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Need advice

Forums General Melanoma Community Need advice

  • Post
    Toby0987
    Participant

      I'm 3b since 2013, had a small bout of pap thyroid cancer but had it ablated and now that is gone. I'm at mayo and doing watch and wait. Went for my 6 month pet in April 2016 and radiologist called me at 9pm and told me to get to er because he thought I was having an appendicitis. I told him I was staying the night across the street from mayo hospital and have no physical symptoms of appendicitis. I went to my Mel onc the following morning and he said it may be a smoldering appendicitis but wasn't sure. He had me come back for another pet in 2 months (June 2016). My LDH in my blood work went from 185 to 222-still in limits but 225 is top normal (I think it is LDH-whatever the tumor marker test is) well did the pet last week and the lymph node next to my appendix is down in size and my white count is back to normal (I had a cold last pet). But my appendix and area around it shows pet activity still. Dr said it is not as bright as Mel normally would show but said he couldn't rule it out. He said he couldn't do a fine needle because it is bad to perforate the appendix. He referred me to the general surgeon there and surgeon said in so many words-melanoma has been known to go to a persons gi tract before but she didn't know either. She also wasn't sure if it is appendicitis then why is it still active after 2 months and there are no symptoms of appendicitis. My Mel onc is supposed to call me next week/the gen surgeon said maybe an elective appendectomy if it doesn't resolve itself. So what do you think. The Mel onc (dr mcwilliams) is open to my thoughts and will shape care based on my wishes. Do I insist on surgery? Let it marinate? Do another pet in 3 mths or 6 mths? Ultrasound? Any other ideas? Head in sand? I'm 42 and in shape. 

       

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        blessd4x
        Participant

          None of us are in your shoes. But if it were me, or my husband who is battling stage IV, i would insist it out.  If its glowing, get it out.  Its so aggressive and a sneaky cancer, I just wouldnt chance it.  God bless you and praying for you.

           

          blessd4x
          Participant

            None of us are in your shoes. But if it were me, or my husband who is battling stage IV, i would insist it out.  If its glowing, get it out.  Its so aggressive and a sneaky cancer, I just wouldnt chance it.  God bless you and praying for you.

             

            blessd4x
            Participant

              None of us are in your shoes. But if it were me, or my husband who is battling stage IV, i would insist it out.  If its glowing, get it out.  Its so aggressive and a sneaky cancer, I just wouldnt chance it.  God bless you and praying for you.

               

              youngann
              Participant

                I think, if it were me, I woud have it taken out. Then again, I'm still at the point that, if it would cure me, they could take my whole right arm.

                Good luck.

                youngann
                Participant

                  I think, if it were me, I woud have it taken out. Then again, I'm still at the point that, if it would cure me, they could take my whole right arm.

                  Good luck.

                  youngann
                  Participant

                    I think, if it were me, I woud have it taken out. Then again, I'm still at the point that, if it would cure me, they could take my whole right arm.

                    Good luck.

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