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Mucosal Melanoma Community

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    • January 8, 2016 at 9:40 pm
    EricaLoney78
    Participant

      https://www.facebook.com/groups/906485416088740/#

       

      Hello Everyone, My name is Erica. I am the caregiver of for my mom who was stage 4 oral mucosal melanoma. Her diagnosis came last May after a long battle with gum pain. Since then, she has had to have her upper jaw removed, her hard pallete removed and wears a prosthetic now and has had 30 rounds of radiation.

      Stage 2 Lung Cancer was also picked up on the PETscan so a Lobectomy was in order and due to mets to the lymphnodes, chemotherapy has actually begun today.

      I have been very active in the melanoma community since this past summer to help bring awareness to this terrible cancer.. whether MM or cutaneous melanoma. Awareness is key.

      i also find it is hard to bring all of us together…so, we opened a group on facebook to bring us all together;

      Mucosal Melanoma Warriors who are trying to find others like them. They suffers from MM in areas such as :

      Vulva

      Vagina

      Nasal

      Oral

      Rectum

      You will find the link at the top of this post. Thank you and best wishes.

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