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Mucosal Melonoma

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    • August 1, 2017 at 8:07 am
    Jacquie
    Participant

      Has anyone else had a primary Melonoma on their Eustachian tube? The melanoma had also metastisied to two lymph nodes in my neck. The melanoma was not pigmented, is this unusual?

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        • August 1, 2017 at 5:18 pm
        Cindyco
        Participant

          Hi Jacquie, So sorry to hear about your diagnosis.  My mom has anal mucosal melanoma, so not that relevant to you, but I do remember that her melanoma was not pigmented, which is why it was misdiagnosed for such a long time.  There is another forum on facebook that has a lot of mucosal melanoma patients and some people might be able to share more information: https://www.facebook.com/groups/906485416088740/

          I don't remember there being anyone who has the same primary as you, but it doesn't hurt to ask around!

          • August 3, 2017 at 8:39 pm
          Becky
          Participant

            My sons melanoma was on the top of his tongue…not pigmented either. 

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