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Mucosal Melanoma Patients – You are not alone
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Mucosal Melanoma Patients – You are not alone

› Forums › Mucosal Melanoma Community › Mucosal Melanoma Patients – You are not alone

  • Post
    • June 21, 2016 at 6:24 pm
    hawaii marcus
    Participant

      Aloha, my name is Marcus Reimel, and a 3 yr survivor of Sinonasal Mucosal Melanoma in Honolulu, Hawaii. I started with these MPIP boards in 2013, and also joined a private FaceBook support group specifically for MM patients and caregivers.  

      If anyone wants to join the private FaceBook group, please go to FaceBook and reach out to me.

      You are not alone with the 1% of MM out there, so please feel free to comment, email me or Facebook me.

       

      Aloha from Honolulu!

    Viewing 8 reply threads
    • Replies
        • June 21, 2016 at 6:26 pm
        hawaii marcus
        Participant

          Sorry, didn't realize my email was private if you go to my info; it is marcusreimel at gmail.com please replace the " at " with the @

           

          Aloha

          • June 21, 2016 at 6:26 pm
          hawaii marcus
          Participant

            Sorry, didn't realize my email was private if you go to my info; it is marcusreimel at gmail.com please replace the " at " with the @

             

            Aloha

              • June 22, 2016 at 3:12 am
              CHD
              Participant

                Hi Marcus,

                I did join the FB group for awhile.  Wonderful group of people, but so much alternative/New Age type stuff being promoted.  I have some issues with the New Age beliefs that we create our own illnesses (guilt inducing to patients already dealing with a society who guilts people over cancer diagnoses) and so many posts on alternative treatments that are not backed by research (nutrition and otherwise), but otherwise it is a great group.  It is wonderful that you are reaching out.  It is a lonely disease by the sheer absence of numbers.  Apart from the New Agey beliefs, the sharing of personal stories and treatments, etc., makes the group a healthy and supportive place to be – a very good thing!

                Good health to you, Marcus!

                C

                • June 22, 2016 at 4:35 am
                hawaii marcus
                Participant

                  Thanks for your comments, and good health to you also!!

                   

                   

                  • June 22, 2016 at 4:35 am
                  hawaii marcus
                  Participant

                    Thanks for your comments, and good health to you also!!

                     

                     

                    • June 22, 2016 at 4:35 am
                    hawaii marcus
                    Participant

                      Thanks for your comments, and good health to you also!!

                       

                       

                      • June 22, 2016 at 3:12 am
                      CHD
                      Participant

                        Hi Marcus,

                        I did join the FB group for awhile.  Wonderful group of people, but so much alternative/New Age type stuff being promoted.  I have some issues with the New Age beliefs that we create our own illnesses (guilt inducing to patients already dealing with a society who guilts people over cancer diagnoses) and so many posts on alternative treatments that are not backed by research (nutrition and otherwise), but otherwise it is a great group.  It is wonderful that you are reaching out.  It is a lonely disease by the sheer absence of numbers.  Apart from the New Agey beliefs, the sharing of personal stories and treatments, etc., makes the group a healthy and supportive place to be – a very good thing!

                        Good health to you, Marcus!

                        C

                        • June 22, 2016 at 3:12 am
                        CHD
                        Participant

                          Hi Marcus,

                          I did join the FB group for awhile.  Wonderful group of people, but so much alternative/New Age type stuff being promoted.  I have some issues with the New Age beliefs that we create our own illnesses (guilt inducing to patients already dealing with a society who guilts people over cancer diagnoses) and so many posts on alternative treatments that are not backed by research (nutrition and otherwise), but otherwise it is a great group.  It is wonderful that you are reaching out.  It is a lonely disease by the sheer absence of numbers.  Apart from the New Agey beliefs, the sharing of personal stories and treatments, etc., makes the group a healthy and supportive place to be – a very good thing!

                          Good health to you, Marcus!

                          C

                        • June 21, 2016 at 6:26 pm
                        hawaii marcus
                        Participant

                          Sorry, didn't realize my email was private if you go to my info; it is marcusreimel at gmail.com please replace the " at " with the @

                           

                          Aloha

                          • June 22, 2016 at 4:47 pm
                          Becky
                          Participant

                            Thank you Marcus. I follow your blog and always am happy to see you doing well.

                            My son is 28 next week and is 7 years out from a stage 3 MM dx! ( his was oral…tongue…rare among the rare)

                            • June 22, 2016 at 4:47 pm
                            Becky
                            Participant

                              Thank you Marcus. I follow your blog and always am happy to see you doing well.

                              My son is 28 next week and is 7 years out from a stage 3 MM dx! ( his was oral…tongue…rare among the rare)

                              • June 22, 2016 at 4:47 pm
                              Becky
                              Participant

                                Thank you Marcus. I follow your blog and always am happy to see you doing well.

                                My son is 28 next week and is 7 years out from a stage 3 MM dx! ( his was oral…tongue…rare among the rare)

                                • June 22, 2016 at 9:53 pm
                                IvanaDim
                                Participant
                                  What is the name of the FB group page? I am allready registered in one…

                                  Thanks!

                                  • June 22, 2016 at 9:53 pm
                                  IvanaDim
                                  Participant
                                    What is the name of the FB group page? I am allready registered in one…

                                    Thanks!

                                    • June 22, 2016 at 9:53 pm
                                    IvanaDim
                                    Participant
                                      What is the name of the FB group page? I am allready registered in one…

                                      Thanks!

                                        • June 29, 2016 at 12:59 am
                                        hawaii marcus
                                        Participant

                                          Mucosal Melanoma Warriors on Facebook.

                                          Yes, I believe you are in with us IvanaDim

                                          • June 29, 2016 at 12:59 am
                                          hawaii marcus
                                          Participant

                                            Mucosal Melanoma Warriors on Facebook.

                                            Yes, I believe you are in with us IvanaDim

                                            • June 29, 2016 at 12:59 am
                                            hawaii marcus
                                            Participant

                                              Mucosal Melanoma Warriors on Facebook.

                                              Yes, I believe you are in with us IvanaDim

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