The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

new treatment questions

Forums General Melanoma Community new treatment questions

  • Post
    sharmon
    Participant

    Hi, everyone, 

    Hi, everyone, 

    Brent is my husband and we are sitting at MD anderson as I write.  He has been on the GSK MEK trial for 14 months and progressed last scan.  Now he doctors want to place him on the MEK chemo combination with Alimta which is approved for lung cancer.  Or we can wait for the MEK /PI3k trial to open sometime in the future here at MDA.  Today after making a few calls to GSK  I found that a Nashville location has the trial we want MEK / PI3K.  Not sure if he can get in.   I don't know what to do or think.  He has had chemo agents in the past and they really knock the Hell out of him physically. 

    Does anyone have any input???

    Thanks for taking the time to read this.

    Sharmon

    Loading spinner
Viewing 1 reply thread
  • Replies
      Jerry from Cape Cod
      Participant

      Sharon,

      Contact the folks and Nashville and see about openings, qualifications, etc.  If there are openings it might be best to get an evaluation as soon as you can.  A recommendation from your treating Onc at MD Anderson might really help.

      If he is accepted then you have a decision to make otherwise you could just be on a wait list at MD Anderson for an unknown future trial.

      My best to you and Brent.  Think of you both often.

      Jerry from Cape Cod

      Loading spinner
        Terra
        Participant

        Mt husband is on this trial in Toronto – he has on ly been on it for two weeks so I can speak too much about it other than that he has a rash on his face that is being controlled and generally feels good.  Emily Pen's husband was on it for several months and did quite well you may want to contact her about their experience.  My husband was initially tested for the NRAS gene mutation – approx 20% of mel patients have it and Derek was positive for this mutation (he is BRAF negative but you can also have the NRAS and be BARF positive too I think) – anyway our onc has been very excited about this trial for us since last summer.  I wish you luck in your decision.

        Loading spinner
        Terra
        Participant

        Mt husband is on this trial in Toronto – he has on ly been on it for two weeks so I can speak too much about it other than that he has a rash on his face that is being controlled and generally feels good.  Emily Pen's husband was on it for several months and did quite well you may want to contact her about their experience.  My husband was initially tested for the NRAS gene mutation – approx 20% of mel patients have it and Derek was positive for this mutation (he is BRAF negative but you can also have the NRAS and be BARF positive too I think) – anyway our onc has been very excited about this trial for us since last summer.  I wish you luck in your decision.

        Loading spinner
      Jerry from Cape Cod
      Participant

      Sharon,

      Contact the folks and Nashville and see about openings, qualifications, etc.  If there are openings it might be best to get an evaluation as soon as you can.  A recommendation from your treating Onc at MD Anderson might really help.

      If he is accepted then you have a decision to make otherwise you could just be on a wait list at MD Anderson for an unknown future trial.

      My best to you and Brent.  Think of you both often.

      Jerry from Cape Cod

      Loading spinner
Viewing 1 reply thread
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.