› Forums › General Melanoma Community › new twist on rash
- This topic has 12 replies, 3 voices, and was last updated 11 years, 5 months ago by
Bubbles.
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- November 26, 2012 at 3:09 am
To recap, I was an unsuccessful Yervoy patient and went almost straight into an anti-PD1 trial. I did the 2 rounds of infusions every 2 weeks for 12 weeks each, ending almost 3 months ago. So I am a week away from my first maintenance infusion. I have had intermittent itching ever since the Yervoy. It subsided somewhat but has been mostly on my shins/calves. The last few days it has appeared on my upper arms worse in the tricep area. Are others experiencing a nomadic rash and/or a rash lingering this long after no infusions for 3 months?
To recap, I was an unsuccessful Yervoy patient and went almost straight into an anti-PD1 trial. I did the 2 rounds of infusions every 2 weeks for 12 weeks each, ending almost 3 months ago. So I am a week away from my first maintenance infusion. I have had intermittent itching ever since the Yervoy. It subsided somewhat but has been mostly on my shins/calves. The last few days it has appeared on my upper arms worse in the tricep area. Are others experiencing a nomadic rash and/or a rash lingering this long after no infusions for 3 months? Any opinions on whether this is still a Yervoy side-effect or more likely from the anti-PD1? Dan
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- November 26, 2012 at 3:15 am
Girrrrrl! I mean….Dan! I've been itching for day, weeks, months, years….. To be serious….It comes and goes…but, it is just part of my world. I am now almost 2 years into my anti-PD1 trial…the past year and one half of which have been every 3 months. What's weird…is that sometimes most of the itching (and arthralgias and fatigue and mouth ulcers) ocurr just after infusion…but sometimes…as in this round…are huge flares right before I am to go back to Moffitt for more bug juice. Hang in there. I'm not sure topical hydrocortisone is that helpful, though I use it. Benadryl at night helps. Best, Celeste
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- November 26, 2012 at 1:36 pm
Hi Bubbles! When on ipi, I went through a lot of hydrocortisone (&$$$) but I found that relief was short lived and that cheaper skin lotion worked just as well. I favor a generic brand similar to Gold Bond, but others will do. I get scanned at Moffitt a week from today with treatment & Dr. visit the next day. Dan
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- November 26, 2012 at 1:36 pm
Hi Bubbles! When on ipi, I went through a lot of hydrocortisone (&$$$) but I found that relief was short lived and that cheaper skin lotion worked just as well. I favor a generic brand similar to Gold Bond, but others will do. I get scanned at Moffitt a week from today with treatment & Dr. visit the next day. Dan
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- November 26, 2012 at 1:36 pm
Hi Bubbles! When on ipi, I went through a lot of hydrocortisone (&$$$) but I found that relief was short lived and that cheaper skin lotion worked just as well. I favor a generic brand similar to Gold Bond, but others will do. I get scanned at Moffitt a week from today with treatment & Dr. visit the next day. Dan
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- November 26, 2012 at 3:15 am
Girrrrrl! I mean….Dan! I've been itching for day, weeks, months, years….. To be serious….It comes and goes…but, it is just part of my world. I am now almost 2 years into my anti-PD1 trial…the past year and one half of which have been every 3 months. What's weird…is that sometimes most of the itching (and arthralgias and fatigue and mouth ulcers) ocurr just after infusion…but sometimes…as in this round…are huge flares right before I am to go back to Moffitt for more bug juice. Hang in there. I'm not sure topical hydrocortisone is that helpful, though I use it. Benadryl at night helps. Best, Celeste
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- November 26, 2012 at 3:15 am
Girrrrrl! I mean….Dan! I've been itching for day, weeks, months, years….. To be serious….It comes and goes…but, it is just part of my world. I am now almost 2 years into my anti-PD1 trial…the past year and one half of which have been every 3 months. What's weird…is that sometimes most of the itching (and arthralgias and fatigue and mouth ulcers) ocurr just after infusion…but sometimes…as in this round…are huge flares right before I am to go back to Moffitt for more bug juice. Hang in there. I'm not sure topical hydrocortisone is that helpful, though I use it. Benadryl at night helps. Best, Celeste
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- November 26, 2012 at 3:27 am
Hi Dan,
I don't have know if what you're expereriencing is like my experienes or different. I've been treated with IL-2 and Yervoy bu not anti-PD1.
I get rashes on predominantly on my calves, fingers, and (less so) back of elbows. These are all areas that get a lot of contact — and therefore irritation? — with clothing as I walk, tops of my fingers rubbing against the insides of pockets, etc. all day long.The finger rashes started around when I moved into a house with pets, 3-4 years before any immunotherapy.
But the leg rashes became really noticable at first during IL-2, and then changed slightly in character but continued as strongly after IPI.
I use odorless/dye-less detergent. But I still end up resorting to corticosteroid creams (e.g., desenide), or at other times another type of non-steroidal ointment (Protopic) to keep the outbreaks under control, especially on my calves and fingers.
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- November 26, 2012 at 3:27 am
Hi Dan,
I don't have know if what you're expereriencing is like my experienes or different. I've been treated with IL-2 and Yervoy bu not anti-PD1.
I get rashes on predominantly on my calves, fingers, and (less so) back of elbows. These are all areas that get a lot of contact — and therefore irritation? — with clothing as I walk, tops of my fingers rubbing against the insides of pockets, etc. all day long.The finger rashes started around when I moved into a house with pets, 3-4 years before any immunotherapy.
But the leg rashes became really noticable at first during IL-2, and then changed slightly in character but continued as strongly after IPI.
I use odorless/dye-less detergent. But I still end up resorting to corticosteroid creams (e.g., desenide), or at other times another type of non-steroidal ointment (Protopic) to keep the outbreaks under control, especially on my calves and fingers.
-
- November 26, 2012 at 3:27 am
Hi Dan,
I don't have know if what you're expereriencing is like my experienes or different. I've been treated with IL-2 and Yervoy bu not anti-PD1.
I get rashes on predominantly on my calves, fingers, and (less so) back of elbows. These are all areas that get a lot of contact — and therefore irritation? — with clothing as I walk, tops of my fingers rubbing against the insides of pockets, etc. all day long.The finger rashes started around when I moved into a house with pets, 3-4 years before any immunotherapy.
But the leg rashes became really noticable at first during IL-2, and then changed slightly in character but continued as strongly after IPI.
I use odorless/dye-less detergent. But I still end up resorting to corticosteroid creams (e.g., desenide), or at other times another type of non-steroidal ointment (Protopic) to keep the outbreaks under control, especially on my calves and fingers.
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