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PD1?? IPI?? IL-2??
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PD1?? IPI?? IL-2??

› Forums › General Melanoma Community › PD1?? IPI?? IL-2??

  • Post
    • January 10, 2013 at 1:58 am
    mclaus23
    Participant

      Hello, my dad concluded with IPI in 10/2011 and has since been showing regression followed by total remission 2 months ago. His scan today showed the 2 tumors in his adrenal glands grew by 1/2 inch and he has one new one on his lymph node near the adreanal gland. He needs to have an MRI asap which hopefullly shows nothing new. If it does not show anything new he is eligible for the PD1 trial. If not it's either IL-2 or IPI again. Has anyone been thru this:????

      Hello, my dad concluded with IPI in 10/2011 and has since been showing regression followed by total remission 2 months ago. His scan today showed the 2 tumors in his adrenal glands grew by 1/2 inch and he has one new one on his lymph node near the adreanal gland. He needs to have an MRI asap which hopefullly shows nothing new. If it does not show anything new he is eligible for the PD1 trial. If not it's either IL-2 or IPI again. Has anyone been thru this:????

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    • Replies
        • January 10, 2013 at 5:43 pm
        LynnLuc
        Participant

          I have been on anti pd 1 since fall 2010. I have been NED stage 4 for 2 years 9 months. The side  effects are nothing to write home about and would do this treatment forever if needed. The side effects of the other drugs are really harsh.  I have a cyst on my adrenal gland for 3 or so years…but not melanoma.

          • January 10, 2013 at 5:43 pm
          LynnLuc
          Participant

            I have been on anti pd 1 since fall 2010. I have been NED stage 4 for 2 years 9 months. The side  effects are nothing to write home about and would do this treatment forever if needed. The side effects of the other drugs are really harsh.  I have a cyst on my adrenal gland for 3 or so years…but not melanoma.

            • January 10, 2013 at 5:43 pm
            LynnLuc
            Participant

              I have been on anti pd 1 since fall 2010. I have been NED stage 4 for 2 years 9 months. The side  effects are nothing to write home about and would do this treatment forever if needed. The side effects of the other drugs are really harsh.  I have a cyst on my adrenal gland for 3 or so years…but not melanoma.

              • January 12, 2013 at 12:15 am
              TSchulz
              Participant

                That is great news that he may be eligible for the PD-1 trial and that he responded so well to ipi!  On the other hand, given his great initial response, I personally, would strongly consider trying a reintroduction to ipilimumab if his doctors think he might respond again.  If time allows, my thinking has been to try and "save" potential treatments if possible.  

                Just an opinion, good luck – it is nice that there are options to consider,  as difficult as they may be.  

                Troy

                • January 12, 2013 at 12:15 am
                TSchulz
                Participant

                  That is great news that he may be eligible for the PD-1 trial and that he responded so well to ipi!  On the other hand, given his great initial response, I personally, would strongly consider trying a reintroduction to ipilimumab if his doctors think he might respond again.  If time allows, my thinking has been to try and "save" potential treatments if possible.  

                  Just an opinion, good luck – it is nice that there are options to consider,  as difficult as they may be.  

                  Troy

                  • January 12, 2013 at 12:15 am
                  TSchulz
                  Participant

                    That is great news that he may be eligible for the PD-1 trial and that he responded so well to ipi!  On the other hand, given his great initial response, I personally, would strongly consider trying a reintroduction to ipilimumab if his doctors think he might respond again.  If time allows, my thinking has been to try and "save" potential treatments if possible.  

                    Just an opinion, good luck – it is nice that there are options to consider,  as difficult as they may be.  

                    Troy

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