PD1 Side effects including Thyroid, Liver problems, etc
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PD1 Side effects including Thyroid, Liver problems, etc

› Forums › General Melanoma Community › PD1 Side effects including Thyroid, Liver problems, etc

  • Post
    • May 8, 2012 at 11:36 pm
    killmel
    Participant

    Anyone on anti-pd1 trial have a problem with their thyroid, high liver panel numbers, eyes or other organs??? Any side effects such a rash, joint pain, etc? Thanks for your comments

    Anyone on anti-pd1 trial have a problem with their thyroid, high liver panel numbers, eyes or other organs??? Any side effects such a rash, joint pain, etc? Thanks for your comments

Viewing 5 reply threads
  • Replies
      • May 9, 2012 at 12:25 am
      rbruce
      Participant

      I am on pd1 but do not share with people who post anonomously and do not say why they are posting. Sorry.

      • May 9, 2012 at 12:25 am
      rbruce
      Participant

      I am on pd1 but do not share with people who post anonomously and do not say why they are posting. Sorry.

      • May 9, 2012 at 12:25 am
      rbruce
      Participant

      I am on pd1 but do not share with people who post anonomously and do not say why they are posting. Sorry.

      • May 9, 2012 at 3:09 pm
      killmel
      Participant

      I am sorry that I offenede anyone. I am new to this forum. I am shy and english is my second language. My friend with better english helps me post my question in english. I did not know that you cannot post anonymously to get help from members. I did not know your forum rules. I am try to understand melanoma treatment choices for my son who was just told he has this desease. His doctor told him something about pd1 treatment which confused him. Thank you.

      • May 9, 2012 at 3:09 pm
      killmel
      Participant

      I am sorry that I offenede anyone. I am new to this forum. I am shy and english is my second language. My friend with better english helps me post my question in english. I did not know that you cannot post anonymously to get help from members. I did not know your forum rules. I am try to understand melanoma treatment choices for my son who was just told he has this desease. His doctor told him something about pd1 treatment which confused him. Thank you.

        • May 10, 2012 at 1:39 am
        Bubbles
        Participant

        It's not a rule…but all of us have busy lives….often complicated by the curve ball that is melanoma…as well as the time and psycho/physical challenge that the treatments require.  This forum is at its best when folks share their stories…telling others what they have, what they are dealing with, what treatments they are considering and what they are doing.  Anti-PD1 is only in phase 1 trials…so information…that which you have been told by doctors (which you still did not share) and that which is being experienced by the lab rats we are, is at a premium.  Nevertheless, I will try to tell you what I personally know.  I am on an antiPD1 trial (MDX1106), with vaccines, at Moffitt in Tampa, Florida.  For more information on my experiences, as well as what I have gleaned about melanoma, treatments in general, and anti-PD1 specifically, can be found on my blog: chaoticallypreciselifeloveandmelanoma@blogspot.com

        • May 10, 2012 at 1:39 am
        Bubbles
        Participant

        It's not a rule…but all of us have busy lives….often complicated by the curve ball that is melanoma…as well as the time and psycho/physical challenge that the treatments require.  This forum is at its best when folks share their stories…telling others what they have, what they are dealing with, what treatments they are considering and what they are doing.  Anti-PD1 is only in phase 1 trials…so information…that which you have been told by doctors (which you still did not share) and that which is being experienced by the lab rats we are, is at a premium.  Nevertheless, I will try to tell you what I personally know.  I am on an antiPD1 trial (MDX1106), with vaccines, at Moffitt in Tampa, Florida.  For more information on my experiences, as well as what I have gleaned about melanoma, treatments in general, and anti-PD1 specifically, can be found on my blog: chaoticallypreciselifeloveandmelanoma@blogspot.com

        • May 10, 2012 at 1:39 am
        Bubbles
        Participant

        It's not a rule…but all of us have busy lives….often complicated by the curve ball that is melanoma…as well as the time and psycho/physical challenge that the treatments require.  This forum is at its best when folks share their stories…telling others what they have, what they are dealing with, what treatments they are considering and what they are doing.  Anti-PD1 is only in phase 1 trials…so information…that which you have been told by doctors (which you still did not share) and that which is being experienced by the lab rats we are, is at a premium.  Nevertheless, I will try to tell you what I personally know.  I am on an antiPD1 trial (MDX1106), with vaccines, at Moffitt in Tampa, Florida.  For more information on my experiences, as well as what I have gleaned about melanoma, treatments in general, and anti-PD1 specifically, can be found on my blog: chaoticallypreciselifeloveandmelanoma@blogspot.com

      • May 9, 2012 at 3:09 pm
      killmel
      Participant

      I am sorry that I offenede anyone. I am new to this forum. I am shy and english is my second language. My friend with better english helps me post my question in english. I did not know that you cannot post anonymously to get help from members. I did not know your forum rules. I am try to understand melanoma treatment choices for my son who was just told he has this desease. His doctor told him something about pd1 treatment which confused him. Thank you.

Viewing 5 reply threads
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