The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Mucosal Melonoma

Forums Mucosal Melanoma Community Mucosal Melonoma

  • Post
    Jacquie
    Participant

      Has anyone else had a primary Melonoma on their Eustachian tube? The melanoma had also metastisied to two lymph nodes in my neck. The melanoma was not pigmented, is this unusual?

    Viewing 1 reply thread
    • Replies
        Cindyco
        Participant

          Hi Jacquie, So sorry to hear about your diagnosis.  My mom has anal mucosal melanoma, so not that relevant to you, but I do remember that her melanoma was not pigmented, which is why it was misdiagnosed for such a long time.  There is another forum on facebook that has a lot of mucosal melanoma patients and some people might be able to share more information: https://www.facebook.com/groups/906485416088740/

          I don't remember there being anyone who has the same primary as you, but it doesn't hurt to ask around!

          Becky
          Participant

            My sons melanoma was on the top of his tongue…not pigmented either. 

        Viewing 1 reply thread
        • You must be logged in to reply to this topic.
        About the MRF Patient Forum

        The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

        The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.