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Hi Jacquie, So sorry to hear about your diagnosis. My mom has anal mucosal melanoma, so not that relevant to you, but I do remember that her melanoma was not pigmented, which is why it was misdiagnosed for such a long time. There is another forum on facebook that has a lot of mucosal melanoma patients and some people might be able to share more information: https://www.facebook.com/groups/906485416088740/
I don't remember there being anyone who has the same primary as you, but it doesn't hurt to ask around!
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