if she is positive.
Scott is taking Temodor (pills) right now which is supposed to cross the blood brain barrier and help with mets. Did your wife do that yet or has it been suggested?
Best to you and your wife.
Lisa
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- April 29, 2013 at 12:36 pm
My husband Scott (stage IV) has a tumor in the esophagus (primary) and has the same thing as your wife with the mucus, spitting etc. I have no real tips on how to help that, but I think it's pretty common when you look at other online sites regarding head and neck cancers. Your wife is the only other person that I have heard of having the tumor in the throat on this melanoma board.
I looked at your other posts and saw that your wife also just completed IPI and WBR. Scott has had the exact same treatments and is going to get scans in a couple of weeks. We are going down to MD Anderson to see if they have any more ideas. The only option left is some type of combination treatment or an anti-PD1 trial if we could find a spot.
Does your wife take Zofran for the nausea? That seems to help. It's hard to tell what is causing the problem when they have had both radiation and IPI. Both could cause nausea or tiredness. Fatigue with nausea has been the most common side effects for my husband. The best thing so far has been the Zofran. You will probably have to fight the insurance company to get more than 11 pills at a time, but it's worth the battle.
I saw your post about the blind study. Not sure if I would go that way. It would be great if she got the treatment, but not so great if she was in the unlucky group. I didn't remember if she is C-kit positive or not, but Dasatinib is an option if she is positive.
Scott is taking Temodor (pills) right now which is supposed to cross the blood brain barrier and help with mets. Did your wife do that yet or has it been suggested?
Best to you and your wife.
Lisa
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