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Pain Medication Suggestions

Forums General Melanoma Community Pain Medication Suggestions

  • Post
    Rocklove
    Participant

      Hi All,

      I have been struggling with some pain.. not severe but have been taking 600 mg of Ibuprofen 3 times per day  for the last few months and it has kept the pain at bay. I have refused to take anything from the opium family so far as I am still working a full time job and drive. The Nurse had warned me not to drive if I took stronger prescription drugs.

      Is there any medication that is milder on the bodies organs that are effective?

      Hi All,

      I have been struggling with some pain.. not severe but have been taking 600 mg of Ibuprofen 3 times per day  for the last few months and it has kept the pain at bay. I have refused to take anything from the opium family so far as I am still working a full time job and drive. The Nurse had warned me not to drive if I took stronger prescription drugs.

      Is there any medication that is milder on the bodies organs that are effective?

      I am also struggling with a high creatinine level that started in Sept @ 3.3 after 6 rounds of bio-chemo but has trended down to 1.7 last week.

      I am know in my 2nd dose of ipi.

      Any suggestions would be appreciated.

      Rocky (Stage IV Liver Mets)

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    • Replies
        LynnLuc
        Participant

          Hi Rocky, I am like you when it comes to pain meds…I would rather do other things instead of morphine etc etc…I switch from Tylenol to Aleve to Motrin…if my blood isn't thin- even aspirin. A doc told me that aspirin is really the best of the OTC  pain meds at relieving pain and Americans have forgotten it…

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          LynnLuc
          Participant

            Hi Rocky, I am like you when it comes to pain meds…I would rather do other things instead of morphine etc etc…I switch from Tylenol to Aleve to Motrin…if my blood isn't thin- even aspirin. A doc told me that aspirin is really the best of the OTC  pain meds at relieving pain and Americans have forgotten it…

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              Rocklove
              Participant

                Understood Lynn, But I am still worried about the NSAID family drugs which ibuprofen, naproxen, aspirin and some others are part of. I try to not take anything and it feels literally like a truck ran over me. Sore, achy and in pain.

                Also my creatinine level spiking up has got me worried.. thank goodness it is trending down.

                Rocky

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                Rocklove
                Participant

                  Understood Lynn, But I am still worried about the NSAID family drugs which ibuprofen, naproxen, aspirin and some others are part of. I try to not take anything and it feels literally like a truck ran over me. Sore, achy and in pain.

                  Also my creatinine level spiking up has got me worried.. thank goodness it is trending down.

                  Rocky

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                  Rocklove
                  Participant

                    I forgot to add worried about the Acetaminophen family drugs also, Tylenol etc

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                    Rocklove
                    Participant

                      I forgot to add worried about the Acetaminophen family drugs also, Tylenol etc

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                    Janner
                    Participant

                      One pain pill you might try is Tramadol (Ultram).  It is a synthetic narcotic.  It isn't nearly as strong as anything in the standard narcotic family.  In fact, it's considered mild enough that docs can call it into a pharmacy unlike the other narcotics.  I get sick taking any of the standard narcotics, but Tramadol works well for me when I need a little extra boost.  It is certainly a pill I would not have any trouble driving under or working under – I've done both.  I used to take it when I played tennis (terrible knee pain).  For me, it bridges the gap between prescription doses of ibuprofin and standard narcotics (which I won't take).

                      As far as pills being easier on the organs, I'm not sure you will get there with any NSAIDS.  My father also has some kidney issues and has needed consistent pain help for joint issues.  He has turned to Aleve because he doesn't have to take as much to control his pain, but I'm not sure it is any easier on kidneys/liver than any other NSAID. 

                      Best wishes,

                      Janner

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                      Janner
                      Participant

                        One pain pill you might try is Tramadol (Ultram).  It is a synthetic narcotic.  It isn't nearly as strong as anything in the standard narcotic family.  In fact, it's considered mild enough that docs can call it into a pharmacy unlike the other narcotics.  I get sick taking any of the standard narcotics, but Tramadol works well for me when I need a little extra boost.  It is certainly a pill I would not have any trouble driving under or working under – I've done both.  I used to take it when I played tennis (terrible knee pain).  For me, it bridges the gap between prescription doses of ibuprofin and standard narcotics (which I won't take).

                        As far as pills being easier on the organs, I'm not sure you will get there with any NSAIDS.  My father also has some kidney issues and has needed consistent pain help for joint issues.  He has turned to Aleve because he doesn't have to take as much to control his pain, but I'm not sure it is any easier on kidneys/liver than any other NSAID. 

                        Best wishes,

                        Janner

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                          Rocklove
                          Participant

                            Jan I appreciate the advice and will look into it.

                            Take Care… And thanks so much.

                            Rocky

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                            Rocklove
                            Participant

                              Jan I appreciate the advice and will look into it.

                              Take Care… And thanks so much.

                              Rocky

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                            EricNJill
                            Participant

                              Hi Rocky,

                              My husband was the same way.  He refused to take any pain medication.  Dr. Kirkwood prescribed him the Fentanyl Patch and it was a huge blessing!  It worked great and didn't make him drowsy or feel out of it.  It just basically blocked the pain.  They started him on 12.5 mcg every 3 days and now he's on 150 mcg every 3 days.  It worked miracles for him so I highly recommend it.  Good luck and I hope you are feeling better soon.

                              EricNJill In OH

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                              EricNJill
                              Participant

                                Hi Rocky,

                                My husband was the same way.  He refused to take any pain medication.  Dr. Kirkwood prescribed him the Fentanyl Patch and it was a huge blessing!  It worked great and didn't make him drowsy or feel out of it.  It just basically blocked the pain.  They started him on 12.5 mcg every 3 days and now he's on 150 mcg every 3 days.  It worked miracles for him so I highly recommend it.  Good luck and I hope you are feeling better soon.

                                EricNJill In OH

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                                  Rocklove
                                  Participant

                                    Jill. Do you know why the dosage went up with the Fentanyl patch?

                                    Curious.

                                    I will look in to it.

                                     

                                    Thanks so much.

                                    Rocky

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                                    Rocklove
                                    Participant

                                      Jill. Do you know why the dosage went up with the Fentanyl patch?

                                      Curious.

                                      I will look in to it.

                                       

                                      Thanks so much.

                                      Rocky

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                                      EricNJill
                                      Participant

                                        Hi Rocky,

                                        While on the patch his tumors would get worse and his cancer was progressing in his right leg so if he would get breakthrough pain they would then increase his dosage because the dosage he was on wouldn't be enough.  It was an increase over time.  He's been on the patch since June, 2010.  He worked full time as a Service Manager at Goodyear with a hundred tumors in his leg and as the tumors got bigger and he got new ones it became more painful for him so as his pain increased they would increase the micrograms of the patch. 

                                        It was a blessing!  Here is a picture of his leg changes from 11/13 to 12/27.  His leg is actually worse than this today.

                                        Jill

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                                        EricNJill
                                        Participant

                                          Hi Rocky,

                                          While on the patch his tumors would get worse and his cancer was progressing in his right leg so if he would get breakthrough pain they would then increase his dosage because the dosage he was on wouldn't be enough.  It was an increase over time.  He's been on the patch since June, 2010.  He worked full time as a Service Manager at Goodyear with a hundred tumors in his leg and as the tumors got bigger and he got new ones it became more painful for him so as his pain increased they would increase the micrograms of the patch. 

                                          It was a blessing!  Here is a picture of his leg changes from 11/13 to 12/27.  His leg is actually worse than this today.

                                          Jill

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                                          Rocklove
                                          Participant

                                            I understand now Jill, he has had a heck of a fight. Is Jack in treatment now since his Craniotomy. Most of my tumors are internal Liver, lymphnodes and I can't see. I do have a few on my right thigh area but nothing like what Jack has.

                                            I'll for sure check into the patch.

                                            I see why Jack is your Hero.

                                            Many Prayers and Thoughts for the both of you to win this battle.

                                            Rocky

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                                            Rocklove
                                            Participant

                                              I understand now Jill, he has had a heck of a fight. Is Jack in treatment now since his Craniotomy. Most of my tumors are internal Liver, lymphnodes and I can't see. I do have a few on my right thigh area but nothing like what Jack has.

                                              I'll for sure check into the patch.

                                              I see why Jack is your Hero.

                                              Many Prayers and Thoughts for the both of you to win this battle.

                                              Rocky

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                                            Vermont_Donna
                                            Participant

                                              Hi Rocky,

                                                 I DO take narcotics……just started on oxcycontin yesterday…..20mg, a dose every 12 hours, and my doctor wants me to take the oxcycodone (5mg with 325 mg of tylenol each pill) for "breakthrough" pain. I had been managed on vicadins for months, then the effectiveness of that wore off, then I went to methadone (5mg three times a day) and oxcycodone, and that helped for two months, but again, the effectiveness dimmed, so rather than up the methadone and use straight oxcycodone, no tylenol, we are trying the oxcycontin, etc as stated above. I have NEVER felt stoned or high….NEVER….I am able to drive, was able to work, never did the meds compromise my mental sharpness at all ( a higher dose of methadone did last winter tho). I have been told by a pain specialist that I am a rapid metabolizer of narcotics…..just the way my body and receptors work, still the pain control has been adequate (but not 100%). I just wanted to say narcotics are not across the board BAD. They can be addicting, but more for people who use them recreationally, not for people with REAL pain, like us. I have used the fentanyl patch also, which worked well. That was last year. My pain stems from two unhealed leg wounds, for 7 months, and the healing process is extremely slow, if practically non -existent.  You might want to seek out a "PAIN SPECIALIST" at your major medical center (Moffit right?) They can consult with your prescribing doctor, and help target the source of your pain and then what meds would work best.   Best of luck Rocky!

                                              Vermont_Donna

                                              stage 3a

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                                              Vermont_Donna
                                              Participant

                                                Hi Rocky,

                                                   I DO take narcotics……just started on oxcycontin yesterday…..20mg, a dose every 12 hours, and my doctor wants me to take the oxcycodone (5mg with 325 mg of tylenol each pill) for "breakthrough" pain. I had been managed on vicadins for months, then the effectiveness of that wore off, then I went to methadone (5mg three times a day) and oxcycodone, and that helped for two months, but again, the effectiveness dimmed, so rather than up the methadone and use straight oxcycodone, no tylenol, we are trying the oxcycontin, etc as stated above. I have NEVER felt stoned or high….NEVER….I am able to drive, was able to work, never did the meds compromise my mental sharpness at all ( a higher dose of methadone did last winter tho). I have been told by a pain specialist that I am a rapid metabolizer of narcotics…..just the way my body and receptors work, still the pain control has been adequate (but not 100%). I just wanted to say narcotics are not across the board BAD. They can be addicting, but more for people who use them recreationally, not for people with REAL pain, like us. I have used the fentanyl patch also, which worked well. That was last year. My pain stems from two unhealed leg wounds, for 7 months, and the healing process is extremely slow, if practically non -existent.  You might want to seek out a "PAIN SPECIALIST" at your major medical center (Moffit right?) They can consult with your prescribing doctor, and help target the source of your pain and then what meds would work best.   Best of luck Rocky!

                                                Vermont_Donna

                                                stage 3a

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                                                  Rocklove
                                                  Participant

                                                    I appreciate it Donna I know you have had a horrible time with your leg for a long time. I'll look into your suggestions.

                                                    Rocky

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                                                    Rocklove
                                                    Participant

                                                      I appreciate it Donna I know you have had a horrible time with your leg for a long time. I'll look into your suggestions.

                                                      Rocky

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                                                      Vermont_Donna
                                                      Participant

                                                        I hope you feel better really soon Rocky. I just wanted to tell you that using narcotics isnt always a bad thing.

                                                        Hugs,

                                                        Vermont_Donna

                                                        stage 3a

                                                        ps you and I are almost on the same round of ipi…my next (third dose) is this Wednesday 1/12

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                                                        Vermont_Donna
                                                        Participant

                                                          I hope you feel better really soon Rocky. I just wanted to tell you that using narcotics isnt always a bad thing.

                                                          Hugs,

                                                          Vermont_Donna

                                                          stage 3a

                                                          ps you and I are almost on the same round of ipi…my next (third dose) is this Wednesday 1/12

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                                                        MaryD
                                                        Participant

                                                          Hi Rocky – I'm sorry you are in pain and it really is important to keep it under control.   I actually take Tramadol regularly for fibromyalgia (though I have to say I tolerate pain meds quite well) and it does have fewer side effects, etc.

                                                          Have you talked to Dr. Weber about this?  Maybe he has some suggestions or can refer you to a pain specialist at Moffitt who may be able to help you come up with a solution that won't impede your ability to drive and work.  Managing pain is important because it can really wear you down.

                                                          My fibromyalgia got way worse after the pulsed IL-2 treatments in 2009 and I have had to really work on managing it – so I totally understand the challenge.

                                                          Hoping that you can get this under control soon …

                                                          Best regards,

                                                          Mary

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                                                            Rocklove
                                                            Participant

                                                              Thanks Mary… I'm going to bring it up to Weber to get into pain control. I will look into the Tramadol

                                                              Hope you are doing well.

                                                              Great to hear from you.

                                                              Rocky

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                                                              Rocklove
                                                              Participant

                                                                Thanks Mary… I'm going to bring it up to Weber to get into pain control. I will look into the Tramadol

                                                                Hope you are doing well.

                                                                Great to hear from you.

                                                                Rocky

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                                                              MaryD
                                                              Participant

                                                                Hi Rocky – I'm sorry you are in pain and it really is important to keep it under control.   I actually take Tramadol regularly for fibromyalgia (though I have to say I tolerate pain meds quite well) and it does have fewer side effects, etc.

                                                                Have you talked to Dr. Weber about this?  Maybe he has some suggestions or can refer you to a pain specialist at Moffitt who may be able to help you come up with a solution that won't impede your ability to drive and work.  Managing pain is important because it can really wear you down.

                                                                My fibromyalgia got way worse after the pulsed IL-2 treatments in 2009 and I have had to really work on managing it – so I totally understand the challenge.

                                                                Hoping that you can get this under control soon …

                                                                Best regards,

                                                                Mary

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                                                                Amy Busby
                                                                Participant

                                                                  I am doing much better with my new pain doc – he's got me at 75 mcg on the fentenyl patch but I think I will ask to go up.  I am take a rotating schedule of Norco and Dilaudid.  The Norco is like Vicodin but with less acetamenaphen.

                                                                  I have to take anti-nausea meds to take the narcotics but I have to do that with any pain pill – I'm an easy to throw up kinda patient.

                                                                  I like the patch.  It hasn't been knocking me out too much.  I am very against spending too much of my time zonked out, even if it means tolerating a slightly higher pain level.

                                                                  Amy

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                                                                  Amy Busby
                                                                  Participant

                                                                    I am doing much better with my new pain doc – he's got me at 75 mcg on the fentenyl patch but I think I will ask to go up.  I am take a rotating schedule of Norco and Dilaudid.  The Norco is like Vicodin but with less acetamenaphen.

                                                                    I have to take anti-nausea meds to take the narcotics but I have to do that with any pain pill – I'm an easy to throw up kinda patient.

                                                                    I like the patch.  It hasn't been knocking me out too much.  I am very against spending too much of my time zonked out, even if it means tolerating a slightly higher pain level.

                                                                    Amy

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                                                                    LynnLuc
                                                                    Participant

                                                                      How you doing Rocky? Just was thinking about you! I was wondering if they ever told you why they said you had the HLA and then said you didn't? How did they make such an error.

                                                                      I had mine tested when I first was diagnosed and then had my tumor tested soon after. It made things go a bit faster when it came to getting into trials although everyone thinks they need to redo their own tests..I can't help but wonder if they make money off of all the tests lol.

                                                                      I am still in the anti-pd-1 trial and finshed the 2 round in the second 12 week run. I believe the HLA type has nothing to do with the anti-pd-1 ( MDX 1106) and everything to do with the 6 injections of peptides I get each time.

                                                                      I would like to see the anti-pd-1 used in combination with other immunotherapy drugs.-Lynn

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                                                                      LynnLuc
                                                                      Participant

                                                                        How you doing Rocky? Just was thinking about you! I was wondering if they ever told you why they said you had the HLA and then said you didn't? How did they make such an error.

                                                                        I had mine tested when I first was diagnosed and then had my tumor tested soon after. It made things go a bit faster when it came to getting into trials although everyone thinks they need to redo their own tests..I can't help but wonder if they make money off of all the tests lol.

                                                                        I am still in the anti-pd-1 trial and finshed the 2 round in the second 12 week run. I believe the HLA type has nothing to do with the anti-pd-1 ( MDX 1106) and everything to do with the 6 injections of peptides I get each time.

                                                                        I would like to see the anti-pd-1 used in combination with other immunotherapy drugs.-Lynn

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