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No Primary,. BRAF +. , OPDIVO

Forums General Melanoma Community No Primary,. BRAF +. , OPDIVO

  • Post
    THMoore
    Participant
      Looking for patients that are BRAF + plus No Primary that have had success with OPDIVO. Can you please share your story. I need a little positivity after receiving my latest scans. Thanks Trent.
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        tedtell1
        Participant
          Hey Trent;
          I was diagnosed in 2018 (January) after having a large tumor removed from over my shoulder blade. (They thought is was a cyst, turns out I had had a mysterious primary that had spread via my blood). I started Opdivo and continued it until 06/2018. Had to discontinue due to colitis. I remain NED. I had colitis as I mentioned, but also lots of nagging health issues since. No cancer though! I worked the whole time I was being treated, just got tired and then the stomach got really bad, but worked through it all. I was really lucky as my tumor burden was pretty much nonexistent as they were able to dig everything out. Hope the treatment works for you!!
          Ted
            THMoore
            Participant
              Thanks. Are you BRAF +?
            caman
            Participant
              I was stage 2 for 2 years till stage 3 came along in March of 2020. Felt a small lump on my neck. Needle biopsy determined in was melanoma. I chose neoadjuvant therapy and started on keytruda right away. Within 2 weeks the lump on my neck felt a lot softer. In about 6 weeks it was about 90 percent gone. Before my 3rd infusion it was completely gone. My surgery to remove that nobe and the other nobes around it is set for July 31. Not sure what the pathology will show after the surgery. I’m hoping for the best, dead cancer cells. That would be the best case scenario. We shall see. Wishing you the best!.
                THMoore
                Participant
                  We’re you BRAF +. I just had my third infusion and no changes.
                tedtell1
                Participant
                  I am Braf positive, but to this point, not an issue as the Opdivo worked.
                  Ted
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