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My Turn For Scanxiety
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My Turn For Scanxiety

› Forums › General Melanoma Community › My Turn For Scanxiety

  • Post
    • October 31, 2016 at 7:27 pm
    youngann
    Participant

      I'll be having my 4th Ipi infusion this coming Wednesday and, today, I had my second set of CT scans. I'll be seing my oncologist on 11/17 so probably won't know the results until then.

      Fingers, toes and everything else crossed in the hopes of good clear scans.

      Ann

       

    Viewing 11 reply threads
    • Replies
        • October 31, 2016 at 8:46 pm
        Tim–MRF
        Guest

          17 days is a long time to wait. Hope you can keep the anxiety in check and focus on getting through the 4th infusion. Let's hope it is all working.

           

          Tim–MRF

          • October 31, 2016 at 8:46 pm
          Tim–MRF
          Guest

            17 days is a long time to wait. Hope you can keep the anxiety in check and focus on getting through the 4th infusion. Let's hope it is all working.

             

            Tim–MRF

            • October 31, 2016 at 8:46 pm
            Tim–MRF
            Guest

              17 days is a long time to wait. Hope you can keep the anxiety in check and focus on getting through the 4th infusion. Let's hope it is all working.

               

              Tim–MRF

              • October 31, 2016 at 10:16 pm
              cancersnewnormal
              Participant

                Oh wow… That is a long time to carry around that kind of anxiety! I have my scans done locally, but my oncology team is 180 miles away… Sooooo… I'm always asked to bring an image disc with me. The radiology staff can typically get me a report and image disc by the next day. Interpretation of the report isn't always clear, but we've learned quite a bit over the last 3 years. Ha! We also downloaded software onto our laptop called OsiriX lite. It allows us to view the DICOM formatted images that come on the disc…. CT's, X-rays, MRI's, PET's,… Etc. Lung lesions are pretty easily identified, but anything in the guts takes a bit more of a savvy eye. Most often, the radiologist who does the report, will create a collage image of any areas of suspicion, so we've learned what to go back and look for. It may create more questions and/or panic than answers… But it also makes for some really cool "selfies"! HA HA HA! I used to send my oncologist screen shots of the side by side comparison from one scan to the next. ; ) 

                  • November 1, 2016 at 12:26 pm
                  youngann
                  Participant

                    I too have scans done locally then travel to my onc. and will pick up the cd tomorrow after my infusion appointment. Never thought of trying to read the cd myself, perhaps I'll try it tomorrow.

                    Ann

                    • November 1, 2016 at 12:26 pm
                    youngann
                    Participant

                      I too have scans done locally then travel to my onc. and will pick up the cd tomorrow after my infusion appointment. Never thought of trying to read the cd myself, perhaps I'll try it tomorrow.

                      Ann

                      • November 1, 2016 at 12:26 pm
                      youngann
                      Participant

                        I too have scans done locally then travel to my onc. and will pick up the cd tomorrow after my infusion appointment. Never thought of trying to read the cd myself, perhaps I'll try it tomorrow.

                        Ann

                        • November 1, 2016 at 6:49 pm
                        Polymath
                        Participant

                          Hi Ann,

                          I have been trying to read my scans for the last couple of years.  I must give the radiologists credit for detecting things, that even my doctors can't see.  It has been very interesting and I'm starting to really get the hang of it.  Software included even lets you use measuring tools so you can compare to the radiologists report.  In that regard, you must also get the copy of radiologist report to help you understand what you are seeing and unless trained in medicine, a lot of googling terms as parts of the body and organs all have their own medical names.  I've been lucky to never have to wait long for doctors consult, I think having the scans to study in the meantime would lessen that scanxiety.  My turn again this Friday,

                          Gary

                          • November 1, 2016 at 6:49 pm
                          Polymath
                          Participant

                            Hi Ann,

                            I have been trying to read my scans for the last couple of years.  I must give the radiologists credit for detecting things, that even my doctors can't see.  It has been very interesting and I'm starting to really get the hang of it.  Software included even lets you use measuring tools so you can compare to the radiologists report.  In that regard, you must also get the copy of radiologist report to help you understand what you are seeing and unless trained in medicine, a lot of googling terms as parts of the body and organs all have their own medical names.  I've been lucky to never have to wait long for doctors consult, I think having the scans to study in the meantime would lessen that scanxiety.  My turn again this Friday,

                            Gary

                            • November 1, 2016 at 6:49 pm
                            Polymath
                            Participant

                              Hi Ann,

                              I have been trying to read my scans for the last couple of years.  I must give the radiologists credit for detecting things, that even my doctors can't see.  It has been very interesting and I'm starting to really get the hang of it.  Software included even lets you use measuring tools so you can compare to the radiologists report.  In that regard, you must also get the copy of radiologist report to help you understand what you are seeing and unless trained in medicine, a lot of googling terms as parts of the body and organs all have their own medical names.  I've been lucky to never have to wait long for doctors consult, I think having the scans to study in the meantime would lessen that scanxiety.  My turn again this Friday,

                              Gary

                            • October 31, 2016 at 10:16 pm
                            cancersnewnormal
                            Participant

                              Oh wow… That is a long time to carry around that kind of anxiety! I have my scans done locally, but my oncology team is 180 miles away… Sooooo… I'm always asked to bring an image disc with me. The radiology staff can typically get me a report and image disc by the next day. Interpretation of the report isn't always clear, but we've learned quite a bit over the last 3 years. Ha! We also downloaded software onto our laptop called OsiriX lite. It allows us to view the DICOM formatted images that come on the disc…. CT's, X-rays, MRI's, PET's,… Etc. Lung lesions are pretty easily identified, but anything in the guts takes a bit more of a savvy eye. Most often, the radiologist who does the report, will create a collage image of any areas of suspicion, so we've learned what to go back and look for. It may create more questions and/or panic than answers… But it also makes for some really cool "selfies"! HA HA HA! I used to send my oncologist screen shots of the side by side comparison from one scan to the next. ; ) 

                              • October 31, 2016 at 10:16 pm
                              cancersnewnormal
                              Participant

                                Oh wow… That is a long time to carry around that kind of anxiety! I have my scans done locally, but my oncology team is 180 miles away… Sooooo… I'm always asked to bring an image disc with me. The radiology staff can typically get me a report and image disc by the next day. Interpretation of the report isn't always clear, but we've learned quite a bit over the last 3 years. Ha! We also downloaded software onto our laptop called OsiriX lite. It allows us to view the DICOM formatted images that come on the disc…. CT's, X-rays, MRI's, PET's,… Etc. Lung lesions are pretty easily identified, but anything in the guts takes a bit more of a savvy eye. Most often, the radiologist who does the report, will create a collage image of any areas of suspicion, so we've learned what to go back and look for. It may create more questions and/or panic than answers… But it also makes for some really cool "selfies"! HA HA HA! I used to send my oncologist screen shots of the side by side comparison from one scan to the next. ; ) 

                                • October 31, 2016 at 10:47 pm
                                laulamb
                                Participant

                                  Youngann, 

                                  Our experiences w Melanoma are almost the same.  I too am seeing Dr Schucter (love her!) and did 4 infusions of ipi 3mg … I will have scans on Friday!  

                                  You are in my thoughts!  

                                  • October 31, 2016 at 10:47 pm
                                  laulamb
                                  Participant

                                    Youngann, 

                                    Our experiences w Melanoma are almost the same.  I too am seeing Dr Schucter (love her!) and did 4 infusions of ipi 3mg … I will have scans on Friday!  

                                    You are in my thoughts!  

                                    • October 31, 2016 at 10:47 pm
                                    laulamb
                                    Participant

                                      Youngann, 

                                      Our experiences w Melanoma are almost the same.  I too am seeing Dr Schucter (love her!) and did 4 infusions of ipi 3mg … I will have scans on Friday!  

                                      You are in my thoughts!  

                                      • November 1, 2016 at 12:09 pm
                                      miaka618
                                      Participant

                                        Oh boy, that is a long time! Time to stock up on chocolate ice cream! 😉

                                          • November 1, 2016 at 12:28 pm
                                          youngann
                                          Participant

                                            lol…under normal circumstances, yes. But, unfortunately, I'm very nauseated for about 2 weeks after my infusion and can really only face eating chicken. My poor husband is so sick of eating chicken!

                                            Ann

                                            • November 1, 2016 at 12:28 pm
                                            youngann
                                            Participant

                                              lol…under normal circumstances, yes. But, unfortunately, I'm very nauseated for about 2 weeks after my infusion and can really only face eating chicken. My poor husband is so sick of eating chicken!

                                              Ann

                                              • November 1, 2016 at 12:31 pm
                                              miaka618
                                              Participant

                                                That is the sadest thing I have heard all day. At least chicken can be prepared so many different ways! 

                                                April 

                                                • November 1, 2016 at 12:31 pm
                                                miaka618
                                                Participant

                                                  That is the sadest thing I have heard all day. At least chicken can be prepared so many different ways! 

                                                  April 

                                                  • November 1, 2016 at 9:16 pm
                                                  youngann
                                                  Participant

                                                    Even sadder than you think, April. This time, I'll be recovering from only eating chciken, just in time to eat turkey!!

                                                    • November 1, 2016 at 9:16 pm
                                                    youngann
                                                    Participant

                                                      Even sadder than you think, April. This time, I'll be recovering from only eating chciken, just in time to eat turkey!!

                                                      • November 1, 2016 at 9:16 pm
                                                      youngann
                                                      Participant

                                                        Even sadder than you think, April. This time, I'll be recovering from only eating chciken, just in time to eat turkey!!

                                                        • November 1, 2016 at 12:31 pm
                                                        miaka618
                                                        Participant

                                                          That is the sadest thing I have heard all day. At least chicken can be prepared so many different ways! 

                                                          April 

                                                          • November 1, 2016 at 12:28 pm
                                                          youngann
                                                          Participant

                                                            lol…under normal circumstances, yes. But, unfortunately, I'm very nauseated for about 2 weeks after my infusion and can really only face eating chicken. My poor husband is so sick of eating chicken!

                                                            Ann

                                                          • November 1, 2016 at 12:09 pm
                                                          miaka618
                                                          Participant

                                                            Oh boy, that is a long time! Time to stock up on chocolate ice cream! 😉

                                                            • November 1, 2016 at 12:09 pm
                                                            miaka618
                                                            Participant

                                                              Oh boy, that is a long time! Time to stock up on chocolate ice cream! 😉

                                                          Viewing 11 reply threads
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