Need help convincing ONC to do Yervoy
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Need help convincing ONC to do Yervoy

› Forums › General Melanoma Community › Need help convincing ONC to do Yervoy

  • Post
    • December 31, 2011 at 12:16 am
    Rona
    Participant

    I have been going back and forth with my local ONC to get a treatment that will stop my mets coming back so frequently.

    I have had 11 surgeries since March 2011 to remove spots. I have been on DTIC and it is not doing the job. But…. my ONC is so scared of the side effects of Yervoy he won't even consider it. So, I harassed him into refering me to the learning university in AR. I need to convince this doc (if he will see me) that Yervoy is the next step. 

    I have been going back and forth with my local ONC to get a treatment that will stop my mets coming back so frequently.

    I have had 11 surgeries since March 2011 to remove spots. I have been on DTIC and it is not doing the job. But…. my ONC is so scared of the side effects of Yervoy he won't even consider it. So, I harassed him into refering me to the learning university in AR. I need to convince this doc (if he will see me) that Yervoy is the next step. 

    I don't want to be on DTIC for the rest of my life and still have surgeries. Geez, is that to much to ask….

     

    I need your advise on what I should say. 

     

    Rona

Viewing 5 reply threads
  • Replies
      • December 31, 2011 at 3:22 am
      JerryfromFauq
      Participant

      Have you contacted one of the sites that were involved in the clinical trial testing?  One of those sites would be experienced in watching for the side effects, catching and responding to negative side effects earlier.

        • December 31, 2011 at 3:54 am
        Rona
        Participant
        Jerry-
        Yes, I have contacted the only place in my state that has done a trial for Yervoy. I have finally talked my local Onc to refer me to the hospital for a consultation. If this new onc agrees to see me I don’t want to blow it. I have been trying to convince my local Onc for about 4 months just for the referral. It’s very frustrating, I’m sure everyone on this site understands.
        Rona
        • December 31, 2011 at 3:54 am
        Rona
        Participant
        Jerry-
        Yes, I have contacted the only place in my state that has done a trial for Yervoy. I have finally talked my local Onc to refer me to the hospital for a consultation. If this new onc agrees to see me I don’t want to blow it. I have been trying to convince my local Onc for about 4 months just for the referral. It’s very frustrating, I’m sure everyone on this site understands.
        Rona
        • December 31, 2011 at 5:47 am
        kylez
        Participant

        Rona,

        Good for you for beinb persistent. If you can get to see a melanoma-specialing oncs in my experience that is a major, major boost. Here's a list from http://www.aimatmelanoma.org/aim-for-answers/path-to-getting-a-diagnosis/finding-the-right-doctor.html of melanoma specialists in AR: 

        Arkansas Oncology Association

        1000 N University Ave.

        Little Rock, AR  72207

        501-661-0060

        http://arkansascancercenters.com

        Thomas B. Sneed, MD

         

        Arkansas Oncology Association

        3401 Springhill Dr., Ste 490

        North Little Rock, AR  72117

        501-686-8250

        http://arkansascancercenters.com

        Syed Mazher, MD

        Omer Khalil, MD

         

        Arkansas Oncology Association

        180 Medical Park Pl.

        Hot Springs, AR  71901

        501-625-3334

        http://arkansascancercenters.com

        Neerha Bharany, MD

         

        Winthrop Paul Rockefeller Cancer Institute

        University of Arkansas

        4301 West Markham St.

        Little Rock, AR 72205

        501-686-7000

        http://cancer.uams.edu

        Laura Fulper Hutchins, MD

        Paulette Mehta, MD

        • December 31, 2011 at 5:47 am
        kylez
        Participant

        Rona,

        Good for you for beinb persistent. If you can get to see a melanoma-specialing oncs in my experience that is a major, major boost. Here's a list from http://www.aimatmelanoma.org/aim-for-answers/path-to-getting-a-diagnosis/finding-the-right-doctor.html of melanoma specialists in AR: 

        Arkansas Oncology Association

        1000 N University Ave.

        Little Rock, AR  72207

        501-661-0060

        http://arkansascancercenters.com

        Thomas B. Sneed, MD

         

        Arkansas Oncology Association

        3401 Springhill Dr., Ste 490

        North Little Rock, AR  72117

        501-686-8250

        http://arkansascancercenters.com

        Syed Mazher, MD

        Omer Khalil, MD

         

        Arkansas Oncology Association

        180 Medical Park Pl.

        Hot Springs, AR  71901

        501-625-3334

        http://arkansascancercenters.com

        Neerha Bharany, MD

         

        Winthrop Paul Rockefeller Cancer Institute

        University of Arkansas

        4301 West Markham St.

        Little Rock, AR 72205

        501-686-7000

        http://cancer.uams.edu

        Laura Fulper Hutchins, MD

        Paulette Mehta, MD

        • December 31, 2011 at 5:47 am
        kylez
        Participant

        Rona,

        Good for you for beinb persistent. If you can get to see a melanoma-specialing oncs in my experience that is a major, major boost. Here's a list from http://www.aimatmelanoma.org/aim-for-answers/path-to-getting-a-diagnosis/finding-the-right-doctor.html of melanoma specialists in AR: 

        Arkansas Oncology Association

        1000 N University Ave.

        Little Rock, AR  72207

        501-661-0060

        http://arkansascancercenters.com

        Thomas B. Sneed, MD

         

        Arkansas Oncology Association

        3401 Springhill Dr., Ste 490

        North Little Rock, AR  72117

        501-686-8250

        http://arkansascancercenters.com

        Syed Mazher, MD

        Omer Khalil, MD

         

        Arkansas Oncology Association

        180 Medical Park Pl.

        Hot Springs, AR  71901

        501-625-3334

        http://arkansascancercenters.com

        Neerha Bharany, MD

         

        Winthrop Paul Rockefeller Cancer Institute

        University of Arkansas

        4301 West Markham St.

        Little Rock, AR 72205

        501-686-7000

        http://cancer.uams.edu

        Laura Fulper Hutchins, MD

        Paulette Mehta, MD

        • December 31, 2011 at 3:54 am
        Rona
        Participant
        Jerry-
        Yes, I have contacted the only place in my state that has done a trial for Yervoy. I have finally talked my local Onc to refer me to the hospital for a consultation. If this new onc agrees to see me I don’t want to blow it. I have been trying to convince my local Onc for about 4 months just for the referral. It’s very frustrating, I’m sure everyone on this site understands.
        Rona
      • December 31, 2011 at 3:22 am
      JerryfromFauq
      Participant

      Have you contacted one of the sites that were involved in the clinical trial testing?  One of those sites would be experienced in watching for the side effects, catching and responding to negative side effects earlier.

      • December 31, 2011 at 3:22 am
      JerryfromFauq
      Participant

      Have you contacted one of the sites that were involved in the clinical trial testing?  One of those sites would be experienced in watching for the side effects, catching and responding to negative side effects earlier.

      • December 31, 2011 at 5:16 pm
      Gene_S
      Participant

      Rona,

      I believe that treatments are based on what "stage" your melanoma is.

      Your profile states that it is unknown. A suggestion for you is to ask your

      oncologist for this number and maybe you would get some better advise

      from the good folks here.

      Best wishes,

      Gene (stage IV)

      • December 31, 2011 at 5:16 pm
      Gene_S
      Participant

      Rona,

      I believe that treatments are based on what "stage" your melanoma is.

      Your profile states that it is unknown. A suggestion for you is to ask your

      oncologist for this number and maybe you would get some better advise

      from the good folks here.

      Best wishes,

      Gene (stage IV)

      • December 31, 2011 at 5:16 pm
      Gene_S
      Participant

      Rona,

      I believe that treatments are based on what "stage" your melanoma is.

      Your profile states that it is unknown. A suggestion for you is to ask your

      oncologist for this number and maybe you would get some better advise

      from the good folks here.

      Best wishes,

      Gene (stage IV)

Viewing 5 reply threads
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