PD-1 duration / Mayo Clinic appointments results
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PD-1 duration / Mayo Clinic appointments results

› Forums › General Melanoma Community › PD-1 duration / Mayo Clinic appointments results

  • Post
    • December 2, 2014 at 4:51 pm
    sgrain
    Participant

    Thanks to all that responded to my earlier PD-1 posts.  After being pulled off PD-1 after 3 infusions, I met with Dr. Dronka at Mayo Clinic in Rochester, MN.  Her recommendation was to stay on PD-1 for 3 more cycles and redo PET scan.  She also said that sometimes things get worse before they get better with these new drugs so patience is key.

    She ran the PD-1 trials at Mayo and one of her patients in 2009 was expected to have only a couple of months to live.  He was on the trial for 2 years and is currently doing fine.  He still has some tumors but they are not growing or affecting his life in any way.  She's very encouraged by the trial results she's been seeing so I'm going back on it and following her advice.

    I'll post later with PET results in a couple months.  Sounds promising though.  Good luck to all and thanks again for your earlier feedback.  It really supported what she was recommending.

Viewing 5 reply threads
  • Replies
      • December 2, 2014 at 5:41 pm
      arthurjedi007
      Participant

      Awesome. I met Dr. Dronka a few minutes and she seemed nice.

      Keytruda! Ketruda! Keytruda! Hurray!!!

      Artie

       

        • December 2, 2014 at 5:56 pm
        sgrain
        Participant

        I was very impressed with her and she renewed my faith in Mayo being a reputable melanoma clinic.  Cheers to Keytruda!

        • December 2, 2014 at 5:56 pm
        sgrain
        Participant

        I was very impressed with her and she renewed my faith in Mayo being a reputable melanoma clinic.  Cheers to Keytruda!

        • December 2, 2014 at 5:56 pm
        sgrain
        Participant

        I was very impressed with her and she renewed my faith in Mayo being a reputable melanoma clinic.  Cheers to Keytruda!

      • December 2, 2014 at 5:41 pm
      arthurjedi007
      Participant

      Awesome. I met Dr. Dronka a few minutes and she seemed nice.

      Keytruda! Ketruda! Keytruda! Hurray!!!

      Artie

       

      • December 2, 2014 at 5:41 pm
      arthurjedi007
      Participant

      Awesome. I met Dr. Dronka a few minutes and she seemed nice.

      Keytruda! Ketruda! Keytruda! Hurray!!!

      Artie

       

      • December 3, 2014 at 12:13 pm
      JustMeInCA
      Participant

      Yay! Very happy to hear it!

      • December 3, 2014 at 12:13 pm
      JustMeInCA
      Participant

      Yay! Very happy to hear it!

      • December 3, 2014 at 12:13 pm
      JustMeInCA
      Participant

      Yay! Very happy to hear it!

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