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multiparter

This topic has 2 replies, 2 voices, and was last updated 3 months, 3 weeks ago by tkoss.

Post

- August 11, 2024 at 12:26 pm
- Quote
tkoss
Participant
was told I was stage 4 since last summer…….2 weeks ago i was told “not so much” …it’s either a miracle or my doc has lost his mind

the good news: he is leaving UT Southwestern next week. Was he run out of town? I dunno and i doubt they would say.
bad news: he is leaving me with no referral to another onc at UTSW

he handed my case to the onc surgeon who u would not be surprised plans to cut

whatever there is ,,,,,enlarged LN in or near my colon…..colonospy did not reveal if they are cancerous.

can they actually run a tube up u and take samples and then say they don’t show anything….sort means they aren’t cancer, doesn’t it

which is what onc said 2 weeeks later after he told me I was stage 4 ….the meds were working and there is no indication any enlarged LN are cancerous….so he would discontinue opvido reasoning opvido has done its job.
Then he didn’t cancel infusion , or at least it’s still scheduled on MyChart.

my question: do i have time to screw around with UTSW while a possible cancerous LN percolates in my belly,

switching clinics is not simple.

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- - August 13, 2024 at 4:17 pm
  - Quote
  ed williams
  Participant
  Tkoss, last post you put up I suggested putting up full PET-ct scan report and CT- scan report so others with experience could help you out interpret the scan results. That is if you are interested in getting some clarity on your present situation.
- - August 13, 2024 at 6:38 pm
  - Quote
  tkoss
  Participant
  heh ed …i appreciate what u are saying …but the fact of the matter is UT Southwestern Cancer squad is wreckless with their patients…UT = Unviversity of Texas, so it not a clinic in Des Moines
  
  here is what is I sent today via My Chart….i have no idea what will happen
  
  to: UT Southwestern Dallas via MyChart
  
  “the last thing Homsi said to me was that I was no longer in need of immo. Big surprise to me . Then he left for Syracuse.
  
  He NEVER said he would refer me to a replacement and didn’t.
  
  Now My Chart says my immo treatment carries on with Yang. I guess he replaces Homsi…I am not quite sure.
  
  Polanco(onc surgeon) told me over a jerky Zoom call that he wanted to resect my colon.
  
  I simply asked for the path report indicating if there is cancer in my colon so i could make an informed descison
  
  No response yet from Poloanco.
  
  That was 2 days ago.
  
  I am a patient who is seriously confused and being neglected.
  
  copy this to Legal

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