The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Paranoia

Forums General Melanoma Community Paranoia

  • Post
    Mickster
    Participant

    Hi- All,

    This is my first post on this website as i have only just joined. I was diagnosed with Stage 3 Melanoma In January 2010. Since then i have had numerous PET and CAT scans which thankfully show NED. However i still have a problem getting paranoid about every little thing that i feel or see on myself. Do any of you feel this and how do you treat or work with it.

     

    Thank You

     

    Hi- All,

    This is my first post on this website as i have only just joined. I was diagnosed with Stage 3 Melanoma In January 2010. Since then i have had numerous PET and CAT scans which thankfully show NED. However i still have a problem getting paranoid about every little thing that i feel or see on myself. Do any of you feel this and how do you treat or work with it.

     

    Thank You

     

Viewing 7 reply threads
  • Replies
      RMcLegal
      Participant

      I was diagnosed with Stage IIIc melanoma in 2003 and have been NED for nearly 8 years.  But I still experience bouts of paranoid hypochondria, and I think everyone does.  It has, however, slowly gotten better over time.  Whenever I start to get a bit paranoid about some little thing being the first sign of a recurrence, I remember myself of something my doc told me several years ago– "If you feel fine, you probably are".  Best wishes to you.

      Rich

      http://www.hotelmelanoma.blogspot.com

      RMcLegal
      Participant

      I was diagnosed with Stage IIIc melanoma in 2003 and have been NED for nearly 8 years.  But I still experience bouts of paranoid hypochondria, and I think everyone does.  It has, however, slowly gotten better over time.  Whenever I start to get a bit paranoid about some little thing being the first sign of a recurrence, I remember myself of something my doc told me several years ago– "If you feel fine, you probably are".  Best wishes to you.

      Rich

      http://www.hotelmelanoma.blogspot.com

        RMcLegal
        Participant

        Make that "remind" myself.  Yikes, I should never type without first having a cup of coffee.

        RMcLegal
        Participant

        Make that "remind" myself.  Yikes, I should never type without first having a cup of coffee.

        Mickster
        Participant

        RMcLegal,

         

        Thank you very much for your reply with advice that i will immediately take on board. Its something that just comes on me every now and then and not only affects me but those around me.

         

        Thanks again

        Mickster
        Participant

        RMcLegal,

         

        Thank you very much for your reply with advice that i will immediately take on board. Its something that just comes on me every now and then and not only affects me but those around me.

         

        Thanks again

        Mickster
        Participant

        RMcLegal,

         

        Thank you very much for your reply with advice that i will immediately take on board. Its something that just comes on me every now and then and not only affects me but those around me.

         

        Thanks again

        Mickster
        Participant

        RMcLegal,

         

        Thank you very much for your reply with advice that i will immediately take on board. Its something that just comes on me every now and then and not only affects me but those around me.

         

        Thanks again

        Mickster
        Participant

        RMcLegal,

         

        Thank you very much for your reply with advice that i will immediately take on board. Its something that just comes on me every now and then and not only affects me but those around me.

         

        Thanks again

        Mickster
        Participant

        RMcLegal,

         

        Thank you very much for your reply with advice that i will immediately take on board. Its something that just comes on me every now and then and not only affects me but those around me.

         

        Thanks again

      FormerCaregiver
      Participant

      Welcome to our forum. Many people here can understand how you might be feeling. Melanoma is something that is always in the background, even when one shows NED. In addition, scan anxiety or "scanxiety" is something that almost everyone here is very familiar with, either as a patient, caregiver or friend.

      I think that it is important not to become too overwhelmed with the fear of the unknown.

      Therefore, it is wise to try taking your mind off things related to melanoma without going to extremes. I don't know if you have tried meditation, but I think that this can really help. Of course, many people find gentle exercise to be beneficial as well.

      Hope this helps.

      Frank from Australia

      FormerCaregiver
      Participant

      Welcome to our forum. Many people here can understand how you might be feeling. Melanoma is something that is always in the background, even when one shows NED. In addition, scan anxiety or "scanxiety" is something that almost everyone here is very familiar with, either as a patient, caregiver or friend.

      I think that it is important not to become too overwhelmed with the fear of the unknown.

      Therefore, it is wise to try taking your mind off things related to melanoma without going to extremes. I don't know if you have tried meditation, but I think that this can really help. Of course, many people find gentle exercise to be beneficial as well.

      Hope this helps.

      Frank from Australia

        Mickster
        Participant

        Thank you very much for your advice.  i will take all on board. Appreciate it.

         

        Thanks again

        Mickster
        Participant

        Thank you very much for your advice.  i will take all on board. Appreciate it.

         

        Thanks again

      washoegal
      Participant

      I was dx  the same time you were and am also stage 3.  What you are going through is absolutely normal and unfortunately most people around you will not understand because at Stage 3 you seem to to be "just fine now".  Well those pesky scans are a constant reminder.  But on the bright side, look how far we have come!  I feel great, except for a few pains from my CLND but that's a small price. 

      OH yea, I still see a new mole or one I think is new run to the derm and say take it off now!  Something changes in my body and I start to wonder but then I am 59, lots of things are changing and not for the better.  It's called life.  And I for one am planning on being here for a while and enjoying it even with a few bumps.

       

      Good Luck,

      Mary

      Stage 3

      washoegal
      Participant

      I was dx  the same time you were and am also stage 3.  What you are going through is absolutely normal and unfortunately most people around you will not understand because at Stage 3 you seem to to be "just fine now".  Well those pesky scans are a constant reminder.  But on the bright side, look how far we have come!  I feel great, except for a few pains from my CLND but that's a small price. 

      OH yea, I still see a new mole or one I think is new run to the derm and say take it off now!  Something changes in my body and I start to wonder but then I am 59, lots of things are changing and not for the better.  It's called life.  And I for one am planning on being here for a while and enjoying it even with a few bumps.

       

      Good Luck,

      Mary

      Stage 3

      Jim M.
      Participant

      I was diagnosd stage 3C in 11/07. Instead of paranoia I  I call it a HEALTHY RESPECT for melanoma. I believe it's paranoia if it allows one to be immobile and not be able to function effectively. I know melanoma has changed me, mostly for the better. It caused me to research and make positive lifestyle changes. I respect the fact that melanoma is potentially fatal and so I do everything I can to advocate for myself. If that means seeing something different on my skin I'm concerned about you bet I'll see my derm. quick.

       As others have said it's easier  as time goes on but it is good to have a healthy respect for melanoma the rest of our lives. We cannot become complacent but we need to remain vigilant about our health. Others don't understand because they haven't had a disease like this.

      I also rely on my faith, talk to God, pray and know that He has healed me.

      Define it this way: A healthy respect for melanoma will cause you to advocate for your health by any means with the goal being your wellness.

      God Bless,

       Jim M.

      Jim M.
      Participant

      I was diagnosd stage 3C in 11/07. Instead of paranoia I  I call it a HEALTHY RESPECT for melanoma. I believe it's paranoia if it allows one to be immobile and not be able to function effectively. I know melanoma has changed me, mostly for the better. It caused me to research and make positive lifestyle changes. I respect the fact that melanoma is potentially fatal and so I do everything I can to advocate for myself. If that means seeing something different on my skin I'm concerned about you bet I'll see my derm. quick.

       As others have said it's easier  as time goes on but it is good to have a healthy respect for melanoma the rest of our lives. We cannot become complacent but we need to remain vigilant about our health. Others don't understand because they haven't had a disease like this.

      I also rely on my faith, talk to God, pray and know that He has healed me.

      Define it this way: A healthy respect for melanoma will cause you to advocate for your health by any means with the goal being your wellness.

      God Bless,

       Jim M.

        JerryfromFauq
        Participant

        So true Jim.

        JerryfromFauq
        Participant

        So true Jim.

        Mickster
        Participant

        Thank you all for your great advice,

         

        Its nice talking to people whom are goimg through the same thing!!…. I find that i can be a bit more difficult on those around me as i become alot moodier!!…. I no from what i am reading and advice i am getting from this website it will help me along…

         

        Best of luck to all.

         

        Mick

        Mickster
        Participant

        Thank you all for your great advice,

         

        Its nice talking to people whom are goimg through the same thing!!…. I find that i can be a bit more difficult on those around me as i become alot moodier!!…. I no from what i am reading and advice i am getting from this website it will help me along…

         

        Best of luck to all.

         

        Mick

Viewing 7 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.