- May 19, 2020 at 7:57 pm
New to the forum, was diagnosed with polypoid nodular melonoma 1.6mm Breslow depth,Clark level 3 with extensive ulceration on my left scapula . Does anyone know what polypoid nodular melonoma is as cant seem to find much information on the web.
- May 20, 2020 at 12:49 am
Sorry you have a need to be here, but welcome. Here are two articles that you may well have already examined:
And this from 2018: http://www.odermatol.com/odermatology/20162/12.Polypoid-ValdebranM.pdf
It seems that polypoid melanoma has been rolled into a subtype of nodular melanoma, but also appears to have a tendency to develop on mucosal layers (rather than on cutaneous layers) in some patients, which would be the patient in the category of mucosal melanoma.
Still, I think the most important things for you to think about just now are these:
1. I advise this to everyone, but with a rare subtype it becomes even more important, find a melanoma specialist. Or at least an oncologist who sees and treats lots of melanoma patients. Treatments have changed dramatically in melanoma just since 2011. Having a doc well versed in current standard of care practices and treatments is crucial.
2. You don’t elaborate, but if you haven’t had it already, it sounds as though you are in need of a wide local excision (WLE) of the area along with a sentinel lymph node biopsy (SLNB). This gives you the needed clear margins for a melanoma lesion and determines if there has been any spread to your lymph nodes.
3. If there has been spread to a node that puts you at Stage III and you are eligible for systemic melanoma therapies.
4. Here is a primer I put together on current melanoma therapies that you may find helpful: https://chaoticallypreciselifeloveandmelanoma.blogspot.com/2017/08/melanoma-intel-primer-for-current.html
So…basically. Find a melanoma specialist. I suspect your melanoma will be treated more based on the stage they determine you to be than the fact that it is nodular. There are others here who are dealing with nodular melanoma. They may well chime in with their experiences. Ask more questions as you have the need. Hope this helps. I wish you my best. Celeste
Thank you Celeste.
- May 20, 2020 at 8:47 am
Have already had my WLE,couldn’t have slnb because of covid-19. They weren’t doing this in the U.K.,so now I just have to go for check every 3months. I know you can’t predict what will happen but slnb would have put my mind at ease.
I understand. Certainly a crazy time. I don’t know if it would be available to you – it is certainly not routinely available here in the states – but if you could be followed via something called “circulating tumor DNA” (also – ctDNA), done with a simple blood draw, I think that could be extremely helpful. Here are lots of articles: https://chaoticallypreciselifeloveandmelanoma.blogspot.com/search?q=circulating+tumor+dna&max-results=20&by-date=true
- May 20, 2020 at 1:55 pm
Hang in there. I wish you my best. Celeste
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