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no news is good news at the moment
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no news is good news at the moment

› Forums › General Melanoma Community › no news is good news at the moment

  • Post
    • June 30, 2012 at 12:01 am
    deardad
    Participant

      So dad had a CT scan on Wedneday and we get results on Monday. He has been on Temador for the last two months and has progression in the brain. As of two days ago he had a fall from loss of balance and is now complaining of a numb right foot. I rang the hospital and they ordered an MRI on the brain and spine that day. I can't tell you how frightening this all is. What a evil disease.

      Sorry to those fighting this battle too.

      Nahmi

      Daughter

      So dad had a CT scan on Wedneday and we get results on Monday. He has been on Temador for the last two months and has progression in the brain. As of two days ago he had a fall from loss of balance and is now complaining of a numb right foot. I rang the hospital and they ordered an MRI on the brain and spine that day. I can't tell you how frightening this all is. What a evil disease.

      Sorry to those fighting this battle too.

      Nahmi

      Daughter

    Viewing 2 reply threads
    • Replies
        • June 30, 2012 at 11:28 am
        MeNDave
        Participant

          Oh Nahmi, I wish I could give you a hug right now.  I know what your going through – Dave also took a fall on Wednesday.  It scared all of us.  I called his onc and they found out that his hemoglobin was low due to the chemo, so he got two units of blood which made him feel better.  I hope that the loss of balance is caused by something mundane and not the brain.

          I know how frightening it is – and I wish that none of us had to go through this.

          Many, many hugs,

          Maria

          • June 30, 2012 at 11:28 am
          MeNDave
          Participant

            Oh Nahmi, I wish I could give you a hug right now.  I know what your going through – Dave also took a fall on Wednesday.  It scared all of us.  I called his onc and they found out that his hemoglobin was low due to the chemo, so he got two units of blood which made him feel better.  I hope that the loss of balance is caused by something mundane and not the brain.

            I know how frightening it is – and I wish that none of us had to go through this.

            Many, many hugs,

            Maria

              • July 1, 2012 at 12:07 am
              deardad
              Participant

                Maria,

                A hug back to you. I'm glad in Dave's case it was the hemoglobin. Unfortunately I have a bad feeling about my dad though, he has no headaches but he's appetite is decreasing and I can see week by week his health is declining. I feel like I'm on a really scarey roller coaster but I can't close my eyes.

                Poor dad he's such a wonderful father, popa and husband and he's way too young to go now.

                Just stinks really.

                I will let you know how tomorrow goes. MRI on brain and spine as well as CT scans will be read to us. 

                xxx Nahmi

                • July 1, 2012 at 10:57 am
                benp
                Participant
                  Best of luck for that Nahmi.

                  Ben.

                  • July 1, 2012 at 11:12 am
                  deardad
                  Participant

                    Thanks Ben,

                    How did the SRS go? How are you doing?

                    Nahmi

                    • July 1, 2012 at 11:12 am
                    deardad
                    Participant

                      Thanks Ben,

                      How did the SRS go? How are you doing?

                      Nahmi

                      • July 1, 2012 at 11:12 am
                      deardad
                      Participant

                        Thanks Ben,

                        How did the SRS go? How are you doing?

                        Nahmi

                        • July 2, 2012 at 4:26 am
                        benp
                        Participant

                          I think it has gone well thanks – I have not yead had any follow up scans, though will in 2 weeks, so fingers crossed.

                          How was today for you?

                          Ben.

                          • July 2, 2012 at 4:26 am
                          benp
                          Participant

                            I think it has gone well thanks – I have not yead had any follow up scans, though will in 2 weeks, so fingers crossed.

                            How was today for you?

                            Ben.

                            • July 2, 2012 at 8:16 am
                            deardad
                            Participant

                              Not good, everythings grown. WBR did nothing and Temador neither. I asked about Gamma again and  he just dismisses it. I am asking for the MRI disk tomorrow and then calling Sydney again.

                              They only offered two other forms of chemo but even then said he wouldn't do them, so I guess that means we are at the end of the road? I'm not giving up just yet though.

                              I hope the gamma has killed that melanoma, positive vibes coming your way.

                              Take care Ben

                              Nahmi

                              • July 2, 2012 at 8:16 am
                              deardad
                              Participant

                                Not good, everythings grown. WBR did nothing and Temador neither. I asked about Gamma again and  he just dismisses it. I am asking for the MRI disk tomorrow and then calling Sydney again.

                                They only offered two other forms of chemo but even then said he wouldn't do them, so I guess that means we are at the end of the road? I'm not giving up just yet though.

                                I hope the gamma has killed that melanoma, positive vibes coming your way.

                                Take care Ben

                                Nahmi

                                • July 2, 2012 at 8:16 am
                                deardad
                                Participant

                                  Not good, everythings grown. WBR did nothing and Temador neither. I asked about Gamma again and  he just dismisses it. I am asking for the MRI disk tomorrow and then calling Sydney again.

                                  They only offered two other forms of chemo but even then said he wouldn't do them, so I guess that means we are at the end of the road? I'm not giving up just yet though.

                                  I hope the gamma has killed that melanoma, positive vibes coming your way.

                                  Take care Ben

                                  Nahmi

                                  • July 2, 2012 at 4:26 am
                                  benp
                                  Participant

                                    I think it has gone well thanks – I have not yead had any follow up scans, though will in 2 weeks, so fingers crossed.

                                    How was today for you?

                                    Ben.

                                    • July 1, 2012 at 10:57 am
                                    benp
                                    Participant
                                      Best of luck for that Nahmi.

                                      Ben.

                                      • July 1, 2012 at 10:57 am
                                      benp
                                      Participant
                                        Best of luck for that Nahmi.

                                        Ben.

                                        • July 1, 2012 at 12:07 am
                                        deardad
                                        Participant

                                          Maria,

                                          A hug back to you. I'm glad in Dave's case it was the hemoglobin. Unfortunately I have a bad feeling about my dad though, he has no headaches but he's appetite is decreasing and I can see week by week his health is declining. I feel like I'm on a really scarey roller coaster but I can't close my eyes.

                                          Poor dad he's such a wonderful father, popa and husband and he's way too young to go now.

                                          Just stinks really.

                                          I will let you know how tomorrow goes. MRI on brain and spine as well as CT scans will be read to us. 

                                          xxx Nahmi

                                          • July 1, 2012 at 12:07 am
                                          deardad
                                          Participant

                                            Maria,

                                            A hug back to you. I'm glad in Dave's case it was the hemoglobin. Unfortunately I have a bad feeling about my dad though, he has no headaches but he's appetite is decreasing and I can see week by week his health is declining. I feel like I'm on a really scarey roller coaster but I can't close my eyes.

                                            Poor dad he's such a wonderful father, popa and husband and he's way too young to go now.

                                            Just stinks really.

                                            I will let you know how tomorrow goes. MRI on brain and spine as well as CT scans will be read to us. 

                                            xxx Nahmi

                                          • June 30, 2012 at 11:28 am
                                          MeNDave
                                          Participant

                                            Oh Nahmi, I wish I could give you a hug right now.  I know what your going through – Dave also took a fall on Wednesday.  It scared all of us.  I called his onc and they found out that his hemoglobin was low due to the chemo, so he got two units of blood which made him feel better.  I hope that the loss of balance is caused by something mundane and not the brain.

                                            I know how frightening it is – and I wish that none of us had to go through this.

                                            Many, many hugs,

                                            Maria

                                        Viewing 2 reply threads
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