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MRF Twitter Chats – Suggested Topics?
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MRF Twitter Chats – Suggested Topics?

› Forums › General Melanoma Community › MRF Twitter Chats – Suggested Topics?

  • Post
    • January 27, 2015 at 2:32 pm
    lsmith – MRF
    Keymaster

      Hi all,

      The MRF plans to host several Twitter chats in 2015 and we'd like to hear from you! What topics would you like to see our Twitter chats address? In 2014, we covered clinical trials, the importance of early detection and tips for coping with the stress of the holidays. Please post your suggests here on MPIP or feel free to email me at [email protected].

      Thank you!

      – Lauren, MRF

    Viewing 2 reply threads
    • Replies
        • January 28, 2015 at 1:19 pm
        Maureen038
        Participant

          Lauren,

              I think an important topic would be when to get a second opinion and dealing with your current oncologist's attitude towards doing that. My husband has had stage 4 melanoma for over two years. We have seen probably about six of the top east coast melanoma specialists to get the best strategies and opinions to fight this tricky disease. His oncologist is very open to this. We have tried our best to always have a plan b and c in case the current plan doesn't work. We feel this is why your site is so important too! Asking questions on the board to fellow patients is so much easier than telling one specialist you're turning down his choice of treatment and going to another specialist. We were given a very sarcastic reply by one specialist when we did this. It can be intimidating, but ultimately it's the patient's right to do this. Our deep gratitude goes to Tim and all of you for your excellent work on informing patients!

          Maureen

          PS As a caregiver, I like the new post on caregiver fatigue. It's an important topic.

          • January 28, 2015 at 1:19 pm
          Maureen038
          Participant

            Lauren,

                I think an important topic would be when to get a second opinion and dealing with your current oncologist's attitude towards doing that. My husband has had stage 4 melanoma for over two years. We have seen probably about six of the top east coast melanoma specialists to get the best strategies and opinions to fight this tricky disease. His oncologist is very open to this. We have tried our best to always have a plan b and c in case the current plan doesn't work. We feel this is why your site is so important too! Asking questions on the board to fellow patients is so much easier than telling one specialist you're turning down his choice of treatment and going to another specialist. We were given a very sarcastic reply by one specialist when we did this. It can be intimidating, but ultimately it's the patient's right to do this. Our deep gratitude goes to Tim and all of you for your excellent work on informing patients!

            Maureen

            PS As a caregiver, I like the new post on caregiver fatigue. It's an important topic.

            • January 28, 2015 at 1:19 pm
            Maureen038
            Participant

              Lauren,

                  I think an important topic would be when to get a second opinion and dealing with your current oncologist's attitude towards doing that. My husband has had stage 4 melanoma for over two years. We have seen probably about six of the top east coast melanoma specialists to get the best strategies and opinions to fight this tricky disease. His oncologist is very open to this. We have tried our best to always have a plan b and c in case the current plan doesn't work. We feel this is why your site is so important too! Asking questions on the board to fellow patients is so much easier than telling one specialist you're turning down his choice of treatment and going to another specialist. We were given a very sarcastic reply by one specialist when we did this. It can be intimidating, but ultimately it's the patient's right to do this. Our deep gratitude goes to Tim and all of you for your excellent work on informing patients!

              Maureen

              PS As a caregiver, I like the new post on caregiver fatigue. It's an important topic.

          Viewing 2 reply threads
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