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No longer NED
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No longer NED

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  • Post
    • August 18, 2010 at 2:35 pm
    lhaley
    Participant

      Today should have been my 1 year NED anniversary….. Received a phone call that the fna was positive for melanoma.  I discovered a lump on my arm about 9 weeks ago (yikes). Since we were in the middle of our move I went to the scheduled oncology appointment to meet my new local Dr. (this was supposed to be a meet and get to know each other).  She scheduled a PET /CT which came back clear.  We then moved on to a surgeon who measured it with an ultrasound.  Came back a month later and measured again. It grew a tiny bit. FNA which now came back mel.

      Today should have been my 1 year NED anniversary….. Received a phone call that the fna was positive for melanoma.  I discovered a lump on my arm about 9 weeks ago (yikes). Since we were in the middle of our move I went to the scheduled oncology appointment to meet my new local Dr. (this was supposed to be a meet and get to know each other).  She scheduled a PET /CT which came back clear.  We then moved on to a surgeon who measured it with an ultrasound.  Came back a month later and measured again. It grew a tiny bit. FNA which now came back mel.

      Have a call into my mel specialist and all records have been faxed.  My one year cystoscopy is next week. 

      So, I'm back in the fight again and not very happy about it!

      Linda

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    • Replies
        • August 18, 2010 at 3:43 pm
        Sharon in Reno
        Participant

          Dear Linda,

          I'm so sorry your back in the fight again, that really sucks. The lump under my left arm is set for surgery Aug. 31 along with 2 new lesion's on my back right next to ther #4 rib that was cut in half. I've been having this crushing pain going on around my left rib and I hope this isn't related.. The pain is getting bad thank goodness for pain pills. love, Sharon in Reno Stage IV

          • August 18, 2010 at 4:36 pm
          joy_
          Participant

            Linda,

            I'm so sorry to read this.  Your posts here and your email to me (a couple of months ago when my husband started round two with mel) are encouragement to me.  I sense that you are a fighter and you will kick mel again!  I understand the feeling that comes with having to face this monster again.  Argh!  I will keep you in my prayers. 

            Stay strong & positive!

            Tracy

            • August 18, 2010 at 4:36 pm
            joy_
            Participant

              Linda,

              I'm so sorry to read this.  Your posts here and your email to me (a couple of months ago when my husband started round two with mel) are encouragement to me.  I sense that you are a fighter and you will kick mel again!  I understand the feeling that comes with having to face this monster again.  Argh!  I will keep you in my prayers. 

              Stay strong & positive!

              Tracy

              • August 18, 2010 at 5:00 pm
              Kimmer
              Participant

                Well Dangnabbit (!!!)

                I had a lump that first appeared in the incision line of my skin graft just before my 1 year appointmentt; Dr. Buzzkill at UAB said it was a cyst.  It disapprared and another (its twin?) appeared in a few months about 1.5 inches away.  Derm sent me for excision; tiny focal point of recurrent melanoma; negative PET/CT and negative wide excision.

                That was in April of 2006. 

                Been doin' fine ever since, so I hope this helps.

                Good luck to you Friend.

                Take good care, K.

                • August 18, 2010 at 5:04 pm
                dian in spokane
                Participant

                  Well…yikes girl! So..this is a sub Q eh? Maybe you can discuss harvesting and using it for some kind of treatment?

                  Keep us posted, you are in my thoughts.

                   

                  dian

                  • August 18, 2010 at 8:27 pm
                  Sharyn
                  Participant

                    Oh Linda, This sucks! The very same thing happened to me. I was to celebrate my first anniversary with NED on June 19, 2008, and the day before, I got the results of a recent biopsy on June 18, 2008 — positive.  And it's been one thing after another ever since. If there's anything I can help you with — treatments, advice, please don't hesitate to ask. I'm going in for a mastectomy tomorrow, but I'll bounce back within a few days, so feel free to email me if you want. Hang in there, girl! There are lots of options out there!

                    Hugs

                    Sharyn

                    Stage IV 

                    • August 19, 2010 at 12:20 am
                    ValinMtl
                    Participant

                      Oh no Linda!  What bad news, just when you were approaching your 1st year NED since the last battle.  You've been such a wonderful support for many of us on the board.  I wish you strength and energy to do this fight again!  I believe our ranks are slowly closing in on the beast and we'll put an end to it some day soon.  Val xx, Stage IV

                      • August 19, 2010 at 12:32 am
                      King
                      Participant

                        Linda,

                         

                        I'm so sorry to read this news.  Hopefully, your cysto will be fine and you'll just have to deal with the lump on your arm.  Keep us posted.  It just never ends…

                         

                        Stay Strong
                        King

                        Stage IV 7/05 Liver mets

                        • October 21, 2010 at 6:11 pm
                        LynnLuc
                        Participant

                          Praying for your swift return to NED! I believe in Miracles!-Lynn

                          • October 21, 2010 at 6:11 pm
                          LynnLuc
                          Participant

                            Praying for your swift return to NED! I believe in Miracles!-Lynn

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