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New Brain Mets after 6 week scan- isn’t that fast?
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New Brain Mets after 6 week scan- isn’t that fast?

› Forums › General Melanoma Community › New Brain Mets after 6 week scan- isn’t that fast?

  • Post
    • December 27, 2014 at 2:07 pm
    Kdw2012
    Participant

      It has been six weeks since they found 3 brain tumors.

      I started having hand tremors headaches thought problems and they decided to re-scan BRAIN MRI.

      Now on 12/23/14 they say there are 9 new ones, this seems like it is happening so fast and aggressive, they start Whole Brain Radiation on 12/24/14 

      i just wonder where do we go from here?

      i am mid dosing on the Yervoy with two treatments left, my radiation oncologist wants to hold off on next dose until radiation is finishes in 10 days.

      last PET/CT of body showed no tumors, but they are going to repeat that Jan 10

       

    Viewing 5 reply threads
    • Replies
        • December 28, 2014 at 12:42 am
        arthurjedi007
        Participant

          With radiation and pd1 I personally and I have read of others where I got my radiation on the day before and day after just not the day of radiation. I assume yervoy could be the same. The reason I say is the anecdotal evidence combining immunotherapy with radiation. You can see Celeste's post a few days ago with my name in the title contains information about it. If not I suggest trying to get the yervoy within 24 hours of your last radiation. 

          It sounds like you have a great radiation doc to get you started so quick.

          Also after yervoy I would suggest getting on one of the pd1s.

          hopefully the radiation will work good for you and the yervoy will kick in and you will be Ned before you know it.

          Artie

          • December 28, 2014 at 12:42 am
          arthurjedi007
          Participant

            With radiation and pd1 I personally and I have read of others where I got my radiation on the day before and day after just not the day of radiation. I assume yervoy could be the same. The reason I say is the anecdotal evidence combining immunotherapy with radiation. You can see Celeste's post a few days ago with my name in the title contains information about it. If not I suggest trying to get the yervoy within 24 hours of your last radiation. 

            It sounds like you have a great radiation doc to get you started so quick.

            Also after yervoy I would suggest getting on one of the pd1s.

            hopefully the radiation will work good for you and the yervoy will kick in and you will be Ned before you know it.

            Artie

            • December 28, 2014 at 12:42 am
            arthurjedi007
            Participant

              With radiation and pd1 I personally and I have read of others where I got my radiation on the day before and day after just not the day of radiation. I assume yervoy could be the same. The reason I say is the anecdotal evidence combining immunotherapy with radiation. You can see Celeste's post a few days ago with my name in the title contains information about it. If not I suggest trying to get the yervoy within 24 hours of your last radiation. 

              It sounds like you have a great radiation doc to get you started so quick.

              Also after yervoy I would suggest getting on one of the pd1s.

              hopefully the radiation will work good for you and the yervoy will kick in and you will be Ned before you know it.

              Artie

              • December 28, 2014 at 9:09 pm
              kylez
              Participant

                Kim,

                When I had stuff in my brain it grew much faster than stuff has elsewhere (lungs, lymph nodes). 

                Good wishes — I hope WBR is going OK. Be as strong as you need to be. 

                Artie's advice and suggestions sound good to me.

                – Kyle

                • December 28, 2014 at 9:09 pm
                kylez
                Participant

                  Kim,

                  When I had stuff in my brain it grew much faster than stuff has elsewhere (lungs, lymph nodes). 

                  Good wishes — I hope WBR is going OK. Be as strong as you need to be. 

                  Artie's advice and suggestions sound good to me.

                  – Kyle

                  • December 28, 2014 at 9:09 pm
                  kylez
                  Participant

                    Kim,

                    When I had stuff in my brain it grew much faster than stuff has elsewhere (lungs, lymph nodes). 

                    Good wishes — I hope WBR is going OK. Be as strong as you need to be. 

                    Artie's advice and suggestions sound good to me.

                    – Kyle

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