› Forums › General Melanoma Community › Need some more info.
- This topic has 42 replies, 4 voices, and was last updated 11 years, 11 months ago by Josh.
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- February 3, 2013 at 3:55 pm
Hi there, this is my first post but need some help. Two years ago I had wide excision of my left upper arm for 2 melanoma sites (in situ). My arm has been hurting and burning on occasion, but has increased lately. I was wondering if anyone else has had pain so far out from surgery? I should also mention, I’ve already had a new mole appear right on the incision taken off which was negative. Thanks for listeningHi there, this is my first post but need some help. Two years ago I had wide excision of my left upper arm for 2 melanoma sites (in situ). My arm has been hurting and burning on occasion, but has increased lately. I was wondering if anyone else has had pain so far out from surgery? I should also mention, I’ve already had a new mole appear right on the incision taken off which was negative. Thanks for listening
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- February 3, 2013 at 9:14 pm
Hey Holmes,
If it was me and I had insurance, I'd get a damn scan. Why the heck not? Yeah, there's radiation in the scan, but as someone who started out at stage 1 with a simple mole and very slowly progressed to stage IV, I'd say it's better to get a little radiation and know all is cool rather than letting something which might be there continue to grow. Chances are very good that it you get scanned and there's nothing there two years after your excision, then they'll never be anything.
Just my two cents. Best of luck!
Josh
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- February 3, 2013 at 9:14 pm
Hey Holmes,
If it was me and I had insurance, I'd get a damn scan. Why the heck not? Yeah, there's radiation in the scan, but as someone who started out at stage 1 with a simple mole and very slowly progressed to stage IV, I'd say it's better to get a little radiation and know all is cool rather than letting something which might be there continue to grow. Chances are very good that it you get scanned and there's nothing there two years after your excision, then they'll never be anything.
Just my two cents. Best of luck!
Josh
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- February 3, 2013 at 11:36 pm
Pardon the error, have no idea?? I did not even fill out a profile. The two that were removed were right next to each other and were insitu, I will have to take another look at the path report bc the more research I gain the more questions I have. I do remember the surgeon telling me that she almost was going to do lymph nodes just to be safe but pathology was not enough to do so. Again questions keep rising. -
- February 3, 2013 at 11:36 pm
Pardon the error, have no idea?? I did not even fill out a profile. The two that were removed were right next to each other and were insitu, I will have to take another look at the path report bc the more research I gain the more questions I have. I do remember the surgeon telling me that she almost was going to do lymph nodes just to be safe but pathology was not enough to do so. Again questions keep rising. -
- February 4, 2013 at 1:40 am
Hey Anonymous,What are you, the cancer police? You fact checking my profile? Listen, I’m stage 4 and a half, but I’ll fight your cancer ass right now. I hope you realize that I’m kidding 🙂 Seriously, I was stage 1 at my diagnosis (had a mole removed, and then a very minor surgery), and then the cancer didn’t come back for 8 years (in the same spot). And then 4 years ago, all the real exciting cancer stuff started. Just seemed simpler to skip the mole removal and 8 year gap, however, sleuth that you are, you shed light on my evil, devious plans 🙂 Gadzooks, foiled again!
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- February 4, 2013 at 1:40 am
Hey Anonymous,What are you, the cancer police? You fact checking my profile? Listen, I’m stage 4 and a half, but I’ll fight your cancer ass right now. I hope you realize that I’m kidding 🙂 Seriously, I was stage 1 at my diagnosis (had a mole removed, and then a very minor surgery), and then the cancer didn’t come back for 8 years (in the same spot). And then 4 years ago, all the real exciting cancer stuff started. Just seemed simpler to skip the mole removal and 8 year gap, however, sleuth that you are, you shed light on my evil, devious plans 🙂 Gadzooks, foiled again!
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- February 4, 2013 at 1:40 am
Hey Anonymous,What are you, the cancer police? You fact checking my profile? Listen, I’m stage 4 and a half, but I’ll fight your cancer ass right now. I hope you realize that I’m kidding 🙂 Seriously, I was stage 1 at my diagnosis (had a mole removed, and then a very minor surgery), and then the cancer didn’t come back for 8 years (in the same spot). And then 4 years ago, all the real exciting cancer stuff started. Just seemed simpler to skip the mole removal and 8 year gap, however, sleuth that you are, you shed light on my evil, devious plans 🙂 Gadzooks, foiled again!
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- February 4, 2013 at 3:03 pm
Anonymous,The doctors said that if my “mole with clear margins” didn’t come back within two years there was like a 97% chance that it wouldn’t come back at all. Thus, when I write “chances are very good…they’ll never be anything,” I’m referring to the extremely high percentage chance that if you have a small cancerous mole removed and the cancer doesn’t come back or spread in two years, numerically speaking there’s a very good chance it won’t. “Chances are very good” is the key phrase here. Perhaps you just overlooked it. Though, as you probably recall, I was the one who suggested getting a scan just in case. In other words, I’m trying to help this person to avoid my mistake. Could my advice be wrong? Absolutely, but we all know that any answer we get here is just one person’s (and perhaps their doctors’) opinions, and as long as those answers are given in the spirit of helping, that’s all we can hope for. Which brings me to the obvious question: what exactly are you trying to do here? Because it seems to me that you’re either a bully or an a__hole and are just hoping to find errors which have nothing to do with the question at hand. Is it really relevant to this particular question that my profile didn’t list every detail of my treatment while my answer did? Of course not. Are you genuinely confused that I said “chances are very good,” while my particular cancer still came back? Of course not. You’re just being a weirdo. So, perhaps you should remind yourself that we’re all trying to help each other here, so maybe knock off the passive-aggressive hostility. Or if you want to be your most dickish self, perhaps find a forum not populated with cancer patients. This a place for helping people.
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- February 4, 2013 at 3:19 pm
I appreciate any and all information and am educated enough to know that everyone’s stories are different. Thank you for the information. It has taken along time for me to post anywhere any questions regarding myself. But I don’t think this is for me, we should be supporting each other. -
- February 4, 2013 at 3:19 pm
I appreciate any and all information and am educated enough to know that everyone’s stories are different. Thank you for the information. It has taken along time for me to post anywhere any questions regarding myself. But I don’t think this is for me, we should be supporting each other. -
- February 4, 2013 at 3:19 pm
I appreciate any and all information and am educated enough to know that everyone’s stories are different. Thank you for the information. It has taken along time for me to post anywhere any questions regarding myself. But I don’t think this is for me, we should be supporting each other. -
- February 4, 2013 at 3:35 pm
Hey Anonymous,I just reread what I wrote and would like to apologize for it. I know we’re all under a lot of stress, and all we can do here is try to help each other as kindly and compassionately as possible. I wish you the best of luck with your health and with your loved ones health.
Josh
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- February 4, 2013 at 3:35 pm
Hey Anonymous,I just reread what I wrote and would like to apologize for it. I know we’re all under a lot of stress, and all we can do here is try to help each other as kindly and compassionately as possible. I wish you the best of luck with your health and with your loved ones health.
Josh
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- February 4, 2013 at 3:35 pm
Hey Anonymous,I just reread what I wrote and would like to apologize for it. I know we’re all under a lot of stress, and all we can do here is try to help each other as kindly and compassionately as possible. I wish you the best of luck with your health and with your loved ones health.
Josh
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- February 4, 2013 at 3:03 pm
Anonymous,The doctors said that if my “mole with clear margins” didn’t come back within two years there was like a 97% chance that it wouldn’t come back at all. Thus, when I write “chances are very good…they’ll never be anything,” I’m referring to the extremely high percentage chance that if you have a small cancerous mole removed and the cancer doesn’t come back or spread in two years, numerically speaking there’s a very good chance it won’t. “Chances are very good” is the key phrase here. Perhaps you just overlooked it. Though, as you probably recall, I was the one who suggested getting a scan just in case. In other words, I’m trying to help this person to avoid my mistake. Could my advice be wrong? Absolutely, but we all know that any answer we get here is just one person’s (and perhaps their doctors’) opinions, and as long as those answers are given in the spirit of helping, that’s all we can hope for. Which brings me to the obvious question: what exactly are you trying to do here? Because it seems to me that you’re either a bully or an a__hole and are just hoping to find errors which have nothing to do with the question at hand. Is it really relevant to this particular question that my profile didn’t list every detail of my treatment while my answer did? Of course not. Are you genuinely confused that I said “chances are very good,” while my particular cancer still came back? Of course not. You’re just being a weirdo. So, perhaps you should remind yourself that we’re all trying to help each other here, so maybe knock off the passive-aggressive hostility. Or if you want to be your most dickish self, perhaps find a forum not populated with cancer patients. This a place for helping people.
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- February 4, 2013 at 3:03 pm
Anonymous,The doctors said that if my “mole with clear margins” didn’t come back within two years there was like a 97% chance that it wouldn’t come back at all. Thus, when I write “chances are very good…they’ll never be anything,” I’m referring to the extremely high percentage chance that if you have a small cancerous mole removed and the cancer doesn’t come back or spread in two years, numerically speaking there’s a very good chance it won’t. “Chances are very good” is the key phrase here. Perhaps you just overlooked it. Though, as you probably recall, I was the one who suggested getting a scan just in case. In other words, I’m trying to help this person to avoid my mistake. Could my advice be wrong? Absolutely, but we all know that any answer we get here is just one person’s (and perhaps their doctors’) opinions, and as long as those answers are given in the spirit of helping, that’s all we can hope for. Which brings me to the obvious question: what exactly are you trying to do here? Because it seems to me that you’re either a bully or an a__hole and are just hoping to find errors which have nothing to do with the question at hand. Is it really relevant to this particular question that my profile didn’t list every detail of my treatment while my answer did? Of course not. Are you genuinely confused that I said “chances are very good,” while my particular cancer still came back? Of course not. You’re just being a weirdo. So, perhaps you should remind yourself that we’re all trying to help each other here, so maybe knock off the passive-aggressive hostility. Or if you want to be your most dickish self, perhaps find a forum not populated with cancer patients. This a place for helping people.
-
- February 3, 2013 at 11:36 pm
Pardon the error, have no idea?? I did not even fill out a profile. The two that were removed were right next to each other and were insitu, I will have to take another look at the path report bc the more research I gain the more questions I have. I do remember the surgeon telling me that she almost was going to do lymph nodes just to be safe but pathology was not enough to do so. Again questions keep rising. -
- February 4, 2013 at 1:20 pm
That’s what makes me so mad about the beast! There is watch and wait. I’m not very good at that. If my arm did not hurt, if I did not have two insitu already ( right next to each other) multiple atypical nevus, and a ton of “funky” moles (my derms word not mine). I can not go three months without him removing atleast two due to changes from prior visit. There is just wait for now, we preach being proactive and being sun safe but for beginners like myself there is not much more out there. Please don’t get me wrong, I am blessed I am where I am, I’m just worried due to the pain in my arm I guess. -
- February 4, 2013 at 1:20 pm
That’s what makes me so mad about the beast! There is watch and wait. I’m not very good at that. If my arm did not hurt, if I did not have two insitu already ( right next to each other) multiple atypical nevus, and a ton of “funky” moles (my derms word not mine). I can not go three months without him removing atleast two due to changes from prior visit. There is just wait for now, we preach being proactive and being sun safe but for beginners like myself there is not much more out there. Please don’t get me wrong, I am blessed I am where I am, I’m just worried due to the pain in my arm I guess. -
- February 4, 2013 at 1:20 pm
That’s what makes me so mad about the beast! There is watch and wait. I’m not very good at that. If my arm did not hurt, if I did not have two insitu already ( right next to each other) multiple atypical nevus, and a ton of “funky” moles (my derms word not mine). I can not go three months without him removing atleast two due to changes from prior visit. There is just wait for now, we preach being proactive and being sun safe but for beginners like myself there is not much more out there. Please don’t get me wrong, I am blessed I am where I am, I’m just worried due to the pain in my arm I guess.
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- February 3, 2013 at 9:14 pm
Hey Holmes,
If it was me and I had insurance, I'd get a damn scan. Why the heck not? Yeah, there's radiation in the scan, but as someone who started out at stage 1 with a simple mole and very slowly progressed to stage IV, I'd say it's better to get a little radiation and know all is cool rather than letting something which might be there continue to grow. Chances are very good that it you get scanned and there's nothing there two years after your excision, then they'll never be anything.
Just my two cents. Best of luck!
Josh
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- February 3, 2013 at 9:30 pm
It's unlikely you'll get scans for two in situ melanomas, just a fyi. Insurance most likely won't cover that.
I've had problems with scars that lasted several years, but I can't say I had a new problem start several years out. Maybe the latest biopsy triggered something with the nerves. Is it possible you could have done anything else to bother the area. Lift or pull something?
I think it's highly unlikely to be related to your melanoma given the two in situs. Ihe WLEs do cut nerves and take out a chunk of tissue which can cause nerve problems. But that typically heals over time, not get worse. If you continue to have the area bother you, it's certainly worth bring up the problem with your doctor.
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- February 3, 2013 at 9:57 pm
Thank you for the information, I think I will call the doctor Monday. I was thinking about a scan myself but wondering if they would cover. The mole re-occurrence was about six months ago. Thought it might be nerve issues but this past week it has really bothered me. I worry about that one renegade cell just like everyone else.Thanks, Heather
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- February 3, 2013 at 9:57 pm
Thank you for the information, I think I will call the doctor Monday. I was thinking about a scan myself but wondering if they would cover. The mole re-occurrence was about six months ago. Thought it might be nerve issues but this past week it has really bothered me. I worry about that one renegade cell just like everyone else.Thanks, Heather
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- February 3, 2013 at 9:57 pm
Thank you for the information, I think I will call the doctor Monday. I was thinking about a scan myself but wondering if they would cover. The mole re-occurrence was about six months ago. Thought it might be nerve issues but this past week it has really bothered me. I worry about that one renegade cell just like everyone else.Thanks, Heather
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- February 3, 2013 at 10:01 pm
Thank you for the information, I think I will call the doctor Monday. I was thinking about a scan myself but wondering if they would cover. The mole re-occurrence was about six months ago. Thought it might be nerve issues but this past week it has really bothered me. I worry about that one renegade cell just like everyone else.Thanks, Heather
-
- February 3, 2013 at 10:01 pm
Thank you for the information, I think I will call the doctor Monday. I was thinking about a scan myself but wondering if they would cover. The mole re-occurrence was about six months ago. Thought it might be nerve issues but this past week it has really bothered me. I worry about that one renegade cell just like everyone else.Thanks, Heather
-
- February 3, 2013 at 10:01 pm
Thank you for the information, I think I will call the doctor Monday. I was thinking about a scan myself but wondering if they would cover. The mole re-occurrence was about six months ago. Thought it might be nerve issues but this past week it has really bothered me. I worry about that one renegade cell just like everyone else.Thanks, Heather
-
- February 3, 2013 at 9:30 pm
It's unlikely you'll get scans for two in situ melanomas, just a fyi. Insurance most likely won't cover that.
I've had problems with scars that lasted several years, but I can't say I had a new problem start several years out. Maybe the latest biopsy triggered something with the nerves. Is it possible you could have done anything else to bother the area. Lift or pull something?
I think it's highly unlikely to be related to your melanoma given the two in situs. Ihe WLEs do cut nerves and take out a chunk of tissue which can cause nerve problems. But that typically heals over time, not get worse. If you continue to have the area bother you, it's certainly worth bring up the problem with your doctor.
-
- February 3, 2013 at 9:30 pm
It's unlikely you'll get scans for two in situ melanomas, just a fyi. Insurance most likely won't cover that.
I've had problems with scars that lasted several years, but I can't say I had a new problem start several years out. Maybe the latest biopsy triggered something with the nerves. Is it possible you could have done anything else to bother the area. Lift or pull something?
I think it's highly unlikely to be related to your melanoma given the two in situs. Ihe WLEs do cut nerves and take out a chunk of tissue which can cause nerve problems. But that typically heals over time, not get worse. If you continue to have the area bother you, it's certainly worth bring up the problem with your doctor.
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Tagged: cutaneous melanoma
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