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i was dx with naso/sinus mucosal melanoma 5 years ago i opted for surgery and radiation and more surgery to keep it at bay in my nose. now the PET shows 2 spots in my liver. i feel well but need to have a biopsy and then decide from there. i have been putting off immunotherapy since i dont have any of the markers and it is for skin melanoma. they dont have any specific treatment for mucosal other than use the immunotherpy for skin. recently, i am hearing that there is a 5 year survival rate for 20% of patients. hope that is true. please let me know if you have mucosal and how you are doing. and what the treatment has been.
I also have mucosal and was recently diagnosed in January. I had 3 immunotherapy treatments of the combined opdivo and yervoy. We had to cancel the 4th due to the side effects. I had my first PET scan in April since treatment started and there was no longer evidence of cancer. The response to the treatment has been amazing. I was on prednisone to treat the side effect for about 2 months, just got weaned off and this week started the single treatment of Opdivo. The plan is to continue Opdivo treatment until the next PET scan and then reevaluate.
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