Mucosal Melanoma Patients – You are not alone
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Mucosal Melanoma Patients – You are not alone

› Forums › Mucosal Melanoma Community › Mucosal Melanoma Patients – You are not alone

  • Post
    • June 21, 2016 at 6:24 pm
    hawaii marcus
    Participant

    Aloha, my name is Marcus Reimel, and a 3 yr survivor of Sinonasal Mucosal Melanoma in Honolulu, Hawaii. I started with these MPIP boards in 2013, and also joined a private FaceBook support group specifically for MM patients and caregivers.  

    If anyone wants to join the private FaceBook group, please go to FaceBook and reach out to me.

    You are not alone with the 1% of MM out there, so please feel free to comment, email me or Facebook me.

     

    Aloha from Honolulu!

Viewing 8 reply threads
  • Replies
      • June 21, 2016 at 6:26 pm
      hawaii marcus
      Participant

      Sorry, didn't realize my email was private if you go to my info; it is marcusreimel at gmail.com please replace the " at " with the @

       

      Aloha

        • June 22, 2016 at 3:12 am
        CHD
        Participant

        Hi Marcus,

        I did join the FB group for awhile.  Wonderful group of people, but so much alternative/New Age type stuff being promoted.  I have some issues with the New Age beliefs that we create our own illnesses (guilt inducing to patients already dealing with a society who guilts people over cancer diagnoses) and so many posts on alternative treatments that are not backed by research (nutrition and otherwise), but otherwise it is a great group.  It is wonderful that you are reaching out.  It is a lonely disease by the sheer absence of numbers.  Apart from the New Agey beliefs, the sharing of personal stories and treatments, etc., makes the group a healthy and supportive place to be – a very good thing!

        Good health to you, Marcus!

        C

        • June 22, 2016 at 4:35 am
        hawaii marcus
        Participant

        Thanks for your comments, and good health to you also!!

         

         

        • June 22, 2016 at 4:35 am
        hawaii marcus
        Participant

        Thanks for your comments, and good health to you also!!

         

         

        • June 22, 2016 at 4:35 am
        hawaii marcus
        Participant

        Thanks for your comments, and good health to you also!!

         

         

        • June 22, 2016 at 3:12 am
        CHD
        Participant

        Hi Marcus,

        I did join the FB group for awhile.  Wonderful group of people, but so much alternative/New Age type stuff being promoted.  I have some issues with the New Age beliefs that we create our own illnesses (guilt inducing to patients already dealing with a society who guilts people over cancer diagnoses) and so many posts on alternative treatments that are not backed by research (nutrition and otherwise), but otherwise it is a great group.  It is wonderful that you are reaching out.  It is a lonely disease by the sheer absence of numbers.  Apart from the New Agey beliefs, the sharing of personal stories and treatments, etc., makes the group a healthy and supportive place to be – a very good thing!

        Good health to you, Marcus!

        C

        • June 22, 2016 at 3:12 am
        CHD
        Participant

        Hi Marcus,

        I did join the FB group for awhile.  Wonderful group of people, but so much alternative/New Age type stuff being promoted.  I have some issues with the New Age beliefs that we create our own illnesses (guilt inducing to patients already dealing with a society who guilts people over cancer diagnoses) and so many posts on alternative treatments that are not backed by research (nutrition and otherwise), but otherwise it is a great group.  It is wonderful that you are reaching out.  It is a lonely disease by the sheer absence of numbers.  Apart from the New Agey beliefs, the sharing of personal stories and treatments, etc., makes the group a healthy and supportive place to be – a very good thing!

        Good health to you, Marcus!

        C

      • June 21, 2016 at 6:26 pm
      hawaii marcus
      Participant

      Sorry, didn't realize my email was private if you go to my info; it is marcusreimel at gmail.com please replace the " at " with the @

       

      Aloha

      • June 21, 2016 at 6:26 pm
      hawaii marcus
      Participant

      Sorry, didn't realize my email was private if you go to my info; it is marcusreimel at gmail.com please replace the " at " with the @

       

      Aloha

      • June 22, 2016 at 4:47 pm
      Becky
      Participant

      Thank you Marcus. I follow your blog and always am happy to see you doing well.

      My son is 28 next week and is 7 years out from a stage 3 MM dx! ( his was oral…tongue…rare among the rare)

      • June 22, 2016 at 4:47 pm
      Becky
      Participant

      Thank you Marcus. I follow your blog and always am happy to see you doing well.

      My son is 28 next week and is 7 years out from a stage 3 MM dx! ( his was oral…tongue…rare among the rare)

      • June 22, 2016 at 4:47 pm
      Becky
      Participant

      Thank you Marcus. I follow your blog and always am happy to see you doing well.

      My son is 28 next week and is 7 years out from a stage 3 MM dx! ( his was oral…tongue…rare among the rare)

      • June 22, 2016 at 9:53 pm
      IvanaDim
      Participant
      What is the name of the FB group page? I am allready registered in one…

      Thanks!

        • June 29, 2016 at 12:59 am
        hawaii marcus
        Participant

        Mucosal Melanoma Warriors on Facebook.

        Yes, I believe you are in with us IvanaDim

        • June 29, 2016 at 12:59 am
        hawaii marcus
        Participant

        Mucosal Melanoma Warriors on Facebook.

        Yes, I believe you are in with us IvanaDim

        • June 29, 2016 at 12:59 am
        hawaii marcus
        Participant

        Mucosal Melanoma Warriors on Facebook.

        Yes, I believe you are in with us IvanaDim

      • June 22, 2016 at 9:53 pm
      IvanaDim
      Participant
      What is the name of the FB group page? I am allready registered in one…

      Thanks!

      • June 22, 2016 at 9:53 pm
      IvanaDim
      Participant
      What is the name of the FB group page? I am allready registered in one…

      Thanks!

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